Happy new year! We sincerely hope that 2023 is a great year for all.
We are very excited to be co-hosting the conference “Disability, inclusion, and health in Africa and beyond” with Stellenbosch University 24-25 May 2023 in Cape Town, South Africa. This conference will mark the inauguration of the Stellenbosch Disability Research Hub. It will cover a range of topics related to disability and health, including financing and affordability, governance and leadership, autonomy and awareness, healthcare services, rehabilitation and assistive technology, and data and evidence. Fees are £100 for applicants from low resource settings, and £180 for people from high income settings. Abstract submission is open until February 10, 2023 and the form is available here. Please direct any queries to Dr Xanthe Hunt.
We are kicking off our 2023 seminar series this month. Join us tomorrow January 11, 13:00-14:00 p.m. GMT for “Ubuntu Hub Shared Learning Webinar Series: Engaging Fathers in child disability programmes.” The webinar will include short presentations by practitioners working in East Africa who will share their expertise and experiences. This will be followed by a Q&A and facilitated discussion on ways to promote paternal engagement. Join here. A second event will be held online on January 24, 12:45-14:00 p.m. GMT. Using Mhealth to improve stroke care in Malaysia. There will be a panel of speakers from the Universi Sains Malaysia on the use of Mhealth to provide rehabilitation and support people post stroke in Malaysia. Details to follow.
Welcome to Desta Debalkie, a member of our doctoral students with disabilities, who is joining us in London from Ethiopia for three months. We are delighted that he is here with us.
Many congratulations to Dorothy Boggs who has just her PhD viva subject to minor corrections! Her research has focussed on developing a new survey approach for estimating AT need.
With best wishes,
Hannah and Tom
PENDA is a major ICED project, funded by FCDO, aiming to increase evidence to support disability inclusive development. We will focus on developing people, knowledge and tools.
Some updates on PENDA this month…
- We are super excited to be co-hosting a conference with Stellenbosch University in May 2023. Details and call for abstract above!
- Fieldwork is almost complete for the baseline of the evaluation in Nigeria to assess the impact of an inclusive family planning programme in the lives of women with disabilities.
- Read on for new key publications from PENDA
Papers from ICED!
There are two new publications from the PENDA grant. The first published in Trials, presents the “Impact of a disability-targeted livelihoods programme in Bangladesh: study protocol for a cluster randomised controlled trial of STAR” for a trial underway in Bangladesh in partnership with BIGD. The second is a qualitative paper from our trial in Malawi - 'I might be lucky and go back to school': Factors affecting inclusion in education for children with disabilities in rural Malawi” published in the African Journal of Disability. On a related point, Hannah Kuper wrote a blog for International Day of Persons with Disabilities for Plan International re-affirming how important it is to ensure children with disabilities are included in education.
Two publications this month from our work with children with disabilities, both through Tracey Smythe and Cally Tann. “Livelihood support for caregivers of children with developmental disabilities: findings from a scoping review and stakeholder survey” was published in Disability and Rehabilitation; “Learning from the Implementation of the Child Nutrition Program: A Mixed Methods Evaluation of Process.” in Children (Basel).
Morgon Banks and colleagues considered “Disability and the achievement of Universal Health Coverage in the Maldives” published in PLoS One this month. The study presents data from the national survey documenting how people with disabilities are falling behind in healthcare access.
Sarah Polack and colleagues published “People with Disabilities in Ukraine - A Call for Action in Prehospital and Disaster Medicine, highlighting the many challenges facing the 3 million Ukrainian people with disabilities.
Tom Shakespeare, Hannah Kuper and colleagues published “Disability and intimate partner violence: A cross-sectional study from Mwanza, Tanzania.” in Disability and Health Journal. This paper shows the high levels of violence perpetrated against women with disabilities, in particular those with severe or cognitive impairments.
Hannah Kuper co-authored “Disability-inclusive health care systems: technical note for World Bank Task Teams.” This technical note was released last month and can help guide World Bank and others on how to make health investments inclusive of people with disabilities.
Calls for paper:
Morgon Banks is one of the Guest Editors for a special edition of Disability, Inclusion and the Sustainable Development Goals for the journal Frontiers Sustainability. Submission deadline January 31, 2023. Tracey Smythe is Guest Editor to a special issue in IJERPH titled Supporting Children with Disabilities and Their Families. We have 10 papers that will receive a full fee waiver, if you are interested in publishing in this special issue, please contact Tracey Smythe.
Update from the Disability Evidence Portal:
The Disability Evidence Portal (DEP) includes evidence-based briefs to guide policymakers on different topics.
DEP Priority Setting Survey
What questions on disability inclusion for low-and middle-income countries would you like to see answered? The Disability Evidence Portal is a platform that summarises current evidence on key questions for disability inclusion in low- and middle-income countries in short digestible briefs to inform the work of policy makers and implementers. However, we need more questions to answer! Please let us know what questions our briefs should answer next by completing this 10-minute questionnaire.
Upcoming Seminars and Events by LSHTM
Upcoming ICED webinar:
You can find all our previous seminars (including the audio recordings and slides) here.
- January 11, 13:00-14:00 p.m. GMT. Ubuntu Hub Shared Learning Webinar Series: Engaging Fathers in child disability programmes. The webinar will include short presentations by practitioners working in East Africa who will share their expertise and experiences. This will be followed by a Q&A and facilitated discussion on ways to promote paternal engagement. Join here.
- January 24, 12:45-14:00 p.m. GMT, LSHTM. Using Mhealth to improve stroke care in Malaysia. Panel of speakers from the Universi Sains Malaysia on the use of Mhealth to provide rehabilitation and support people post stroke in Malaysia. Details to follow.
Other things of interest
- What do you think are the most important issues to research for the inclusion of children with disabilities? Help UNICEF with the answer by completing this survey by January 11.
- The WHO Global report on health equity for persons with disabilities is now online. The video recording of the launch is now available on YouTube (including International Sign Language
- Read here how the WHO European framework for action to achieve the highest attainable standard of health for persons with disabilities 2022–2030. Read also about the need for rehabilitation services in the WHO European Region here.
- UNICEF have launched their report on global research and evidence about children with disabilities in low and middle-income countries that you can download the report here: link to EGM Report. Accompanying the report is an online interactive evidence and gap map, which can be navigated to find all the research papers and reports.
- 7th AfriNEAD conference is: "Positioning AfriNEAD: Rolling out Disability Research in Africa" 30 November -2 December 2023. Abstrac submission and registration open here.
- International Conference on Social and Environmental Justice, Fordham University, May 1-2, 2023. Submit conference abstract by January 15.
- Call for papers: IJERPH special edition on Costs Incurred by People with Disabilities – deadline 31 May, 2023
Work Experience Programme at ICED
We are delighted to have been awarded an LSHTM Equality Diversity and Inclusion Grant to continue our work experience scheme for people with disabilities seeking experience in research. This year we will be offering three placements with ICED as well as other teams at LSHTM. Please contact us here if you would like to find out more about this opportunity.
Have you seen this?
A podcast has been launched on reimaging health systems for a billion people with disabilities, to support the new Missing Billion Report. It features ICED PhD student Luthfi Azizatunnisa and Hannah Kuper.
There is a new film out (16 minutes) – Sarah by DAYO Kenya. The story is centered on the life of Sarah who is a pregnant woman with disability.
Also, check out Euan’s Guide – disabled access information by disabled people for disabled people.