Welcome back after the summer. We hope that you had a great break!
A key constraint in generating good evidence on disability is the dearth of researchers with disabilities, particularly from low resource settings. We are therefore delighted to welcome four students with disabilities from the Global South to start the doctoral programme at LSHTM from this month! Luthfi Azizatunnisa is from Indonesia and will be investigating disability and social protection, particularly in relation to health insurance provision. Pravarsha Prakash, from India, will focus on the inclusion of people with disabilities in Anti-Microbial Resistance activities. Desta Debalkie, from Ethiopia, will explore access to healthcare for people with disabilities. Jackie Akoth, from Uganda, will investigate the challenges that sign language users experience in accessing healthcare services. We are immensely grateful to the donors (NIHR, Indonesian Government, Younger Family) in supporting these doctoral students and we aim to expand this programme further in the coming years.
Another way in which we are trying to address the gap in researchers with disabilities is through our work experience programme at LSHTM. We have loved having several more placements with us over the summer. They have worked on a range of reviews, qualitative research and policy analysis. We are very pleased to announce that the programme is being extended to MRC Uganda to work within the disability research programme there. Please contact us here if you would like to find out more about these opportunities.
Another issue that we face in our work is how to move evidence into practice and policy. We therefore developed and launched the Disability Evidence Portal as a repository of solutions, evidence and tools for strengthening decision-making within Disability-Inclusive Development. The Evidence Portal has made it to the Zero Project shortlist in the field of Information and Communication Technology. Results out this month!
Please read on for more news on papers and projects!
With best wishes,
Hannah and Tom
PENDA is a major ICED project, funded by FCDO, aiming to increase evidence to support disability inclusive development. We will focus on developing people, knowledge and tools.
Some updates on PENDA this month…
- The baseline is now complete for the Star Plus randomised controlled trial in Bangladesh, which investigates whether an inclusive livelihood programme is feasible and effective.
- The endline is now complete for the randomised controlled trial in Uganda, investigating the impact of Disability-inclusive poverty graduation.
- PENDA is supporting a work experience programme for researchers with disabilities at MRC Uganda.
Lots of papers from ICED!
Tracey Smythe led the paper on The Role of Parenting Interventions in Optimizing School Readiness for Children With Disabilities in Low and Middle Income Settings in Frontiers in Pediatrics. This paper makes the case for optimising school readiness for children with disabilities by focusing on disability and its determinants within culturally sensitive parenting interventions, and early child development teaching programmes at schools, to better inform parents and teachers and strengthen education systems towards achieving the full intent of SDG 4.2 and global development goals for all.
Morgon Banks led a team of ICED and other researchers to produce the helpful report on Adapting Disability Research Methods and Practices During the Covid-19 Pandemic: Experiences from the Field for IDS Bulletin. She also teamed up with international authors for the report on Estimating the Extra Costs for Disability for Social Protection Programs. This report uses different approaches to estimate extra costs and makes recommendations on the findings for improvement of social protection programmes.
Tom Shakespeare supported the ONS report on “Disabled people's experiences with activities, goods and services, UK: February to March 2022”, which reports on the findings of qualitative research with a range of people with disabilities.
Hannah Kuper contributed to the paper on The economic burden of congenital Zika Syndrome in Brazil: an overview at 5 years and 10 years. Published in BMJ Global Health. This paper shows that there are high costs incurred to families of children with congenital Zika Syndrome, as well as, health care providers and governments, but that when families receive social protection it buffers them from catastrophic economic impacts. The term “burden” is used as it is common in economics, and not to imply in any way that these children are a burden.
Hannah Kuper recorded a podcast to support the paper on The National Health Policy for People with Disabilities in Brazil: An Analysis of the Content, Context and the Performance of Social Actors. in Health Policy and PlanningFormer ICED MSc Student Fahrin Andiwijaya worked with Calum Davey and Hannah Kuper to produce the article "Disability and Participation in Breast and Cervical Cancer Screening: A Systematic Review and Meta-Analysis" in IJERPH, which shows that women with disabilities were 22% less likely to have been screened for breast cancer and 37% less likely to have been screened for cervical cancer.
Other papers this month:
Hearing related studies:
Update from the Disability Evidence Portal:
The Disability Evidence Portal (DEP) includes evidence-based briefs to guide policy makers on different topics.
The DEP's Lambert Felix received DPH funding to attend the 14th International Conference on Osteogenesis Imperfecta (OI) at Sheffield from 30th August - 2nd September.
Both the conference sessions, and networking with multidisciplinary professionals including organisations for people with disabilities highlighted the need for further research, in particularly specific guidelines related to management of people with osteogenesis imperfecta (OI).
As a first step, an evidence brief focusing on OI in LMICs will be undertaken as part of the DEP work. The brief will aim to produce both condition-specific and generic disability inclusive recommendations.
Upcoming Seminars and Events by LSHTM
Upcoming ICED webinar:
You can find all our previous seminars (including the audio recordings and slides) here.
New seminar series to start in October. Watch this space!
Other things of interest
And finally... LSHTM is celebrating 10 years of the MSc Global Mental Health
Date & Time: Friday 23 September 2022, 13:00 - 19:00 BST
Broad agenda: 13:00 - 14:30 for staff presentations/discussions
15:00 - 17:00 for MSc GMH 10-year celebration session
17:00 - 19:00 Reception
Venue: John Snow Lecture Theatre, London School of Hygiene and Tropical Medicine, Keppel Street, London WC1E 7HT, United Kingdom
(Livestream details to be confirmed. Otherwise, we hope to record the celebration event and share it afterwards. Details will be shared with registrants closer to the date).
If you are able to attend, please register on Eventbrite by Monday 19 September. If you would like to share your work (5-7 minute talk, pending number of speakers) at the staff presentations session, please let us know by completing this brief Expression of Interest Form by Friday 9 September 2022 to enable us sufficient time to confirm the speakers.
Work Experience Programme at ICED
We are delighted to have been awarded an LSHTM Equality Diversity and Inclusion Grant to continue our work experience scheme for people with disabilities seeking experience in research. All placements have now been filled but we will re-open our programme next year for new candidates. Further information will be provided as it becomes available.
Have you seen this?
Ever wanted to know about the key suffragettes with disabilities? Read here. I particularly like the sound of Rosa May Billinghurst who used her tricycle like a battering ram to push through police lines!