Happy new year to you all. I sincerely hope that 2021 will be more positive for the world, and that the end of this pandemic will come into sight.
One of the impacts of the COVID-19 pandemic has been that we are all working from home most of the time, and so we are increasing our efforts to move our materials and seminars online. Please read on to find out about how we have tried to improve the virtual presence of the Ubuntu-hub, and about our webinars lined up this year. We have also compiled some key resources on disability and COVID-19 below.
We have been working hard on our publications, and this month have publications out on the experience of people with disabilities during COVID-19 in the UK, mental health among Syrian refugees, and inclusive health. We also have a range of publications on the experiences and needs of children with developmental disabilities and their carers, and on access to hearing services. The latest issue of Community Ear and Hearing Health was also published by ICED, focussed on 'Ear and hearing care in the midst of a pandemic'
We have two great webinars coming up. On Monday February 22, 13:00-14:00, we will have a range of speakers, from ICED and beyond, presenting on “Co-production in Disability Research and Intervention Development”. On Thursday 25th March, 12:00-13:40. We have the screening of the one hour film “My Amazing Brain: Richard’s War”, which tells the story of Richard Gray’s recovery stroke, and a panel discussion. Please do join us!
We would also like your help please!
- Good practice compendium on disability-inclusive health: The Missing Billion report was launched in 2019. We are compiling examples of how to accelerate disability inclusion across all aspects of health systems (see more details). We thought you might have a few topics from your work that we could showcase. If you have some projects in mind for this purpose, you can fill out the good practice example form and we can work together on a draft for our compendium. To find out more about the process, our framework and criteria for these good practices, please see the document attached or visit this link.
- Complete survey on livelihood for people with a child with disabilities: We are conducting a survey, aiming to capture information on approaches to supporting the livelihoods of caregivers that look after a child with disability in low- and middle-income countries. We would be grateful if you could share your experience and expertise with us by completing our livelihoods survey found here. It should take no more than 5-10 minutes to complete. Please do also forward the link onto others that you know that may be involved in early child disability work and programmes.
With best wishes,
International Centre for Evidence in Disability, London School of Hygiene & Tropical Medicine
Follow us on Twitter - @ICED_LSHTM.
PENDA is a major ICED project, funded by FCDO, aiming to increase evidence to support disability inclusive development. We will focus on developing people, knowledge and tools.
Some updates on PENDA this month...
- Almost 2,000 people registered for the first run of our MOOC - “Global Disability: Research and Evidence”. The next round will be in February/March - sign up here, and please share through your networks!
- The three PENDA PhD students are continuing to make good progress – it is great to have them on board.
- Icddr,b (Bangladesh) have been selected to lead the evaluation of the inclusion of people with disabilities in the Hygiene and Behaviour Change investment of FCDO/Unilever. We are excited to partner with them!
- Also, BIGD (Bangladesh) and the University of Cambridge have started preparing for the impact evaluation of an inclusive education programme in Bangladesh.
- New briefs are available on the Disability Evidence Portal including on measuring disability in research related to COVID-19 response, and ensuring children with disabilities are not bullied in school. Be in touch if you want to help put together an evidence brief!
Focus on... The Ubuntu-hub to support caregivers of children with developmental disabilities
Ubuntu-hub includes three complementary programmes supporting caregivers of children with developmental disabilities.
We have had many successes and challenges over the last year, and the COVID-19 pandemic has reshaped how we deliver training and our early child development programmes. We’re looking forward to 2021 and what lies ahead.
- We have launched a new Facebook group, please join us here.
- We’ve created a parent handout and poster together with caregivers, facilitators and programme co-ordinators, which helps to explain our parent group programmes. The resources are in colour and black and white, and we also have a template for translation. They can be downloaded here.
- We have a community of practice where we share ideas, access the latest research, find solutions, meet new people and collaborate on innovative and exciting projects. You can join our community here.
Survey request: As described above, we are continuing developing the programmes, and are currently examining the role, approach and availability of livelihoods support for families with a child with disability. We are conducting a survey, aiming to capture information on approaches to supporting the livelihoods of caregivers that look after a child with disability in low- and middle-income countries. We would be grateful if you could share your experience and expertise with us by completing our livelihoods survey found here. It should take no more than 5-10 minutes to complete. Please do also forward the link onto others that you know that may be involved in early child disability work and programmes.
New publications this month from our group...
The first publication from our COVID UK project, “Disabled people in Britain and the Impact of the COVID-19 Pandemic”, by Tom Shakespeare, Morgon Banks, Nat Scherer, Shaffa Hameed and Veronika Reichenberger and colleagues, is available as a preprint (note – not yet peer reviewed). This paper reports the findings from 69 disabled people and 28 key informants and documents the huge impact the pandemic has had and makes recommendations for an improved and more inclusive response.
The “Prevalence of common mental disorders among Syrian refugee children and adolescents in Sultanbeyli district, Istanbul: results of a population-based survey” was published in the journal Epidemiology and Psychiatric Sciences by Nat Scherer, Shaffa Hameed, Sarah Polack and colleagues. Among 852 Syrian refugee children aged 8-17 years, the prevalence was high for depression (12.5%), PTSD (11.5%) and anxiety (9.2%) showing an urgent need for intervention and support.
Hannah Kuper and Jill Hanass-Hancock published “Framing the debate on how to achieve equitable health care for persons with disabilities in South Africa” in the South African Health Review on “Access to Healthcare for Persons with Disabilities in South Africa. Josie Prynne and colleagues reported on “Self-reported disability in rural Malawi: prevalence, incidence, and relationship to chronic conditions” in Wellcome Open Research. Hannah Kuper wrote a commentary on “Disability, mental health, stigma and discrimination and neglected tropical diseases.” Trans R Soc Trop Med Hyg. 2020 Dec 12:traa160.
Several publications have also come out of our work focussed on children with developmental disabilities.
We have also contributed to hearing-related contributions this month:
- The latest issue of Community Ear and Hearing Health was published by ICED, focussed on 'Ear and hearing care in the midst of a pandemic'
- Manus M, van der Linde J, Kuper H, Olinger R, Swanepoel W. Community-Based Hearing and Vision Screening in Schools in Low-Income Communities Using Mobile Health Technologies. Lang Speech Hear Serv Sch. 2021 Jan 26:1-13.
- Alenezi EM, Jajko K, Reid A, Locatelli-Smith A, McMahen CS, Tao KF, Marsh J, Bright T, Richmond PC, Eikelboom RH, Brennan-Jones CG. Clinician-rated quality of video otoscopy recordings and still images for the asynchronous assessment of middle-ear disease. J Telemed Telecare. 2021 Jan 26:1357633X20987783.
- Parmar B, Phiri M, Caron C, Bright T, Mulwafu W. Development of a public audiology service in Southern Malawi: profile of patients across two years. Int J Audiol. 2021 Jan 12:1-8.
Upcoming Seminars and Events by LSHTM
You can find all our previous seminars (including the audio recordings and slides) here.
A number of previous seminars, by or with ICED, now online to highlight:
Monday 22nd February 13:00-14:00. “Co-production in Disability Research and Intervention Development”. This seminar will include examples from three disability related research projects using co-production/participatory approaches, followed by Q&A/discussion:
- Working with peer researchers to explore perceptions of Inclusive Education in Tanzania, (Dr Mary Wickenden and Dr Jackie Shaw)
- Co-production of a pictorial recovery tool for people with psycho-social disability in India (Pooja Pillai)
- Co-creation of an intervention on menstrual hygiene management for people with intellectual impairments in Nepal (Jane Wilbur)
Thursday 25th March, 12:00-13:40. “My Amazing Brain: Richard’s War”
One hour film screening of “My Amazing Brain: Richard’s War” which tells the story of Richard Gray’s recovery stroke. This will be followed by panel discussion/Q&A with Fiona Lloyd Davies (film’s Director and Richard’s wife), Suresh Kamalkannan (Occupational Therapist at Public Health Foundation of India) and Phil Edwards (Associate Professor at LSHTM).
Further details and registration links will be circulated shortly
Seminars/conferences external to ICED:
Other things of interest
Have you seen this?
COVID-19 support and guidance
The situation with COVID-19 is rapidly changing. We have gathered a list of resources about COVID-19 to share with caregivers, children & young people and education, health and social care practitioners to navigate the dynamic situation of the COVID-19 response, and the many impacts that it will have. We hope that they are helpful and we will continue to add new resources as they become available.
- Share your story and contribute to voices of people with disabilities during the COVID-19 outbreak here: voices
- LSHTM’s free online course for anyone who is interested to learn about what we know about COVID-19, and how we should respond to the outbreak: free online course
- Presentation from the International Centre for Evidence in Disability: making the response disability-inclusive
- ICED Paper on what we can learn from a disability inclusive response
- Information on how parent groups have been run post ‘lock-down’ in Rwanda can be found here and we provide guidelines on what to consider to run groups safely in the context of COVID-19 here
- A range of free digital COVID-19 educational resources for children: download Axel Scheffler’s book here and a copy of Lydia Monk’s book can be downloaded here (Information about how these resources were created is found here)