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6th International Conference on Disability and Development: Disability and COVID-19, 14th-17th March 2022

Recordings of conference are available to watch. Please feel free to view the presentations and speakers on our events page.

Newsletter

Keep up to date with out research, news and events

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September Newsletter

Dear friends,


Welcome back after the summer. We hope that you had a great break!


A key constraint in generating good evidence on disability is the dearth of researchers with disabilities, particularly from low resource settings. We are therefore delighted to welcome four students with disabilities from the Global South to start the doctoral programme at LSHTM from this month! Luthfi Azizatunnisa is from Indonesia and will be investigating disability and social protection, particularly in relation to health insurance provision. Pravarsha Prakash, from India, will focus on the inclusion of people with disabilities in Anti-Microbial Resistance activities. Desta Debalkie, from Ethiopia, will explore access to healthcare for people with disabilities. Jackie Akoth, from Uganda, will investigate the challenges that sign language users experience in accessing healthcare services. We are immensely grateful to the donors (NIHR, Indonesian Government, Younger Family) in supporting these doctoral students and we aim to expand this programme further in the coming years.
 
Another way in which we are trying to address the gap in researchers with disabilities is through our work experience programme at LSHTM. We have loved having several more placements with us over the summer. They have worked on a range of reviews, qualitative research and policy analysis. We are very pleased to announce that the programme is being extended to MRC Uganda to work within the disability research programme there.  Please contact us here if you would like to find out more about these opportunities.
 
Another issue that we face in our work is how to move evidence into practice and policy. We therefore developed and launched the Disability Evidence Portal as a repository of solutions, evidence and tools for strengthening decision-making within Disability-Inclusive Development. The Evidence Portal has made it to the Zero Project shortlist in the field of Information and Communication Technology. Results out this month!

Please read on for more news on papers and projects!

With best wishes,

Hannah and Tom


PENDA logo 300

PENDA is a major ICED project, funded by FCDO, aiming to increase evidence to support disability inclusive development. We will focus on developing people, knowledge and tools.
 
Some updates on PENDA this month…

  • The baseline is now complete for the Star Plus randomised controlled trial in Bangladesh, which investigates whether an inclusive livelihood programme is feasible and effective.
  • The endline is now complete for the randomised controlled trial in Uganda, investigating the impact of Disability-inclusive poverty graduation.
  • PENDA is supporting a work experience programme for researchers with disabilities at MRC Uganda.

Publications

Lots of papers from ICED!                                                                 


Tracey Smythe led the paper on The Role of Parenting Interventions in Optimizing School Readiness for Children With Disabilities in Low and Middle Income Settings in Frontiers in Pediatrics. This paper makes the case for optimising school readiness for children with disabilities by focusing on disability and its determinants within culturally sensitive parenting interventions, and early child development teaching programmes at schools, to better inform parents and teachers and strengthen education systems towards achieving the full intent of SDG 4.2 and global development goals for all.

Morgon Banks led a team of ICED and other researchers to produce the helpful report on Adapting Disability Research Methods and Practices During the Covid-19 Pandemic: Experiences from the Field for IDS Bulletin. She also teamed up with international authors for the report on Estimating the Extra Costs for Disability for Social Protection Programs. This report uses different approaches to estimate extra costs and makes recommendations on the findings for improvement of social protection programmes.  

Tom Shakespeare supported the ONS report on “Disabled people's experiences with activities, goods and services, UK: February to March 2022”, which reports on the findings of qualitative research with a range of people with disabilities.
 

Hannah Kuper contributed to the paper on The economic burden of congenital Zika Syndrome in Brazil: an overview at 5 years and 10 years. Published in BMJ Global Health. This paper shows that there are high costs incurred to families of children with congenital Zika Syndrome, as well as, health care providers and governments, but that when families receive social protection it buffers them from catastrophic economic impacts. The term “burden” is used as it is common in economics, and not to imply in any way that these children are a burden. 

Hannah Kuper recorded a podcast to support the paper on The National Health Policy for People with Disabilities in Brazil: An Analysis of the Content, Context and the Performance of Social Actors. in Health Policy and PlanningFormer ICED MSc Student Fahrin Andiwijaya worked with Calum Davey and Hannah Kuper to produce the article "Disability and Participation in Breast and Cervical Cancer Screening: A Systematic Review and Meta-Analysis" in IJERPH, which shows that women with disabilities were 22% less likely to have been screened for breast cancer and 37% less likely to have been screened  for cervical cancer.


Other papers this month:

Operational research: 

Hearing related studies:

Update from the Disability Evidence Portal:

The Disability Evidence Portal (DEP) includes evidence-based briefs to guide policy makers on different topics.
 

The DEP's Lambert Felix received DPH funding to attend the 14th International Conference on Osteogenesis Imperfecta (OI) at Sheffield from 30th August - 2nd September.

Both the conference sessions, and networking with multidisciplinary professionals including organisations for people with disabilities highlighted the need for further research, in particularly specific guidelines related to management of people with osteogenesis imperfecta (OI).

As a first step, an evidence brief focusing on OI in LMICs will be undertaken as part of the DEP work. The brief will aim to produce both condition-specific and generic disability inclusive recommendations.


Upcoming Seminars and Events by LSHTM


Upcoming ICED webinar:

You can find all our previous seminars (including the audio recordings and slides) here.

New seminar series to start in October. Watch this space!


Other things of interest


And finally... LSHTM is celebrating 10 years of the MSc Global Mental Health
Date & Time:     Friday 23 September 2022, 13:00 - 19:00 BST
Broad agenda:  13:00 - 14:30 for staff presentations/discussions
                          15:00 - 17:00 for MSc GMH 10-year celebration session
                          17:00 - 19:00 Reception
Venue:              John Snow Lecture Theatre, London School of Hygiene and Tropical Medicine, Keppel Street, London WC1E 7HT, United Kingdom
(Livestream details to be confirmed. Otherwise, we hope to record the celebration event and share it afterwards. Details will be shared with registrants closer to the date).

If you are able to attend, please register  on Eventbrite by Monday 19 September. If you would like to share your work (5-7 minute talk, pending number of speakers) at the staff presentations session, please let us know by completing this brief Expression of Interest Form by Friday 9 September 2022 to enable us sufficient time to confirm the speakers. 


Work Experience Programme at ICED


We are delighted to have been awarded an LSHTM Equality Diversity and Inclusion Grant to continue our work experience scheme for people with disabilities seeking experience in research. All placements have now been filled but we will re-open our programme next year for new candidates. Further information will be provided as it becomes available.


Have you seen this?


Ever wanted to know about the key suffragettes with disabilities? Read here. I particularly like the sound of Rosa May Billinghurst who used her tricycle like a battering ram to push through police lines!

Read previous newsletters

2022

2021

2020

2019

2018

2017

2016

2015

2014

2013

Work experience with ICED

Over the last few years, we have had candidates contribute to our research projects by undertaking surveys, writing systematic reviews, completing desk research and much more.

This is an opportunity for candidates to gain work experience in research within an academic setting. The programme is one month in duration (with the possibility of being extended) and is currently being run remotely.

We can only take on new applicants based on our capacity, and we will also strongly consider the following applicants:

  • People with disabilities 
  • An interest in pursuing a career in research 
  • Preference given to people from LMICs
  • People holding a Bachelor’s degree (minimum), ideally a Master’s degree. 

If you’re interested in applying, please complete the application form for consideration of the programme.

Ubuntu

COVID-19 Support and Guidance

The  situation with COVID-19 is rapidly changing. We have gathered a list of resources about COVID-19 to share with caregivers, children & young people and education, health and social care practitioners to navigate the dynamic situation of the COVID-19 response, and the many impacts that it will have. We hope that they are helpful and we will continue to add new resources as they become available. 

Working with parent groups – a training resource for facilitators and caregivers

These manuals (Getting to Know Cerebral Palsy, Juntos and ABAANA EIP) aim to increase knowledge and skills in caring for a child with developmental disabilities. Research highlighted the significant needs of the caregivers, and how they can gain a huge amount of support from meeting with each other in an understanding environment.

It promotes a participatory learning approach with an emphasis on working with groups and the empowerment of parents and caregivers.

Download the manual (in various languages)

“Before, my family and people in my community used to say ‘this child’s suffering is a result of parent’s sin’. After taking the training I have explained what causes cerebral palsy to others. Now, no-one says anything like this.” 
Parent, Sirajganj, Bangladesh

Animated videos

Animated videos on child development and developmental disability

Download and use these animated videos from ICED on child developmental and developmental disability, with versions in English, Portuguese and Spanish. The first of these videos provides information on child development across different domains and considers how this process can be disrupted for some children. The second explores the challenges and barriers in the lives of people with a developmental disability, and how support strategies can help an individual better participate in their community. 

Please use these videos in your own teaching, support groups or in any other forum, appropriately acknowledging the International Centre for Evidence in Disability at the London School of Hygiene & Tropical Medicine.

The videos are available in English, Portuguese (Brazil) and Spanish.

View the English videos below:

Wed, 03/17/2021 - 10:25
lshas13
Wed, 03/17/2021 - 10:26
lshas13

View the English videos with subtitles here:

View the Portuguese (Brazil) videos with subtitles here:

View the Spanish videos with subtitles here:

Film

Supporting Families Affected by Zika virus

Wed, 03/17/2021 - 10:27
lshas13
Global Community

Children with developmental disabilities and their families

Join a global community to share ideas, access the latest research, find solutions, meet new people and collaborate on innovative and exciting projects.

Journal

Community Ear and Hearing Health Journal

This annual publication promotes good ear and hearing health in low and middle-income countries.

It's a forum for exchanging ideas, experience and information that facilitate continuing education for all levels of health worker. It is delivered to almost 4,000 healthcare providers worldwide. Some issues have been translated into French and Spanish.

Read previous issues
Press and Resources

Press articles

Read articles on ICED activity in the international press and on SciDev.net. Use disability resources from across the web.

Read press articles on our work

SciDev.net columns

MOOC

Global Health and Disability

All files and contents in this folder are © LSHTM unless otherwise stated. You are welcome to reuse, adapt and share these files for non-commercial teaching and learning purposes without asking for permission. You must acknowledge the International Centre for Evidence in Disability, LSHTM as the original creator and provide a link to our website: www.lshtm.ac.uk/research/centres/international-centre-evidence-disability. We would also very much appreciate hearing how you are using the content, please let us know at disabilitycentre@lshtm.ac.uk.

Download full course

Full course ZIP (2GB) |ZIP (no videos) (182MB)

Download content from each week
Download individual resources

Video: Welcome to the course

Week 1: Disability and its importance to the global development agenda

Video: Welcome to week 1

Video & teaching slides: Why does disability matter globally?

Video:  Why does disability matter – Personal perspectives

Article: Why does disability matter – individual case studies

Article: Why does disability matter to International Development? Part 1

Article: Nothing about us without us

Video: What does disability mean – personal perspectives

Video: Attitudes to disability

Video: What does disability mean – a framework

Article: Measuring disability: Why would you want to and how do you do it?

Video: What is the relationship between impairments and disability?

Video: what are the common impairments related to disability?

Article: Why does impairment matter?

Video: Summary of week 1


Video: Welcome to week 2