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Newsletter

Keep up to date with our research, news and events

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April Newsletter

Dear friends,

This month, Tom’s comic novel “The Ha-Ha” has been released. It is described as “a feel-good comedy of friends reunited”. Importantly, it features a lead character who is neither a hero nor a tragic figure, but just an ordinary man with disabilities. The novel has been publicised with a feature in The Guardian, as well a “This is My Time Capsule” podcast. Congratulations Tom!
 
In other achievements, our PhD Student, Benafsha Yaqoobi has been awarded the 2024 International Women of Courage Award from the US Department of State, in recognition of her global leadership on disability rights. An amazing accomplishment! Congratulations also to Veronika Reichenberger, who submitted her PhD this month. In her thesis, she used video approaches to understand access to healthcare for people with disabilities in Brazil, including reflecting on Healthcare Provider Attitude, Financial barriers and transportation, Rehabilitation, and making a Participatory Video filmed and produced by people with disabilities.
 
At ICED we are committed to help move research into practice. Last week, I was delighted to take part in the inauguration of the Steering Committee for the Disability Inclusive Health Initiative in Nigeria, led by the Minister of Health Dr Pate. The Committee is highlighting the barriers faced by people with disabilities when accessing healthcare in Nigeria, and seeking to implement solutions. Also last month, LSHTM has started a new study, led by Katie Greenland and funded by the Down Syndrome Research Foundation. The study will investigate unmet menstrual-health requirements and identify opportunities for interventions that will improve the menstrual health of adolescents with Down Syndrome in the UK.

Read on for more ICED news!

With best wishes,

Hannah and Tom

PENDA logo 300

PENDA is a major ICED project, funded by FCDO, aiming to increase evidence to support disability inclusive development. We will focus on developing people, knowledge and tools. We now have 11 evaluations up and running, across the PENDA programme, working with a wide range of partners. Find out more information from our website.

Last month, we started data collection for the baseline of the impact evaluation of the Baby Ubuntu in Rwanda – a programme of early assessment, care and support for children at risk of developmental disabilities. The research is conducted in collaboration with Lifetime and Partners in Health. A team of 17 data collectors are working to sample 1,400 children across three districts, Burera, Kamonyi, Gakenke.
 
We held a webinar to disseminate the findings from the process evaluation of the Hygiene and Behaviour Change Consortium – established to assess the inclusion of people with disabilities and older people in the COVID-19 response. Catch the short film summarising the findings here.

Finally, Mark Carew leads the process evaluation work across the PENDA portfolio. He has now been appointed as Co-Theme Lead for Process Evaluation for the LSHTM Centre for Evaluation. It is an exciting opportunity to mainstream disability further within LSHTM research!

 

Publications

Papers this month from ICED!

Upcoming Seminars and Events by LSHTM

ICED webinars:

ICED co-hosting with the MARCH centre: Creating opportunities for inclusive and integrated play for children with developmental disabilities

Date: Wednesday 10 April 2024

Time: 13:00 - 14:00

Platform: Zoom

About the webinar: In this webinar, the speakers will be exploring the importance of play for children with disabilities and exploring how to create opportunities for integrated and inclusive play.
 

Poverty and Disability: What can the evidence tell us on how these conditions are related?

Date: Wednesday 24th April

Time: 13:00 - 14:00

Room: G08 Keppel Street

About the webinar: During this seminar, the speaker will discuss the evidence of disability and multidimensional poverty around the globe. The results use data from more than 40 countries around the globe to analyse if households with a member with disability present higher levels of multidimensional poverty than households without members with disabilities. ​

Speaker: Mónica Pinilla-Roncancio, Universidad de los Andes in Bogota.

Stellenbosch webinar series
We would also like to highlight the new Stellenbosch webinar series (November 2023 - April 2024), which includes a range of ICED members. The zoom link is here (Meeting ID: 967 1581 4855 and Password: 669746), for all the webinars.

All webinars are from 13:00 – 13:45 South Africa Standard Time (usually 11:00-11:45 UK time) on the 3rd Thursday of the month.
Click here to view the previous webinar.
 

18th April 2024: Dr Michelle Botha will be speaking about crafting conference worthy academic abstracts. Zoom link

Other things of interest

Work Experience Programme at ICED

We are currently not taking on new candidates, however you are welcome to complete an online application to register interest in the programme. Please complete the application form. 

Have you seen this?

“Assume that I Can” video – launched for Global World Down Syndrome Day 2024 (1.30 minutes).

 
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Work experience with ICED

Over the last few years, we have had candidates contribute to our research projects by undertaking surveys, writing systematic reviews, completing desk research and much more.

We are currently not taking on new candidates however, you are welcome to complete the application below for potential future openings.

The programme is for candidates to gain work experience in research within an academic setting. We will strongly consider the following applicants:

  • People with disabilities
  • An interest in pursuing a career in research
  • Preference given to people from LMICs
  • People holding a Bachelor’s degree (minimum), ideally a Master’s degree.

Please complete the application form for consideration.

Film

Disability-Inclusive Education and Employment

This film presents findings from a research project on Disability-Inclusion in Education and Employment in seven countries in Africa (Ethiopia, Ghana, Kenya, Nigeria, Rwanda, Senegal and Uganda). The film was created with young people with disabilities from Uganda and Ghana who participated in the study.  

The research was conducted in partnership with ICED, Mastercard Foundation, the University of Abuja, the University of Ghana, Lifetime Consulting Ltd, Addis Ababa University, University of Nairobi, Global Advocacy and Research Group and MRC/UVRI & LSHTM Uganda Research Group. It was funded by Mastercard Foundation. 

Phase 1 study reports, on the policy landscape, are available here. Phase 2 reports, based on interviews with young people with disabilities in each country, will follow. A film, about the research findings, created with young people with disabilities who participated in the study can be seen here.

Ubuntu

COVID-19 Support and Guidance

The  situation with COVID-19 is rapidly changing. We have gathered a list of resources about COVID-19 to share with caregivers, children & young people and education, health and social care practitioners to navigate the dynamic situation of the COVID-19 response, and the many impacts that it will have. We hope that they are helpful and we will continue to add new resources as they become available. 

Working with parent groups – a training resource for facilitators and caregivers

These manuals (Getting to Know Cerebral Palsy, Juntos and ABAANA EIP) aim to increase knowledge and skills in caring for a child with developmental disabilities. Research highlighted the significant needs of the caregivers, and how they can gain a huge amount of support from meeting with each other in an understanding environment.

It promotes a participatory learning approach with an emphasis on working with groups and the empowerment of parents and caregivers.

Download the manual (in various languages)

“Before, my family and people in my community used to say ‘this child’s suffering is a result of parent’s sin’. After taking the training I have explained what causes cerebral palsy to others. Now, no-one says anything like this.” 
Parent, Sirajganj, Bangladesh

Animated videos

Animated videos on child development and developmental disability

Download and use these animated videos from ICED on child developmental and developmental disability, with versions in English, Portuguese and Spanish. The first of these videos provides information on child development across different domains and considers how this process can be disrupted for some children. The second explores the challenges and barriers in the lives of people with a developmental disability, and how support strategies can help an individual better participate in their community. 

Please use these videos in your own teaching, support groups or in any other forum, appropriately acknowledging the International Centre for Evidence in Disability at the London School of Hygiene & Tropical Medicine.

The videos are available in English, Portuguese (Brazil) and Spanish.

View the English videos below:

lshas13
lshas13

View the English videos with subtitles here:

View the Portuguese (Brazil) videos with subtitles here:

View the Spanish videos with subtitles here:

Film

Supporting Families Affected by Zika virus

lshas13
Global Community

Children with developmental disabilities and their families

Join a global community to share ideas, access the latest research, find solutions, meet new people and collaborate on innovative and exciting projects.

Journal

Community Ear and Hearing Health Journal

This annual publication promotes good ear and hearing health in low and middle-income countries.

It's a forum for exchanging ideas, experience and information that facilitate continuing education for all levels of health worker. It is delivered to almost 4,000 healthcare providers worldwide. Some issues have been translated into French and Spanish.

Read previous issues
Press and Resources

Press articles

Read articles on ICED activity in the international press and on SciDev.net. Use disability resources from across the web.

Read press articles on our work

SciDev.net columns

MOOC

Global Health and Disability

All files and contents in this folder are © LSHTM unless otherwise stated. You are welcome to reuse, adapt and share these files for non-commercial teaching and learning purposes without asking for permission. You must acknowledge the International Centre for Evidence in Disability, LSHTM as the original creator and provide a link to our website: www.lshtm.ac.uk/research/centres/international-centre-evidence-disability. We would also very much appreciate hearing how you are using the content, please let us know at disabilitycentre@lshtm.ac.uk.

Download full course

Full course ZIP (2GB) |ZIP (no videos) (182MB)

Download content from each week
Download individual resources

Video: Welcome to the course

Week 1: Disability and its importance to the global development agenda

Video: Welcome to week 1

Video & teaching slides: Why does disability matter globally?

Video:  Why does disability matter – Personal perspectives

Article: Why does disability matter – individual case studies

Article: Why does disability matter to International Development? Part 1

Article: Nothing about us without us

Video: What does disability mean – personal perspectives

Video: Attitudes to disability

Video: What does disability mean – a framework

Article: Measuring disability: Why would you want to and how do you do it?

Video: What is the relationship between impairments and disability?

Video: what are the common impairments related to disability?

Article: Why does impairment matter?

Video: Summary of week 1

Video: Welcome to week 2