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June 2020

Dear all,

I hope that you are staying well, despite the difficult times. We were horrified by the death of George Floyd. At ICED, we are against all forms of racial prejudice, and stand together with all those fighting racial injustice to affirm that all Black Lives Matter.
 
Tom Shakespeare has started a multi-country study to investigate the impacts of the COVID-19 epidemic in the lives of people with disabilities. We are working in partnership with colleagues in Ghana, Uganda, Zambia, Bangladesh, India and Turkey. Qualitative, and also quantitative, data will be collected.
 
We are also hosting a webinar on the inclusion of people with disabilities in the COVID-19 response on 25th June at 15.00 GMT, with presentations by Tom Shakespeare, Jane Wilbur, Morgon Banks and myself. We will discuss a variety of issues, but focus in particular on hygiene and behavior change, health and social protection. Further details on how to join can be found here.
 
We are delighted that attention is given to the inclusion of people with disabilities in the COVID-19 response by international actors, such as the Secretary General of the UNWHO  and the ILO. The World Bank has also released a blog, authored with Phyllis Heydt and myself, to highlight the importance of including people with disabilities in the healthcare response to COVID-19.
 
We have extended applications for our third African Penda PhD, which will be for a researcher with disabilities to study with the University of Nairobi to investigate disability and COVID-19. The application closes 21 June 2020 23.59 GMT. They will join the PhD candidates from Zambia and Uganda, who are also focusing on COVID and disability. I would be grateful if you could share the link.

Best wishes,
 
Hannah Kuper

International Centre for Evidence in Disability, London School of Hygiene & Tropical Medicine

Follow us on Twitter - @ICED_LSHTM.


PENDA logo 500

PENDA is a major ICED project, funded by DFID, aiming to increase evidence to support disability inclusive development. We will focus on developing people, knowledge and tools.

Some updates on PENDA this month:

People

Knowledge

  • A PENDA webinar for DFID discussed how to make the COVID-19 response disability-inclusive (webinar here) and commentary to Wellcome Open to learn from the UK experience (paper here).

Tools

  • The Disability Evidence Portal is live, and Tom Shakespeare wrote a blog about it.
  • Campbell reviews are underway to assess what works to promote education, livelihood, social inclusion and empowerment for people with disabilities.

Publications

Antony Duttine and colleagues published “Congenital Zika Syndrome – Assessing the Need or a Family Support Programme in Brazil”  in IJERPH this month. This paper lays the groundwork for the development of the Juntos programme  – a community-based family-support programme for children with developmental disabilities.
 
Mark Spreckley and colleagues reported on the “Impact of Hearing Aids on Poverty, Quality of Life and Mental Health in Guatemala” in IJERPH. This impact evaluation is one of the first to document the gains after uptake of hearing aids.
 
Also this month, Tess Bright and Hannah Kuper worked with colleagues in China to report on the “Etiology of Childhood Bilateral Sensorineural Hearing Loss in Shandong Province”  in Am J Audiology. Tracey Smythe and colleagues investigated “Remote monitoring of clubfoot treatment with digital photographs in low resource settings: Is it accurate”  in PloS One.


Upcoming Seminars and Events by LSHTM

We are also hosting a webinar on the inclusion of people with disabilities in the COVID-19 response on 25th June at 15.00GMT. We will discuss a variety of issues, but focus in particular on hygiene and behavior change, health and social protection. Further details on how to join can be found here.

We are pausing seminars, during the COVID-19 pandemic. In the meantime, you can find all our previous seminars (including the audio recordings and slides) here just click on 'Past Events' .
 
Conferences external to LSHTM:

  • November 12-13, Social Policy and Disability Symposium, Fordham University, New York, USA. Call for papers is open until May 1. Email here.
  • November 28-29: ADIRA is calling for abstracts to its meeting to advance disability research in Cape Town for meeting agenda please click here for abstract guidelines here. Please send abstract to Nomfundo.Mthethwa@mrc.ac.za
  • November 30-December 3, 6th AfriNEAD conference, Cape Town, South Africa.  
  • Late 2020, 3rd CBR Congress, Entebbe, Uganda.

You can find all our previous seminars (including the audio recordings and slides) here.


Other things of interest

    Read previous newsletters

    2020

    2019

    2018

    2017

    2016

    2015

    2014

    2013

    Blogs

    Taking disability evidence to the policy makers who need it

    Tom Shakespeare wrote a blog about the Disability Evidence portal for the Centre of Excellence for Development Impact and Learning (CEDIL). In the blog, he discusses the need for sharing experiences, data and resources in the disability and development community. Click here to read the blog.

    Film

    Supporting Families Affected by the Zika virus

    Manual

    Getting to Know Cerebral Palsy

    Working with parent groups – a training resource for facilitators, parents, caregivers, and persons with cerebral palsy.

    This manual aims to increase knowledge and skills in caring for a child with cerebral palsy. Research highlighted the significant needs of the caregivers, and how they can gain a huge amount of support from meeting with each other in an understanding environment.

    It promotes a participatory learning approach with an emphasis on working with groups and the empowerment of parents and caregivers.

     Download the manual (in various languages)

    “Before, my family and people in my community used to say ‘this child’s suffering is a result of parent’s sin’. After taking the training I have explained what causes cerebral palsy to others. Now, no-one says anything like this.” 
    Parent, Sirajganj, Bangladesh

    Global community

    Children with developmental disabilities and their families

    Join a global community to share ideas, access the latest research, find solutions, meet new people and collaborate on innovative and exciting projects.

    Journal

    Community Ear and Hearing Health Journal

    This annual publication promotes good ear and hearing health in low and middle-income countries.

    It's a forum for exchanging ideas, experience and information that facilitate continuing education for all levels of health worker. It is delivered to almost 4,000 healthcare providers worldwide. Some issues have been translated into French and Spanish.

    Read previous issues
    Press and resources

    Press articles and further reading

    Read articles on ICED activity in the international press and on SciDev.net. Use disability resources from across the web.

    Read press articles on our work

    SciDev.net columns

    Further reading

    Partner groups at LSHTM

    Global disability groups

    Further reading

    • Handicap International SOURCE Resource depository: Large depository of materials related to disability and inclusive development, curated by HI.
    • Disability and the Global South: Open Access journal on critical disability thinking and perspectives from the Global South
    • UNICEF Disability Homepage: Collated United Nations reports, documents and videos related to disability (among both adults and children)
    • World Report on Disability: Developed by the WHO and World Bank. Source is an international online resource centre run by Handicap International. It is designed to strengthen the management, use and impact of information on disability and inclusion. 
    • WHO MiNDbank: an online platform which brings together a range of country and international resources, covering mental health, substance abuse, disability, general health, human rights and development. 

    Blogs and opinion pieces

    Short films about disabilities

    MOOC

    Global Health and Disability

    All files and contents in this folder are © LSHTM unless otherwise stated. You are welcome to reuse, adapt and share these files for non-commercial teaching and learning purposes without asking for permission. You must acknowledge the International Centre for Evidence in Disability, LSHTM as the original creator and provide a link to our website https://iced.lshtm.ac.uk. We would also very much appreciate hearing how you are using the content, please let us know at iced@lshtm.ac.uk.

    Download the full course
    Download content from each week

     

    Week 1: Disability and its importance to the global development agenda

    ZIP (522MB)|ZIP (no videos) (9MB)

    Week 2: Health, wellbeing and disability

    ZIP (807MB)|ZIP (no videos) (19MB)

    Week 3: Access to health care and rehabilitation services

    ZIP (904MB)|ZIP (no videos) (154MB)

    Download individual resources

    Video: Welcome to the course

    Week 1: Disability and its importance to the global development agenda

    Video: Welcome to week 1

    Video & teaching slides: Why does disability matter globally?

    Video:  Why does disability matter – Personal perspectives

    Article: Why does disability matter – individual case studies

    Article: Why does disability matter to International Development? Part 1

    Article: Nothing about us without us

    Video: What does disability mean – personal perspectives

    Video: Attitudes to disability

    Video: What does disability mean – a framework

    Article: Measuring disability: Why would you want to and how do you do it?

    Video: What is the relationship between impairments and disability?

    Video: what are the common impairments related to disability?

    Article: Why does impairment matter?

    Video: Summary of week 1


    Week 2: Health, wellbeing and disability

    Video: Welcome to week 2