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January 2018

Dear all,

Happy New Year! I hope that you had a wonderful and relaxing break.

The time is approaching for the international conference that we are co-hosting on Evidence in Global Disability and Health together with the Public Health Foundation of India on February 26-27, 2018 in Hyderabad, India. It is looking to be an exciting event with a range of interesting speakers from the region. Still time to register to attend!

Our MOOC (online course) on Global Disability and Health will also launch soon, and will be freely available for all! We have had a range of fabulous speakers and contributors helping to put it together – so thank you all for your help.

We had a bumper crop of papers at the end of last year, among them a large systematic review on poverty and disability, the first trial aiming to reduce violence perpetrated against children with disabilities, and an assessment of barriers to uptake of services by children with disabilities in Malawi. Find out more details of these, and other publications, below.

We are looking forward to working on exciting research projects in 2018. Among these, we are continuing with our evaluation of the impact of the Disability Allowance in the Maldives, developing a new rapid survey method for hearing loss, and expanding our participatory work with people with disabilities to develop a range of effective interventions.

I am very much looking forward to our continued interaction and partnership in 2018.

Best wishes,

Hannah Kuper

International Centre for Evidence in Disability, London School of Hygiene & Tropical Medicine

We have reached more than 1500 followers on Twitter – please follow us @ICED_LSHTM.

Publications

Poverty and disability are believed to be linked through a cycle, with one reinforcing the other. Our systematic review on Poverty and disability in low- and middle-income countries published last month includes 150 studies and found strong links between disability and the different measures of poverty. This relationship persisted when results were disaggregated by gender, measure of poverty used and impairment types. Moreover, the association became stronger in countries as they moved out of poverty and became more middle-income.

Trial data are notoriously lacking for interventions for people with disabilities. That is why we are particularly pleased to have collaborated on a trial conducted in Uganda to reduce physical violence toward primary school students with disabilities. The results showed that the “Good School Toolkit” was an effective intervention to reduce violence perpetrated by peers and school staff against with disabilities.

Early detection and appropriate intervention is important for children with hearing impairment, but sadly often does not happen. We conducted a mixed methods study to explore reasons for low uptake of referrals for ear and hearing services for children in Malawi. Understanding these context specific barriers is important for designing appropriate interventions to increase uptake.

Other publications from our group that came out in December:

A population-based survey of visual impairment and its correlates in Mahabubnagar district, Telangana State, India by Islay Mactaggart and colleagues. An exploration of “What is a good result after club foot treatment? A Delphi-based consensus on success by regional clubfoot trainers from across Africa.” By Tracey Smythe and Colleagues A systematic review of “Incidence and prevalence of stroke in India” by Suresh Kumar and colleagues.

 

We are making every effort to make all our research findings widely available, and have launched a Resource Webpage where you can find our key reports and manuals.

Have you seen this?

Great to see this editorial in Lancet Child and Adolescent Health “Securing the right to health for children with disabilities”

Work Experience Programme at ICED

We have launched our work experience programme for people with disabilities seeking experience in research. Please contact us if you would like to find out more about joining our team in this capacity: disabilitycentre@lshtm.ac.uk. 

Upcoming Conferences

International Conference on Evidence in Global Disability and Health, ICED and Public Health Foundation of India, February 26-27, 2018 in Hyderabad, India. 2018 Australasian Academy of Cerebral Palsy and Developmental Medicine Conference, Auckland, New Zeeland 21-24 March, 2018.

Other Seminars of Interest:

10 January 2018, 1-7pm Digital Content and Disability, Wilkins Building, UCL. Registration and refreshments in the South Cloisters; seminar in the Gustave Tuck Lecture Theatre

Focus On: Surveys

One of the key objectives of ICED is to generate more information on disability prevalence and impacts through conducting surveys.

In 2016, ICED led a National Survey of Disability in Guatemala, in collaboration with CBM, UNICEF Guatemala and the Guatemala National Council on Disability (CONADI). This survey was the first of its kind in the region, incorporating best-practice disability measurement tools and innovative mobile impairment screens. Overall, we screened over 13,000 people and found that about 10% had a disability.

In addition, the study included a nested case-control study to compare the life situation of people with and without disabilities in Guatemala. The results showed that people with disabilities experienced difficulties in participation, access to education and work, and poor health compared to those without disabilities. Qualitative interviews were also undertaken to probe the quantitative findings in more detail.

Upcoming Seminars and Events at LSHTM

January 10, 14:00-15:00, Tavistock Place, LG4. Upgrading seminar by Goli Hashemi. “Improving access to Primary Healthcare Services for People with Disabilities in Guatemala; Developing and pilot testing an intervention.”
Read previous newsletters

2017

2016

2015

2014

2013

 

Film

Supporting Families Affected by the Zika virus

Manual

Getting to Know Cerebral Palsy

Working with parent groups – a training resource for facilitators, parents, caregivers, and persons with cerebral palsy.

This manual aims to increase knowledge and skills in caring for a child with cerebral palsy. Research highlighted the significant needs of the caregivers, and how they can gain a huge amount of support from meeting with each other in an understanding environment.

It promotes a participatory learning approach with an emphasis on working with groups and the empowerment of parents and caregivers.

 Download the manual (in various languages)

Download the manual and teaching materials for free, in English, French, Arabic or Spanish. A Chichewa (Malawi) version is also ready for sharing and the manual is being translated in a variety of other languages through the online community Working in the Community with Children with Cerebral Palsy.

We've also published A background paper on the quality of life of caregivers of children with disabilities in Bangladesh: Understanding the Lives of Caregivers of Children with Cerebral Palsy in rural Bangladesh: Use of Mixed Methods.

English 

Getting to Know Cerebral Palsy (English)

Apprendre a connaitre la Paralysie Cerebrale - modules (French)

French translations provided by Light for the World.

Getting to Know Cerebral Palsy (Arabic)

Arabic translations provided by International Committee of the Red Cross.

Getting to Know Cerebral Palsy (Spanish)

“Before, my family and people in my community used to say ‘this child’s suffering is a result of parent’s sin’. After taking the training I have explained what causes cerebral palsy to others. Now, no-one says anything like this.” 
Parent, Sirajganj, Bangladesh

Online community

Our online community supports practitioners in sharing their learning and experiences around the parent training manual. Members can share questions and perspectives, news items and resources with each other, by email or on the community website.

Global community

Children with developmental disabilities and their families

Join a global community to share ideas, access the latest research, find solutions, meet new people and collaborate on innovative and exciting projects.

Journal

Community Ear and Hearing Health Journal

This annual publication promotes good ear and hearing health in low and middle-income countries.

It's a forum for exchanging ideas, experience and information that facilitate continuing education for all levels of health worker. It is delivered to almost 4,000 healthcare providers worldwide. Some issues have been translated into French and Spanish.

Read previous issues
Press and resources

Press articles and further reading

Read articles on ICED activity in the international press and on SciDev.net. Use disability resources from across the web.

Read press articles on our work

SciDev.net columns

Further reading

Partner groups at LSHTM

Global disability groups

Further reading

  • Handicap International SOURCE Resource depository: Large depository of materials related to disability and inclusive development, curated by HI.
  • Disability and the Global South: Open Access journal on critical disability thinking and perspectives from the Global South
  • UNICEF Disability Homepage: Collated United Nations reports, documents and videos related to disability (among both adults and children)
  • World Report on Disability: Developed by the WHO and World Bank. Source is an international online resource centre run by Handicap International. It is designed to strengthen the management, use and impact of information on disability and inclusion. 
  • WHO MiNDbank: an online platform which brings together a range of country and international resources, covering mental health, substance abuse, disability, general health, human rights and development. 

Blogs and opinion pieces

Short films about disabilities