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Newsletter

Keep up to date with our research, news and events

Read the latest newsletter

Dear friends,

Happy June! We hope that sunshine is reaching you, wherever you are!

Hot off the press! A pre-announcement. ICED will be holding a conference in London on November 26-27, 2026. It will include dissemination of findings from PENDA, but also an open call for contributions. Watch this space for an abstract and registration form that will be circulated imminently. We look forward to seeing you at the conference!

In celebration of Menstrual Hygiene Day (28 May), Katie Greenland, Jane Wilbur and Sarah Polack shared high-level findings from our Menstrual Health and Down syndrome study, which are also available in an Easy Read version. We found that caregivers often felt anxious about menarche, but adolescents generally coped better than expected. Period underwear made a big difference, but heavy periods and communication of pain remained key concerns, and caregivers want more support and accessible guidance. We suggest actions, including developing tailored menstrual health education and resources for different cognitive abilities. Together with the Down Syndrome Research Foundation (DSRF), which funded the study, Katie Greenland shared findings widely. You can catch up and watch a video about the findings on YouTube, or read a transcript of the video published here.

Keeping with the Down Syndrome theme - Tracey Smythe, Katie Greenland, Jane Wilbur, Hannah Kuper and collaborators, including self-advocates, families, researchers and clinicians, published two new Lancet Reviews. The papers show that disability-inclusive healthcare is achievable and transformative when health systems move beyond deficit framing and build care around dignity, partnership, communication, and belonging for people with Down Syndrome. Read the Series here: Advancing healthcare access and Strengthening healthcare pathways. 

As part of this series, The Lancet featured profile pieces on Jane Wilbur and Tracey Smythe, bringing to life the passions behind their work on health inequalities, the people and partnerships that have shaped their journeys, and what brings them joy outside their professional lives. Access these profiles and the two papers for free by signing up to the Lancet Commission and Adolescent Health. 

Read on for more news from PENDA, publications, seminars, and more!

With best wishes,

Hannah Kuper and Tom Shakespeare 
International Centre for Evidence in Disability, London School of Hygiene & Tropical Medicine

Read the full June 2026 newsletter

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Browse the ICED newsletter archive.

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ICED webinar

Save the dates for our 2026 monthly webinars

  • 24 January 2026 - Disability, Conflict and Education
  • 24 February 2026 - PENDA InBusiness: Evidence from a livelihood support programme for persons with disabilities in Kenya
  • 24 March 2026 -Strengthening Menstrual Health for Women and Girls with Disabilities: Evidence and Innovation
  • 28 April 2026 - "Tusobola: We Can" A film on the Missing Billion Participatory Learning and Action for Disability project in Uganda
  • 26 May 2026 - Co-producing community-based mental health support in Africa
  • 7 July 2026 - Disability Inclusive Graduation: A livelihood support intervention in Bangladesh
  • 25 August 2026 - Preventing school violence among children with disabilities in Tanzania
  • 8 September 2026 - Evidence from inclusive social protection programmes in Laos and Sierra Leone
  • 29 September 2026 - Findings from the FAIR framework project for inclusive humanitarian action
  • 6 October 2026 - IFPLAN: Insights from a disability inclusive family planning project in Nigeria
  • 27 October 2026 - PDC/Baby Ubuntu: early care and support for children at risk of developmental disabilities and their caregivers in Rwanda
  • 19 November 2026 - PLA-D: A community-led approach for disability inclusion in health in Uganda

More information on individual webinars, including details on how to join, will be shared closer to their respective dates.

View all events

NIHR Community engagement and involvement (CET) Podcast

The fourth episode of the NIHR community engagement and involvement podcast series 'Leaving no one behind' featured Dr Andrew Sentoogo Ssemata, Research Fellow at MRC/UVRI & LSHTM Uganda Research Unit.

Film

Disability Inclusive Education and Employment

This film presents findings from a research project on Disability-Inclusion in Education and Employment in seven countries in Africa (Ethiopia, Ghana, Kenya, Nigeria, Rwanda, Senegal and Uganda). The film was created with young people with disabilities from Uganda and Ghana who participated in the study.  

The research was conducted in partnership with ICED, Mastercard Foundation, the University of Abuja, the University of Ghana, Lifetime Consulting Ltd, Addis Ababa University, University of Nairobi, Global Advocacy and Research Group and MRC/UVRI & LSHTM Uganda Research Group. It was funded by the Mastercard Foundation. 

Phase 1 study reports on the policy landscape are available here. 

Watch a film about the research findings, created with young people with disabilities who participated in the study here.

A man signs in Ugandan Sign Language. He is signing that "I have a hearing impairment and I am from Arua." He is sitting outside for a video interview.
Watch the film
Ubuntu

COVID-19 Support and Guidance

The  situation with COVID-19 is rapidly changing. We have gathered a list of resources about COVID-19 to share with caregivers, children & young people and education, health and social care practitioners to navigate the dynamic situation of the COVID-19 response, and the many impacts that it will have. We hope that they are helpful and we will continue to add new resources as they become available. 

Working with parent groups – a training resource for facilitators and caregivers

These manuals (Getting to Know Cerebral Palsy, Juntos and ABAANA EIP) aim to increase knowledge and skills in caring for a child with developmental disabilities. Research highlighted the significant needs of the caregivers, and how they can gain a huge amount of support from meeting with each other in an understanding environment.

It promotes a participatory learning approach with an emphasis on working with groups and the empowerment of parents and caregivers.

Download the manual (in various languages)

“Before, my family and people in my community used to say ‘this child’s suffering is a result of parent’s sin’. After taking the training I have explained what causes cerebral palsy to others. Now, no-one says anything like this.” 
Parent, Sirajganj, Bangladesh

Animated videos

Animated videos on child development and developmental disability

Download and use these animated videos from ICED on child developmental and developmental disability, with versions in English, Portuguese and Spanish. The first of these videos provides information on child development across different domains and considers how this process can be disrupted for some children. The second explores the challenges and barriers in the lives of people with a developmental disability, and how support strategies can help an individual better participate in their community. 

Please use these videos in your own teaching, support groups or in any other forum, appropriately acknowledging the International Centre for Evidence in Disability at the London School of Hygiene & Tropical Medicine.

The videos are available in English, Portuguese (Brazil) and Spanish.

View the English videos below:

lshas13
lshas13

View the English videos with subtitles here:

View the Portuguese (Brazil) videos with subtitles here:

View the Spanish videos with subtitles here:

Film

Supporting Families Affected by Zika virus

lshas13
Global Community

Children with developmental disabilities and their families

Join a global community to share ideas, access the latest research, find solutions, meet new people and collaborate on innovative and exciting projects.

Journal

Community Ear and Hearing Health Journal

This annual publication promotes good ear and hearing health in low and middle-income countries.

It's a forum for exchanging ideas, experience and information that facilitate continuing education for all levels of health worker. It is delivered to almost 4,000 healthcare providers worldwide. Some issues have been translated into French and Spanish.

Read previous issues
Press and Resources

Press articles

Read articles on ICED activity in the international press and on SciDev.net. Use disability resources from across the web.

Read press articles on our work

SciDev.net columns

COURSES

Global Health and Disability

All files and contents in this folder are © LSHTM unless otherwise stated. You are welcome to reuse, adapt and share these files for non-commercial teaching and learning purposes without asking for permission. You must acknowledge the International Centre for Evidence in Disability, LSHTM as the original creator and provide a link to our website. We would also very much appreciate hearing how you are using the content - please let us know at [email protected].

Download full course

Full course ZIP (2GB) |ZIP (no videos) (182MB)

Download content from each week
Download individual resources

Video: Welcome to the course

Week 1: Disability and its importance to the global development agenda

Video: Welcome to week 1

Video & teaching slides: Why does disability matter globally?

Video:  Why does disability matter – Personal perspectives

Article: Why does disability matter – individual case studies

Article: Why does disability matter to International Development? Part 1

Article: Nothing about us without us

Video: What does disability mean – personal perspectives

Video: Attitudes to disability

Video: What does disability mean – a framework

Article: Measuring disability: Why would you want to and how do you do it?

Video: What is the relationship between impairments and disability?

Video: what are the common impairments related to disability?

Article: Why does impairment matter?

Video: Summary of week 1

Video: Welcome to week 2

Public Health Planning for Hearing Impairment (PHPHI) short course

This 5-day international short course aimed to familiarise participants with the concepts and principles of public health approaches to ear and hearing care, with emphasis on planning and implementing programmes in low- and middle-income countries. From 2009 to end of 2021, 1701 health workers from 59 countries have been taught in 59 courses in 15 centres. 10 of these centres are in low- and middle-income countries.

Participants who attended the PHPHI course at the South Asia Centre for Disability Inclusive Development and Research (SACDIR), Indian Institute of Public Health, Hyderabad, India in 2016.

More about PHPHI

In 2020, all the current courses were converted to completely on-line or hybrid courses.

Short report on the Public Health Planning for Hearing Impairment (PHPHI) on-line courses in 2020.

Article – Public health planning for hearing impairment Andrew W Smith ENT & Audiology news Volume 26 Issue 5 2017

PHPHI Map July 2022
PHPHI participant numbers July 2022

Contact: For more information about PHPHI short courses please contact Joanna Jeremy