Keep up to date with our research, news and events.
Sign up to receive our newsletter
- Read the latest newsletter
-
December 2019
Dear all,
Happy International Day of Persons with Disabilities! We are celebrating the day in a number of ways:- The sixth run of ICED’s MOOC Global Health and Disability begins this week. As a reminder, this course runs over 3 weeks, with about 3-4 learning hours per week. It is free to join, and over 9000 learners have joined the course across previous five runs. Register here and please circulate widely!
- Hannah Kuper will take part in the SciDev debate "How can developing countries unlock disabilities data and research?", together with Ola Abu Alghaib, Dan Month, Elena Schmidt, Asim Zafar and Lorraine Wappling. The debate starts at 2 p.m., December 3. Please sign up and join!
- Tom Shakespeare is running a webinar debate (to a closed audience) on how to maximise the participation of people with dementia in research. He is also taking part in events at the Department for Transport and DFID.
- Maria Zuurmond is taking part in a seminar at the Institute of Development Studies, Sussex, which aims not only to celebrate International Day of Disabled People, but also seeks to grow interest in Disability at IDS, University of Sussex, and beyond.
- For the Portuguese speakers among you, together with Fiocruz Brasilia we are launching a new free online course on Integrated Healthcare for Children with Developmental Disabilities, tomorrow in Brazil.
We have launched our new PhD programme for researchers with disabilities, with applications open for the University of Zambia and Makerere University, and the Kenya scheme due to launch soon. Look here for more information and application details and please share very widely! Please note, that this scheme is restricted to African students with disabilities, who have already completed a Masters degree, and are able to work full-time on the PhD. The deadline is fast approaching… so please help us by circulating the link and, of course, by applying for those eligible!
Jane Wilbur has been working with Wateraid on the Bishesta campaign, which is an intervention to improve menstrual hygiene management for people with intellectual disabilities. It was originally designed in Nepal. The finalised campaign materials are available now here. The web page includes the facilitator’s training agenda, guidance, powerpoints, ToRs; artwork for all campaign components and specifications for printing; the campaign manual, flash cards for facilitators, training visuals and the process monitoring forms.
Thank you to everyone who joined the conference on Evidence in Disability last month at LSHTM. For those of you who missed it, plenary presentations and abstracts are now available online.
We are also delighted to welcome Dr Robin Youngs, who has become an honorary Associate Professor at ICED. Dr Youngs is an ENT consultant, with extensive experience working in Asia as well as the UK. He will help us to build up our hearing-related work further, such as by supporting the development of survey methods to estimate the prevalence and causes of hearing loss.
This is the last newsletter of the year. I wish you a relaxing and enjoyable holiday, and hope that you are able to switch off and enjoy. And please read on for more news on our projects, events and publications!Best wishes,
Hannah Kuper
International Centre for Evidence in Disability, London School of Hygiene & Tropical Medicine
Follow us on Twitter - @ICED_LSHTM.PENDA
PENDA is a major ICED project, funded by DFID, aiming to increase evidence to support disability inclusive development. We will focus on developing people, knowledge and tools.
Some updates on PENDA this month:
- … launching our PhD scheme in Zambia and Uganda
- … finalising the plans for the impact evaluations
- … making plans to visit India and Bangladesh in January
- … collaborating with partners on ongoing fieldwork in India and Malawi within the DeWorm Study
- … planning webinar series for launch in early 2020
Publications
Islay Mactaggart and colleagues published “A Case Control Study of Musculoskeletal Impairment (MSI): association with socio-economic status, time use and quality of life in Myanmar” in BMC Public Health this month. The study showed that people with MSI had lower quality of life, were at greater risk of catastrophic health expenditure and more likely to have an income gap than people without MSI.
Tom Shakespeare was part of a team that published “Performance management: a qualitative study of relational boundaries in personal assistance.” In Sociology of Health and Illness this month. The paper explored the nature of Personal Assistance relationships, and how both parties manage interpersonal challenges, using data from 59 interviews conducted in the UK.
Tom Shakespeare also wrote the Provocation paper “Disabled Children Do Not Have Rights” for the British Academy this month, aiming to trigger thought and debate.Tess Bright was an author on the paper “Prevalence and service assessment of cataract in Tibetan areas of Sichuan Province, China: population-based study.” in BMJ Open this month. The paper showed that the prevalence of visual loss from cataract was low in this area of China, attributed to the high cataract surgical coverage, but that surgical outcomes remained a challenge.
Upcoming Seminars and Events by LSHTM
- 3 December, 2 p.m. Webinar! How can developing countries unlock disabilities data and research? With Hannah Kuper on the panel.
- 27 January, 5:15 p.m. Tom Shakespeare. Ethics. John Snow Lecture Theatre, LSHTM.
- 26 February, 5:30 p.m. – Inaugural lecture of Hannah Kuper. John Snow Lecture Theatre, LSHTM.
And external to LSHTM
- 5 December, 5-7p.m., Institute of Development Studies, Sussex. A seminar to celebrate International Day of Disabled People and growing interest in Disability at IDS, University of Sussex, and beyond.
- 6 December, 15:00-16:00 (Central European Time). Webinar by Humanity & Inclusion “Making the case for Rehabilitation in Universal Health Coverage”. Please register by 4th December via this link: https://forms.gle/tqSFsfudbWp39tur9
- 29 January. The Hague, Netherlands. Conference - Pushing boundaries in advocacy for inclusion. Hosted by the Liliane Foundation, the Dutch Coalition on Disability and Development, and the African Studies Center Leiden.
- 12 - 13 February. CaNDER event - “Pathways to inclusive and equitable quality education for people with disabilities. Cross-context conversations and mutual learning". University of Gotteburg, Sweden.
- 9 - 20 March. Epidemiology & Statistics for Mental Health Research. IoPPN, King’s College London
You can find all our previous seminars (including the audio recordings and slides) here.
- Read previous newsletters
-
2019
- January 2019
- February 2019
- March 2019
- April 2019
- May 2019
- June 2019
- July 2019
- August 2019
- September 2019
- October 2019
- November 2019
2018
- January 2018
- February 2018
- March 2018
- April 2018
- May 2018
- June 2018
- July 2018 (No newsletter for this month)
- August 2018
- September 2018
- October 2018
- November 2018 (No newsletter for this month)
- December 2018
2017
- January 2017
- February 2017
- March 2017
- April 2017
- May 2017
- June 2017
- July 2017
- August 2017
- September 2017
- October 2017
- November 2017
- December 2017
2016
- December 2016
- November 2016
- October 2016
- September 2016
- August 2016
- July 2016
- June 2016
- May 2016
- April 2016
- March 2016
- February 2016
- January 2016
2015
- December 2015
- November 2015
- October 2015
- September 2015
- August 2015
- July 2015
- June 2015
- May 2015
- April 2015
- March 2015
- February 2015
- January 2015
2014
2013
Supporting Families Affected by the Zika virus
Getting to Know Cerebral Palsy
Working with parent groups – a training resource for facilitators, parents, caregivers, and persons with cerebral palsy.
This manual aims to increase knowledge and skills in caring for a child with cerebral palsy. Research highlighted the significant needs of the caregivers, and how they can gain a huge amount of support from meeting with each other in an understanding environment.
It promotes a participatory learning approach with an emphasis on working with groups and the empowerment of parents and caregivers.
- Download the manual (in various languages)
-
Download the manual and teaching materials for free, in English, French, Arabic or Spanish. A Chichewa (Malawi) version is also ready for sharing and the manual is being translated in a variety of other languages through the online community Working in the Community with Children with Cerebral Palsy.
We've also published A background paper on the quality of life of caregivers of children with disabilities in Bangladesh: Understanding the Lives of Caregivers of Children with Cerebral Palsy in rural Bangladesh: Use of Mixed Methods.
English
Getting to Know Cerebral Palsy (English)
- Cover & Module 0: Before You Begin!
- Module 1: Introduction
- Module 2: Evaluating Your Child
- Module 3: Positioning and Carrying
- Module 4: Communication
- Module 5: Everyday Activities
- Module 6: Feeding Your Child
- Module 7: Play
- Module 8: Disability in Your Local Community
- Module 9: Running Your Own Parent Support Group
- Module 10: Assistive Devices and Resources
Apprendre a connaitre la Paralysie Cerebrale - modules (French)
- Apprendre a connaitre la paralysie cerenrale
- Module 0: Avant de Commencer
- Module 1: Introduction
- Module 2: Evalyer votre enfant
- Module 3: Positionnement et porter
- Module 4: Communication
- Module 5: Activités journalières
- Module 6: Nourrir votre enfant
- Module 7: Jouer
- Module 8: Le handicap dans votre communauté
- Module 9: Diriger votre propre groupe des parents
- Module 10: Dispositifs d’assistance et ressources
French translations provided by Light for the World.
Getting to Know Cerebral Palsy (Arabic)
- Module 0: Before You Begin! (Arabic)
- Module 1: Introduction (Arabic)
- Module 2: Evaluating Your Child (Arabic)
- Module 3: Positioning and Carrying (Arabic)
- Module 4: Communication (Arabic)
- Module 5: Everyday Activities (Arabic)
- Module 6: Feeding Your Child (Arabic)
- Module 7: Play (Arabic)
- Module 8: Disability in Your Local Community (Arabic)
- Module 9: Running Your Own Parent Support Group (Arabic)
- Module 10: Assistive Devices and Resources (Arabic)
Arabic translations provided by International Committee of the Red Cross.
Getting to Know Cerebral Palsy (Spanish)
“Before, my family and people in my community used to say ‘this child’s suffering is a result of parent’s sin’. After taking the training I have explained what causes cerebral palsy to others. Now, no-one says anything like this.”
Parent, Sirajganj, BangladeshOnline community
Our online community supports practitioners in sharing their learning and experiences around the parent training manual. Members can share questions and perspectives, news items and resources with each other, by email or on the community website.
Children with developmental disabilities and their families
Join a global community to share ideas, access the latest research, find solutions, meet new people and collaborate on innovative and exciting projects.
Community Ear and Hearing Health Journal
This annual publication promotes good ear and hearing health in low and middle-income countries.
It's a forum for exchanging ideas, experience and information that facilitate continuing education for all levels of health worker. It is delivered to almost 4,000 healthcare providers worldwide. Some issues have been translated into French and Spanish.
- Read previous issues
-
- Issue No. 19 (2018) Hearing aid systems in low-resource settings
- Issue No. 18 (2017) Focus: Ear and Hearing Health in Schools
- Issue No. 17 (2016) Common ear conditions underdiagnosed at primary level
- Issue No. 16 (2015) Testing small children’s hearing with little or no equipment
- Issue No. 15 (2014) Early detection of hearing loss in newborn and preschool children
- Issue No. 14 (2014) Living with hearing impairment
- Issue No. 13 (2013) Increasing community awareness of ear and hearing health
- Issue No. 12 (2012) Addressing ear and hearing problems at primary level
- Issue No. 11 (2011) Projects in the Philippines
- Issue No.10 (2010) Less noisy cities
- Issue No. 9 (2009) Noise: an ubiquitous pollutant
- Issue No.8 (2008) Tinnitus: a common and manageable complaint
- Issue No.7 (2008) Screening for hearing impairment
- Issue No.6 (2007) Chronic suppurative otitis media: a disease still waiting for solutions
- Issue No.5 (2007) Rehabilitation of the deaf and hard of hearing
- Issue No.4 (2006) Deafness caused by ototoxicity in developing countries
- Issue No.3 (2006) Congenital infections and hearing impairment
- Issue No.2 (2005) Current practice for ear syringing
- Version française No. 2 (2016) Sensibiliser la communauté à la santé de l’oreille et de l’audition
- Issue No.1 (2004) Congenital deafness in developing countries
- Version française No. 1 (2015) Lutter contre les affections de l’oreill et de l’audition au niveau primaire
- Version en Español No. 1 (2016) Abordando los problemas de oído
Press articles and further reading
Read articles on ICED activity in the international press and on SciDev.net. Use disability resources from across the web.
- Read press articles on our work
-
- Disability in the Global South Journal focusing on Disability and the SDGs, edited by Hannah Kuper and Shaun Grech. July 2017
- National Survey of Disability in Guatemala 2016 – Case Study, International Institute for Sustainable Development, June 2017
- Hannah Kuper discusses the exclusion of children with disabilities from education around the world – Al Jazeera News Hour (live), 18 August 2015
- Many disabled children in poorer countries left out of primary education – The Guardian, 18 August, 2015
SciDev.net columns
- February 2016: ‘Zika babies’ need support now
- January 2016: Kids at risk from El Niño
- December 2015: Monitor birth defects to save lives
- November 2015: Rethink healthcare for the ageing world
- October 2015: Defend girls’ sexual health rights
- September 2015: Reshape mental healthcare in crises
- August 2015: Give SDG monitoring some bite
- July 2015: Community care cuts NTD burden
- June 2015: Better data on disaster victims
- May 2015: A better way to find disabled kids
- April 2015: The next hurdle for Ebola survivors
- March 2015: Universal Health Coverage: Bearing the Brunt of Violence
- February 2015: Reaching Patients with Smartphones
- January 2015: Universal Health Care can happen
- December 2014: HIV and Disability November 2014: Ageing and Disability
- Further reading
-
Partner groups at LSHTM
- International Centre for Eye Health
- The Centre for Global Mental Health
- Cochrane Eyes and Vision Group
- Cochrane Injuries Group
- Maternal, Reproductive and Child Health (MARCH)
Global disability groups
- Action on Hearing Loss
- CBM
- Global Partnership for Children with Disabilities
- Handicap International
- HelpAge
- International Disability and Development Consortium
- Sense
- MAITS
Further reading
- Handicap International SOURCE Resource depository: Large depository of materials related to disability and inclusive development, curated by HI.
- Disability and the Global South: Open Access journal on critical disability thinking and perspectives from the Global South
- UNICEF Disability Homepage: Collated United Nations reports, documents and videos related to disability (among both adults and children)
- World Report on Disability: Developed by the WHO and World Bank. Source is an international online resource centre run by Handicap International. It is designed to strengthen the management, use and impact of information on disability and inclusion.
- WHO MiNDbank: an online platform which brings together a range of country and international resources, covering mental health, substance abuse, disability, general health, human rights and development.
Blogs and opinion pieces
- BBC Ouch! (Disability) Blog
- Disabled Lives – Short biographies of famous disabled people by Tom Shakespeare.
- SciDev.net Analysis Blog – Various pieces on disability from the ICED team
Short films about disabilities
- What’s disability to me? – series of videos by WHO
- End the cycle of disability and poverty – series of videos
Global Health and Disability
All files and contents in this folder are © LSHTM unless otherwise stated. You are welcome to reuse, adapt and share these files for non-commercial teaching and learning purposes without asking for permission. You must acknowledge the International Centre for Evidence in Disability, LSHTM as the original creator and provide a link to our website https://iced.lshtm.ac.uk. We would also very much appreciate hearing how you are using the content, please let us know at iced@lshtm.ac.uk.
- Download the full course
- Download content from each week
-
Week 1: Disability and its importance to the global development agenda
ZIP (522MB)|ZIP (no videos) (9MB)
Week 2: Health, wellbeing and disability
ZIP (807MB)|ZIP (no videos) (19MB)
Week 3: Access to health care and rehabilitation services
- Download individual resources
-
Video: Welcome to the course
Week 1: Disability and its importance to the global development agenda
Video: Welcome to week 1
Video & teaching slides: Why does disability matter globally?
Video: Why does disability matter – Personal perspectives
Article: Why does disability matter – individual case studies
Article: Why does disability matter to International Development? Part 1
Article: Nothing about us without us
Video: What does disability mean – personal perspectives
Video: Attitudes to disability
Video: What does disability mean – a framework
Article: Measuring disability: Why would you want to and how do you do it?
Video: What is the relationship between impairments and disability?
Video: what are the common impairments related to disability?
Article: Why does impairment matter?
Video: Summary of week 1
Week 2: Health, wellbeing and disability
Video: Welcome to week 2