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January 2020

Dear all,

Happy New Year! 2020 sounds extremely futuristic, but it has crept up on us, and I hope that it is a great year for all.
 
We are super-excited to pre-announce the launch of a series of calls for PENDA applications to deliver impact evaluations on disability inclusive development programmes. A total of four calls will be released over the next four years, with the first anticipated to launch this month. PENDA will accept applications from consortiums, preferably led by research institutions from low- or middle-income countries, to deliver Impact Evaluations, of disability inclusive development programmes. These will each have a different geographic and thematic focus, concentrating on DFID priorities areas of education, health, livelihood and stigma. Please register interest with the PENDA team here to receive updates and information when the call launches, and to find out about future opportunities.
 
We have a very busy month with seminars coming up. Please join us, whether to catch a film and panel discussion on January 14, for Tom Shakespeare’s Global Health lecture on Ethics, Health and International Development on January 27 or to hear Veronika Reichenberger discuss the use of participatory video on February 6 (see below for more information). It is my professorial inaugural lecture on February 26, entitled “Diversity is the Spice of Life; Adventures in Disability and Global Health”. Please come and join us.
 
New year, new projects. We are excited to be starting two new studies this month.  Over the coming 18 months, ICED will be working with CBM to develop mental health and psychosocial support guidelines for children with hearing loss in low- and middle-income countries, with development and evaluation of appropriate interventions being piloted in Gaza. In the second project, Jane Wilbur and Nat Scherer are working alongside WaterAid and the Australian Government’s Department of Foreign Affairs and Trade to evaluate disability inclusive WASH policies in Bangladesh and Cambodia. This data will be used to create policy and practice guidelines for governments wishing to mainstream disability inclusive WASH at scale.
 
And seeking help! We are preparing a presentation on HIV and disability and why HIV programmes must be disability-inclusive and incorporate rehabilitation for people with HIV-related impairments. Please help us by sharing your useful links, thoughts, documents, ramblings! All suggestions are much appreciated.

Best wishes,
 
Hannah Kuper

International Centre for Evidence in Disability, London School of Hygiene & Tropical Medicine

Follow us on Twitter - @ICED_LSHTM.

PENDA

PENDA is a major ICED project, funded by DFID, aiming to increase evidence to support disability inclusive development. We will focus on developing people, knowledge and tools.
 

Some updates on PENDA this month:

  • … visiting India and Bangladesh, where Tom Shakespeare is conducting training of researchers on disability, and we are furthering our plans for impact evaluation
  • … preparing to launch our first commissioning project (see above for details)
  • … interviewing people with disabilities in Uganda to join our PhD programme, and eagerly awaiting the applications from candidates in Zambia.
  • … planning webinar series for launch in early 2020.

Publications

Four publications from ICED this month….

Tom Shakespeare wrote a commentary entitled “Participation as human right and health benefit for young people with physical disabilities” in Dev Med Child Neurology. His commentary relates to a study showing that participation in community activities improved body functions for young people with physical disabilities, and he reflects on the value of the study, the importance of co-production, and which outcomes matter most.

Tracey Smythe and Hannah Kuper collaborated on the paper “The need to act together in every way possible: inter-sector action in health and education for children living with the congenital Zika syndrome”, published in Cad Saude Publica.

Tom also collaborated on the article “Performance management: a qualitative study of relational boundaries in personal assistance”, published in Sociology of Health and Illness. This paper tries to gain a deeper understanding of PA relationships, and to explore how both parties manage interpersonal challenges.

Islay Mactaggart and colleagues considered “Effective refractive error coverage: an eye health indicator to measure progress towards universal health coverage.”, published in Ophthalmic Physiol Opt.

The ICED team at ubuntu-hub developed a participatory caregiver programmes to promote wellbeing of children with developmental disabilities and their families. We have launched a new module 'Togetherness and Belonging', developed together with families of children with disabilities, health and community workers, disabled persons organisations, researchers and educationalists - it has been a great team effort!
 
Former ICED member Valentina Iemmi (now at LSE), published the paper “Sustainable development for global mental health: a typology and systematic evidence mapping of external actors in low-income and middle-income countries ” in BMJ Global Health and is now well on her way with her PhD. Congratulations Valentina!

Upcoming Seminars and Events by LSHTM

  • January 14, 12:45-14:00 p.m. The Power of Film in Research. Panel, including Hannah Kuper. John Snow, LSHTM.
  • January 14, 12:45-14:00 p.m. Jonathan Campion. Public Mental Health: A Public Health Opportunity. LSHTM, Tavistock building, Jerry Morris room.
  • January 27, 5:15 p.m. Tom Shakespeare. Ethics, Health and International Development.  John Snow Lecture Theatre, LSHTM.
  • February 6, 13:00-14:00. Veronika Reichenberger. The use of participatory video to understand the impact of the Juntos Project on caregivers of children with Congenital Zika Syndrome in Colombia. Venue to be determined.
  • February 26, 5:30 p.m. – Inaugural lecture of Hannah Kuper. “Diversity is the Spice of Life; Adventures in Disability and Global Health.” John Snow Lecture Theatre, LSHTM.

And external to LSHTM

You can find all our previous seminars (including the audio recordings and slides) here.

Read previous newsletters

2019

2018

2017

2016

2015

2014

2013

Film

Supporting Families Affected by the Zika virus

Manual

Getting to Know Cerebral Palsy

Working with parent groups – a training resource for facilitators, parents, caregivers, and persons with cerebral palsy.

This manual aims to increase knowledge and skills in caring for a child with cerebral palsy. Research highlighted the significant needs of the caregivers, and how they can gain a huge amount of support from meeting with each other in an understanding environment.

It promotes a participatory learning approach with an emphasis on working with groups and the empowerment of parents and caregivers.

 Download the manual (in various languages)

“Before, my family and people in my community used to say ‘this child’s suffering is a result of parent’s sin’. After taking the training I have explained what causes cerebral palsy to others. Now, no-one says anything like this.” 
Parent, Sirajganj, Bangladesh

Global community

Children with developmental disabilities and their families

Join a global community to share ideas, access the latest research, find solutions, meet new people and collaborate on innovative and exciting projects.

Journal

Community Ear and Hearing Health Journal

This annual publication promotes good ear and hearing health in low and middle-income countries.

It's a forum for exchanging ideas, experience and information that facilitate continuing education for all levels of health worker. It is delivered to almost 4,000 healthcare providers worldwide. Some issues have been translated into French and Spanish.

Read previous issues
Press and resources

Press articles and further reading

Read articles on ICED activity in the international press and on SciDev.net. Use disability resources from across the web.

Read press articles on our work

SciDev.net columns

Further reading

Partner groups at LSHTM

Global disability groups

Further reading

  • Handicap International SOURCE Resource depository: Large depository of materials related to disability and inclusive development, curated by HI.
  • Disability and the Global South: Open Access journal on critical disability thinking and perspectives from the Global South
  • UNICEF Disability Homepage: Collated United Nations reports, documents and videos related to disability (among both adults and children)
  • World Report on Disability: Developed by the WHO and World Bank. Source is an international online resource centre run by Handicap International. It is designed to strengthen the management, use and impact of information on disability and inclusion. 
  • WHO MiNDbank: an online platform which brings together a range of country and international resources, covering mental health, substance abuse, disability, general health, human rights and development. 

Blogs and opinion pieces

Short films about disabilities

MOOC

Global Health and Disability

All files and contents in this folder are © LSHTM unless otherwise stated. You are welcome to reuse, adapt and share these files for non-commercial teaching and learning purposes without asking for permission. You must acknowledge the International Centre for Evidence in Disability, LSHTM as the original creator and provide a link to our website https://iced.lshtm.ac.uk. We would also very much appreciate hearing how you are using the content, please let us know at iced@lshtm.ac.uk.

Download the full course
Download content from each week

 

Week 1: Disability and its importance to the global development agenda

ZIP (522MB)|ZIP (no videos) (9MB)

Week 2: Health, wellbeing and disability

ZIP (807MB)|ZIP (no videos) (19MB)

Week 3: Access to health care and rehabilitation services

ZIP (904MB)|ZIP (no videos) (154MB)

Download individual resources

Video: Welcome to the course

Week 1: Disability and its importance to the global development agenda

Video: Welcome to week 1

Video & teaching slides: Why does disability matter globally?

Video:  Why does disability matter – Personal perspectives

Article: Why does disability matter – individual case studies

Article: Why does disability matter to International Development? Part 1

Article: Nothing about us without us

Video: What does disability mean – personal perspectives

Video: Attitudes to disability

Video: What does disability mean – a framework

Article: Measuring disability: Why would you want to and how do you do it?

Video: What is the relationship between impairments and disability?

Video: what are the common impairments related to disability?

Article: Why does impairment matter?

Video: Summary of week 1

Week 2: Health, wellbeing and disability

Video: Welcome to week 2