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November Newsletter
Dear friends,
The newsletter has returned, after an extended break!
We join the world in watching with great concern as the events unfold in Israel and Gaza, and we hope for a speedy resolution and long-term peace in the region. It is timely to announce the publication of evidenced-based guidelines for teachers on supporting the mental health and wellbeing of deaf and hard of hearing children in the Gaza strips. Nat Scherer, and others from ICED, worked to develop these guidelines, together with the Atfaluna Society for Deaf Children and CBM, using collaborative and participatory approaches. Atfaluna Society for Deaf Children are now working with the Palestinian Ministry of Education and Higher Education to roll-out the guidelines to schools in the Gaza Strip and to deliver programmes on psychological support within schools.
Evidence and stories continue to emerge on poor access to healthcare for people with disabilities, including a new watchdog report on how hospitals fail people with learning disabilities in the UK. We are therefore pleased to continue to work to address this issue. We have partnered with the McKinsey Health Institute for a report on “The missing billion: Lack of disability data impedes healthcare equity”, and last month joined the first panel on disability to be hosted at the World Health Summit! LSHTM also joined the Missing Billion Initiative and other partners to make a Clinton Global Initiative commitment on disability-inclusive healthcare in New York in September.
In other ICED news, we would like to congratulate Dr Dorothy Boggs on the final completion of her PhD and Phil Sheppard for passing his DrPH viva subject to minor corrections. Luthfi Azizatunnisa’ and Desta Debalkie passed their PhD upgrades with minor corrections. We would also like to welcome a new member of the team – Sara Rotenberg – who has recently completed her Rhodes Scholarship at Oxford University and will be joining the PENDA team. Welcome to the group!
With best wishes,
Hannah and Tom
PENDA is a major ICED project, funded by FCDO, aiming to increase evidence to support disability inclusive development. We will focus on developing people, knowledge and tools.
Some updates on PENDA this month…We now have 11 evaluations up and running, across the PENDA programme, working with a wide range of partners. Find out more information from our website:
- Access of children with disabilities to school-based interventions: an RCT in Malawi and India
- Impact of a disability-targeted livelihoods programme in Bangladesh: the STAR+ programme
- Disability Inclusive Graduation: a cluster-randomised trial in Uganda
- Disability Inclusive Graduation: a cluster-randomised trial in Bangladesh
- Improving access to family planning in Kaduna City, Nigeria: a cluster-randomised trial
- Impact evaluation of the InBusiness programme to improve the economic empowerment of microentrepreneurs with disabilities in Kenya
- Evaluation of a programme of early assessment, care and support for children at risk of developmental disabilities in Rwanda
- Impact evaluation of a pilot cash transfer programme for households of children with disabilities in Lao PDR
- Hygiene and Behaviour Change: inclusion of people with disabilities and older people in the COVID-19 response
- Improving access to healthcare for people with disabilities in Uganda: A cluster-randomised trial
- Improving access to education for children with disabilities in Bangladesh: an impact evaluation
Publications
Lots of papers in the last few months from ICED!
A few in particular to highlight:
As described above, Nat Scherer and colleagues published guidelines Development of mental health and psychosocial support (MHPSS) guidelines for deaf and hard of hearing children in the Gaza Strip, in PLOS Glob Public Health. He also led the publication on 'Do they ever think about people like us?': The experiences of people with learning disabilities in England and Scotland during the COVID-19 pandemic. Critical Social Policy.
Jane Wilbur guest edited “World Water Day 2022: Importance of WASH, Equal Access Opportunities, and WASH Resilience - A Social-Inclusion Perspective”, for Frontiers in Water, including an editorial to introduce the edition. She also published the article Adapting menstrual health interventions for people with intellectual disabilities in emergencies. In Frontiers of Sanitation. It describes the adaptation of the Bishesta campaign – a menstrual health intervention for people with intellectual disabilities and their caregivers - for Vanuatu’s humanitarian emergencies (“ the Veivanua campaign”).
Hannah Kuper and Tracey Smythe undertook a systematic review highlighting the higher risk of people with disabilities from COVID-19-related mortality, and overall showed they were at 2.7-fold higher risk. They also worked with a wider to team and published the protocol for the implementation of a community-based participatory group programme to address issues of access to healthcare for people with disabilities in Luuka district Uganda in BMJ Open. Hannah Kuper and Morgon Banks also wrote a commentary “Human functioning matters: now what?” for Frontiers in Science.
Oher publications from ICED:- Hashemi G, Santos AL, Wickenden M, Kuper H, Shea CK, Hameed S. Healthcare Stakeholders' Perspectives on Challenges in the Provision of Quality Primary Healthcare for People with Disabilities in Three Regions of Guatemala: A Qualitative Study. Int J Environ Res Public Health. 2023 Oct 8;20(19):6896.
- Shakespeare T. Listening to the Voices of Persons with Disabilities. Arch Sex Behav. 2023 Sep 11. doi: 10.1007/s10508-023-02680-w. Epub ahead of print. PMID: 37697096.
- Aruldas K, Banks LM, Nagarajan G, Roshan R, Johnson J, Musendo D, Arpudharangam I, Walson JL, Shakespeare T, Ajjampur SSR. "If he has education, there will not be any problem": Factors affecting access to education for children with disabilities in Tamil Nadu, India. PLoS One. 2023 Aug 16;18(8):e0290016.
- Smythe T, Rotenberg S, Lavy C. The global birth prevalence of clubfoot: a systematic review and meta-analysis. EClinicalMedicine. 2023 Aug 30;63:102178. doi: 10.1016/j.eclinm.2023.102178.
- Hunt X, Hameed S, Tetali S, Ngoc LA, Ganle J, Huq L, Shakespeare T, Smythe T, Ilkkursun Z, Kuper H, Acarturk C, Kannuri NK, Mai VQ, Khan RS, Banks LM. Impacts of the COVID-19 pandemic on access to healthcare among people with disabilities: evidence from six low- and middle-income countries. Int J Equity Health. 2023 Aug 31;22(1):172.
- Drury G, Nunn TR, Dandena F, Smythe T, Lavy CBD. Treating Older Children with Clubfoot: Results of a Cross-Sectional Survey of Expert Practitioners. Int J Environ Res Public Health. 2023 Sep 27;20(19):6846.
- Chen S, Zhang H, Kuper H. Perinatal mental health services for women from minority ethnic groups: why patient-centred approach matter. BMC Med. 2023 Oct 3;21(1):371.
- McGrath M, Woldie M, Berhane M, Abera M, Hailu E, Rana R, Lanyero B, Grijalva-Eternod C, Abdissa A, Girma T, Kerac M, Smythe T. Mapping the range of policies relevant to care of small and nutritionally at-risk infants under 6 months and their mothers in Ethiopia: a scoping review protocol. BMJ Open. 2023 Sep 19;13(9):e069359.
- Frisby C, Eikelboom RH, Mahomed-Asmail F, Kuper H, Moore DR, de Kock T, Manchaiah V, Swanepoel W. Mobile Health Hearing Aid Acclimatization and Support Program in Low-Income Communities: Feasibility Study. JMIR Form Res. 2023 Aug 23;7:e46043.
- Dreise M, Elkins C, Muhumuza MF, Musoke H, Smythe T. Exploring Bracing Adherence in Ponseti Treatment of Clubfoot: A Comparative Study of Factors and Outcomes in Uganda. Int J Environ Res Public Health. 2023 Jul 19;20(14):6396.
- Da Silva SV, Reichenberger V, Vieira GI, Clemente KAP, Ramos VD, de Brito CMM. Repercussions of the COVID-19 pandemic on health services for people with disabilities: report from rehabilitation professionals, Cad Saude Publica 2023; 39 (6)
New Disability Evidence Briefs!:
- What interventions work to address trauma among people with intellectual disabilities?
- How can mHealth be used to improve the health and functioning of people with disabilities?
- What role can community health workers play in disability services in LMICs?
- What works to improve healthcare professionals’ competency on disability?
Upcoming Seminars and Events by LSHTM
Upcoming ICED webinar:
You can find all our previous seminars (including the audio recordings and slides) here.
Thursday November 9th at 14:00 GMT: PhD Upgrading Seminar: Benafsha Yaqoobi
PhD Title: A study on the situation of children/youth with disabilities accessing education in Afghanistan: (2001-2021). On Zoom link (Meeting ID: 982 8502 8484 and Password: 610774).
We would also like to highlight the new Stellenbosch webinar series (November 2023-April 2024), which includes a range of ICED members. The zoom link is here, for all the webinars.
All webinars are from 13:00 – 13:45 South Africa Standard Time (usually 11:00-11:45 UK time) on the 3rd Thursday of the month.16th November 2023: Piloting the disability accessibility checklist (DAC) in Uganda, Guest facilitator: Menya Abdmagidu
18th January 2024: Training healthcare workers on disability – lessons from the field, Guest facilitator: Andrew Ssemata
15th February 2024: Social protection for people with disabilities, Guest facilitators: Luthfi Azizatunnisa and Morgon Banks
21st March 2024:Crafting Conference-Worthy Academic Abstracts, Guest facilitator: Lieketseng Ned
18th April 2024: Academic Writing: Developing a Manuscript for Publication, Guest facilitator: TBA
Other things of interest
- New global report on children with developmental disabilities from WHO
- Interview, featuring Hannah Kuper, on Healthcare Asia is now live.
- New report climate change and persons with albinism
Work Experience Programme at ICED
We currently are not taking on new candidates, but hope to sometime in the future, so please check our Resources for updates.
Have you seen this?
- Can’t get enough of Tom Shakespeare? His comic novel – The Ha-Ha – is coming out in the spring, with a second novel to follow in 2025
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Disability-Inclusive Education and Employment
This film presents findings from a research project on Disability-Inclusion in Education and Employment in seven countries in Africa (Ethiopia, Ghana, Kenya, Nigeria, Rwanda, Senegal and Uganda). The film was created with young people with disabilities from Uganda and Ghana who participated in the study.
The research was conducted in partnership with ICED, Mastercard Foundation, the University of Abuja, the University of Ghana, Lifetime Consulting Ltd, Addis Ababa University, University of Nairobi, Global Advocacy and Research Group and MRC/UVRI & LSHTM Uganda Research Group. It was funded by Mastercard Foundation.
Phase 1 study reports, on the policy landscape, are available here. Phase 2 reports, based on interviews with young people with disabilities in each country, will follow. A film, about the research findings, created with young people with disabilities who participated in the study can be seen here.
COVID-19 Support and Guidance
The situation with COVID-19 is rapidly changing. We have gathered a list of resources about COVID-19 to share with caregivers, children & young people and education, health and social care practitioners to navigate the dynamic situation of the COVID-19 response, and the many impacts that it will have. We hope that they are helpful and we will continue to add new resources as they become available.
- Information on how parent groups have been run post ‘lock-down’ in Rwanda
- Guidelines on what to consider to run groups safely in the context of COVID-19
- A range of free digital COVID-19 educational resources for children: download Axel Scheffler’s book, download a copy of Lydia Monk’s book
- Share your story and contribute to voices of people with disabilities during the COVID-19 outbreak: voices
- LSHTM’s free online course for anyone who is interested to learn about what we know about COVID-19, and how we should respond to the outbreak
- A course that introduces COVID-19, created for teenagers and young adults
- Presentation from the International Centre for Evidence in Disability: making the response disability-inclusive
- Paper on what we can learn from a disability inclusive response
- Working with parent groups – a training resource for facilitators and caregivers
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These manuals (Getting to Know Cerebral Palsy, Juntos and ABAANA EIP) aim to increase knowledge and skills in caring for a child with developmental disabilities. Research highlighted the significant needs of the caregivers, and how they can gain a huge amount of support from meeting with each other in an understanding environment.
It promotes a participatory learning approach with an emphasis on working with groups and the empowerment of parents and caregivers.
Download the manual (in various languages)
“Before, my family and people in my community used to say ‘this child’s suffering is a result of parent’s sin’. After taking the training I have explained what causes cerebral palsy to others. Now, no-one says anything like this.”
Parent, Sirajganj, Bangladesh
Animated videos on child development and developmental disability
Download and use these animated videos from ICED on child developmental and developmental disability, with versions in English, Portuguese and Spanish. The first of these videos provides information on child development across different domains and considers how this process can be disrupted for some children. The second explores the challenges and barriers in the lives of people with a developmental disability, and how support strategies can help an individual better participate in their community.
Please use these videos in your own teaching, support groups or in any other forum, appropriately acknowledging the International Centre for Evidence in Disability at the London School of Hygiene & Tropical Medicine.
The videos are available in English, Portuguese (Brazil) and Spanish.
View the English videos below:
View the English videos with subtitles here:
- Child development video with English subtitles
- Developmental disability video with English subtitles
View the Portuguese (Brazil) videos with subtitles here:
- Child development video with Portuguese (Brazil) subtitles
- Developmental disability video with Portuguese (Brazil) subtitles
View the Spanish videos with subtitles here:
Supporting Families Affected by Zika virus
Children with developmental disabilities and their families
Join a global community to share ideas, access the latest research, find solutions, meet new people and collaborate on innovative and exciting projects.
Community Ear and Hearing Health Journal
This annual publication promotes good ear and hearing health in low and middle-income countries.
It's a forum for exchanging ideas, experience and information that facilitate continuing education for all levels of health worker. It is delivered to almost 4,000 healthcare providers worldwide. Some issues have been translated into French and Spanish.
- Read previous issues
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- Issue No. 21 (2020) Ear and hearing care in the midst of a pandemic
- Issue No. 20 (2019) Noise-induced hearing loss
- Issue No. 19 (2018) Hearing aid systems in low-resource settings
- Issue No. 18 (2017) Focus: Ear and Hearing Health in Schools
- Issue No. 17 (2016) Common ear conditions underdiagnosed at primary level
- Version Française No. 3 (2021) Soins de l’oreille et de l’audition en temps de pandémie
- Version en Español No. 2 (2021) Cuidado del oído y la audición en media de una pandemia
- Version française No. 2 (2016) Sensibiliser la communauté à la santé de l’oreille et de l’audition
- Version en Español No. 1 (2016) Abordando los problemas de oído
- Version française No. 1 (2015) Lutter contre les affections de l’oreill et de l’audition au niveau primaire
- Issue No. 16 (2015) Testing small children’s hearing with little or no equipment
- Issue No. 15 (2014) Early detection of hearing loss in newborn and preschool children
- Issue No. 14 (2014) Living with hearing impairment
- Issue No. 13 (2013) Increasing community awareness of ear and hearing health
- Issue No. 12 (2012) Addressing ear and hearing problems at primary level
- Issue No. 11 (2011) Projects in the Philippines
- Issue No.10 (2010) Less noisy cities Issue No. 9 (2009) Noise: an ubiquitous pollutant
- Issue No.8 (2008) Tinnitus: a common and manageable complaint
- Issue No.7 (2008) Screening for hearing impairment
- Issue No.6 (2007) Chronic suppurative otitis media: a disease still waiting for solutions
- Issue No.5 (2007) Rehabilitation of the deaf and hard of hearing
- Issue No.4 (2006) Deafness caused by ototoxicity in developing countries
- Issue No.3 (2006) Congenital infections and hearing impairment
- Issue No.2 (2005) Current practice for ear syringing
- Issue No.1 (2004) Congenital deafness in developing countries
Press articles
Read articles on ICED activity in the international press and on SciDev.net. Use disability resources from across the web.
- Read press articles on our work
-
- Disability in the Global South Journal focusing on Disability and the SDGs, edited by Hannah Kuper and Shaun Grech. July 2017
- National Survey of Disability in Guatemala 2016 – Case Study, International Institute for Sustainable Development, June 2017
- Hannah Kuper discusses the exclusion of children with disabilities from education around the world – Al Jazeera News Hour (live), 18 August 2015
- Many disabled children in poorer countries left out of primary education – The Guardian, 18 August, 2015
SciDev.net columns
- February 2016: ‘Zika babies’ need support now
- January 2016: Kids at risk from El Niño
- December 2015: Monitor birth defects to save lives
- November 2015: Rethink healthcare for the ageing world
- October 2015: Defend girls’ sexual health rights
- September 2015: Reshape mental healthcare in crises
- August 2015: Give SDG monitoring some bite
- July 2015: Community care cuts NTD burden
- June 2015: Better data on disaster victims
- May 2015: A better way to find disabled kids
- April 2015: The next hurdle for Ebola survivors
- March 2015: Universal Health Coverage: Bearing the Brunt of Violence
- February 2015: Reaching Patients with Smartphones
- January 2015: Universal Health Care can happen
- December 2014: HIV and Disability November 2014: Ageing and Disability
Global Health and Disability
All files and contents in this folder are © LSHTM unless otherwise stated. You are welcome to reuse, adapt and share these files for non-commercial teaching and learning purposes without asking for permission. You must acknowledge the International Centre for Evidence in Disability, LSHTM as the original creator and provide a link to our website: www.lshtm.ac.uk/research/centres/international-centre-evidence-disability. We would also very much appreciate hearing how you are using the content, please let us know at disabilitycentre@lshtm.ac.uk.
- Download full course
- Download content from each week
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- Week 1: Disability and its importance to the global development agenda
ZIP (522MB)|ZIP (no videos) (9MB) - Week 2: Health, wellbeing and disability
ZIP (807MB)|ZIP (no videos) (19MB) - Week 3: Access to health care and rehabilitation services
ZIP (904MB)|ZIP (no videos) (154MB)
- Week 1: Disability and its importance to the global development agenda
- Download individual resources
-
Video: Welcome to the course
Week 1: Disability and its importance to the global development agenda
Video: Welcome to week 1
Video & teaching slides: Why does disability matter globally?
- Video (MP4 74.9MB)
- Step text and transcript (PDF 80KB)
- Teaching slides (PDF 954KB)
- References (PDF 88KB)
Video: Why does disability matter – Personal perspectives
Article: Why does disability matter – individual case studies
Article: Why does disability matter to International Development? Part 1
Article: Nothing about us without us
- Article (PDF 122KB)
- References (PDF 188KB)
- Disability and the SDGs – How relevant is each SDG to disability? (PDF 632KB)
Video: What does disability mean – personal perspectives
Video: Attitudes to disability
Video: What does disability mean – a framework
Article: Measuring disability: Why would you want to and how do you do it?
Video: What is the relationship between impairments and disability?
Video: what are the common impairments related to disability?
- Video (MP4 42MB)
- Step text and transcript (PDF 81KB)
- Teaching slides (PDF 2MB)
- References (PDF 266KB)
Article: Why does impairment matter?
Video: Summary of week 1
Video: Welcome to week 2