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Keep up to date with out research, news and events

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May Newsletter

Dear friends,

At ICED we are strongly committed to generating high-quality evidence on disability to inform policy and practice. Fulfilling this objective therefore requires a focus on dissemination and that has kept us very busy recently! Last month we held workshops in Kenya, to share the findings from our Mastercard-funded project focussed on disability-inclusive education and employment. For this project, we worked with youths with disabilities and research groups in seven African countries: read the reports here Uganda, Ghana, Senegal, Kenya, Ethiopia, Nigeria and Rwanda. We also went to Brazil to present our findings from a project in Brazil assessing the inclusion of people with disabilities in the health system. We are now starting work with our research partners and the Ministry of Health to move the findings into action.

From the beginning of April, the Disability Evidence Portal will be transferred to Stellenbosch University, under the direction of Dr Xanthe Hunt.  As well as maintaining and developing the Portal as a resource for policy-makers, researchers and activists, the team will also conduct research on how policy-makers in LMICs use evidence such as the briefs included in the Portal.  ICED will remain involved in a supportive and advisory role. We hope that moving the Portal from the Global North to the Global South, as with authorship of more briefs by teams from the Global South, will be taken as part of our efforts to transfer power and knowledge to colleagues from research institutions in LMICs. The Disability Evidence Portal will remain at disabilityevidence.org. 

As part of the move of the Evidence Portal, Lambert Felix will transfer to a post at Keele Medical School where he will be using his excellent evidence synthesis skills. Part of his employment (and an active email address) remains at LSHTM. We are grateful for the active part Lambert has played at ICED and in the wider LSHTM Disability Network. 
 
We are delighted to welcome Dr Mark Carew as an Assistant Professor in our team. Mark is a social psychologist who has worked with UCL, Leonard Cheshire Disability, Stellenbosch University and more, and will lead the process evaluations within PENDA.


With best wishes,

Hannah and Tom

 
PENDA logo 300

PENDA is a major ICED project, funded by FCDO, aiming to increase evidence to support disability inclusive development. We will focus on developing people, knowledge and tools.
 
Some updates on PENDA this month…

  • Fieldwork finished in Kenya this month to evaluate the effectiveness of a livelihood programme to support micro-entrepreneurs.
  • We are poised to start training in Laos for the impact evaluation of a cash-transfer programme for children with disabilities, in collaboration with UNICEF and the Laos School of Public Health
  • The process evaluation has been complete of the “Star Plus” inclusive livelihood programme in Bangladesh
  • We are super excited to be co-hosting a conference with Stellenbosch University in May 2023. The website for the conference is live: http://stellenboschdisabilityresearch.com/ 

Publications

Papers from ICED!

Tracey Smythe and colleagues published a call for global leadership on disability-inclusive childhood development – including an article in Lancet Child and Adolescent Health (UNICEF and global leadership for disability inclusion in early childhood - The Lancet Child & Adolescent Health) and Nature Medicine (Global leadership is needed to optimize early childhood development for children with disabilities). Tracey also wrote a companion blog on “Unlocking opportunities for children with disabilities: a roadmap for inclusive communities”

A Campbell Systematic Review was published on “Effectiveness of interventions for improving social inclusion outcomes for people with disabilities in low- and middle-income countries: A systematic review.” by Hannah Kuper and colleagues. Overall, 37 eligible studies were identified and they generally showed a positive impact of interventions on improving social inclusion outcomes. However, most of the studies (27) had a high risk of bias, and the greatest focus was on improving social skills, rather than social inclusion more broadly, and so there is still much work to be done!

ICED PhD student Goli Hashemi published the paper exploring “How do people with disabilities in three regions of Guatemala make healthcare decisions? A qualitative study focusing on use of primary healthcare services” in Plos Global Health. The themes include perceived severity of illness and need for treatment, personal attributes, societal factors, and health system characteristics.

Hannah Kuper joined a team of Chinese colleagues for the paper “Association between hearing aid use and all-cause and cause-specific dementia: an analysis of the UK Biobank cohort.” in Lancet Public Health. This paper showed that hearing aid usage was associated with a lower incidence of dementia, and was featured widely in the UK press, including the Guardian and the Times.

Other new articles:

Calls for paper:

Tracey Smythe is Guest Editor to a special issue in IJERPH titled Supporting Children with Disabilities and Their Families. We have 10 papers that will receive a full fee waiver, if you are interested in publishing in this special issue, please contact Tracey Smythe.

 

Check out the Disability Evidence Portal (DEP) for evidence-based briefs to guide policymakers on different topics.

Upcoming Seminars and Events by LSHTM

Upcoming ICED webinar:

You can find all our previous seminars (including the audio recordings and slides) here.

  • Wednesday 10th May, 1-2pm GMT. Ubuntu hub webinar: Exploring feeding challenges for children with developmental disabilities
    This will be an engaging one hour webinar exploring feeding challenges for children with developmental disabilities. It will include a short presentation on USAIDs current work on nutrition and feeding resources for children with developmental disabilities. Followed by a global expert panel discussion of 3 case studies covering different feeding challenges commonly experienced by children with disabilities and their caregivers. Watch the recording here.

Other things of interest

  • 7th AfriNEAD conference is: "Positioning AfriNEAD: Rolling out Disability Research in Africa" 30 November -2 December 2023. Abstract submission and registration open here.
  • Call for papers: IJERPH special edition on Costs Incurred by People with Disabilities – deadline 31 May, 2023
  • Call for papers: “Disability and International Development” journal has a call on “Persons with Disabilities and Climate Change”. Deadline, May 21, 2023
  • CDS/CDRP disability studies webinar on Thursday 11th May 2023, from 1 to 2pm. We will welcome Kasey Tyler to present: "The wrong kind of attention: How does New South Wales identify and manage children with neurodevelopmental impairments in contact with the criminal justice system?" Please register here.
  • Date: Thursday 18 May, 9.30-11.00 am (BST) / 8.30-10.00 (UTC). Inclusive Futures webinar on Disability Inclusive Livelihoods. To attend: register here or use the full link: https://myt-uk.zoom.us/webinar/register/WN_LHE7sntsSu269_9gDCp-eQ 

Work Experience Programme at ICED

We currently are not taking on new candidates, but hope to sometime in the future, so please check our Resources for updates. 

Have you seen this?

We often use this video in our teaching – The Dos and Don’ts of Disability – just 3.24 minutes. We find it engaging and informative – but do let us know if you have better!
 
Also the Washington Group has produced a series of Videos on Disabilities, to explain why it is important to identify a population with disability and how to do it.

 
Read previous newsletters

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Film

Disability-Inclusive Education and Employment

This film presents findings from a research project on Disability-Inclusion in Education and Employment in seven countries in Africa (Ethiopia, Ghana, Kenya, Nigeria, Rwanda, Senegal and Uganda). The film was created with young people with disabilities from Uganda and Ghana who participated in the study.  

The research was conducted in partnership with ICED, Mastercard Foundation, the University of Abuja, the University of Ghana, Lifetime Consulting Ltd, Addis Ababa University, University of Nairobi, Global Advocacy and Research Group and MRC/UVRI & LSHTM Uganda Research Group. It was funded by Mastercard Foundation. 

Phase 1 study reports, on the policy landscape, are available here. Phase 2 reports, based on interviews with young people with disabilities in each country, will follow. A film, about the research findings, created with young people with disabilities who participated in the study can be seen here.

Ubuntu

COVID-19 Support and Guidance

The  situation with COVID-19 is rapidly changing. We have gathered a list of resources about COVID-19 to share with caregivers, children & young people and education, health and social care practitioners to navigate the dynamic situation of the COVID-19 response, and the many impacts that it will have. We hope that they are helpful and we will continue to add new resources as they become available. 

Working with parent groups – a training resource for facilitators and caregivers

These manuals (Getting to Know Cerebral Palsy, Juntos and ABAANA EIP) aim to increase knowledge and skills in caring for a child with developmental disabilities. Research highlighted the significant needs of the caregivers, and how they can gain a huge amount of support from meeting with each other in an understanding environment.

It promotes a participatory learning approach with an emphasis on working with groups and the empowerment of parents and caregivers.

Download the manual (in various languages)

“Before, my family and people in my community used to say ‘this child’s suffering is a result of parent’s sin’. After taking the training I have explained what causes cerebral palsy to others. Now, no-one says anything like this.” 
Parent, Sirajganj, Bangladesh

Animated videos

Animated videos on child development and developmental disability

Download and use these animated videos from ICED on child developmental and developmental disability, with versions in English, Portuguese and Spanish. The first of these videos provides information on child development across different domains and considers how this process can be disrupted for some children. The second explores the challenges and barriers in the lives of people with a developmental disability, and how support strategies can help an individual better participate in their community. 

Please use these videos in your own teaching, support groups or in any other forum, appropriately acknowledging the International Centre for Evidence in Disability at the London School of Hygiene & Tropical Medicine.

The videos are available in English, Portuguese (Brazil) and Spanish.

View the English videos below:

Wed, 03/17/2021 - 10:25
lshas13
Wed, 03/17/2021 - 10:26
lshas13

View the English videos with subtitles here:

View the Portuguese (Brazil) videos with subtitles here:

View the Spanish videos with subtitles here:

Film

Supporting Families Affected by Zika virus

Wed, 03/17/2021 - 10:27
lshas13
Global Community

Children with developmental disabilities and their families

Join a global community to share ideas, access the latest research, find solutions, meet new people and collaborate on innovative and exciting projects.

Journal

Community Ear and Hearing Health Journal

This annual publication promotes good ear and hearing health in low and middle-income countries.

It's a forum for exchanging ideas, experience and information that facilitate continuing education for all levels of health worker. It is delivered to almost 4,000 healthcare providers worldwide. Some issues have been translated into French and Spanish.

Read previous issues
Press and Resources

Press articles

Read articles on ICED activity in the international press and on SciDev.net. Use disability resources from across the web.

Read press articles on our work

SciDev.net columns

MOOC

Global Health and Disability

All files and contents in this folder are © LSHTM unless otherwise stated. You are welcome to reuse, adapt and share these files for non-commercial teaching and learning purposes without asking for permission. You must acknowledge the International Centre for Evidence in Disability, LSHTM as the original creator and provide a link to our website: www.lshtm.ac.uk/research/centres/international-centre-evidence-disability. We would also very much appreciate hearing how you are using the content, please let us know at disabilitycentre@lshtm.ac.uk.

Download full course

Full course ZIP (2GB) |ZIP (no videos) (182MB)

Download content from each week
Download individual resources

Video: Welcome to the course

Week 1: Disability and its importance to the global development agenda

Video: Welcome to week 1

Video & teaching slides: Why does disability matter globally?

Video:  Why does disability matter – Personal perspectives

Article: Why does disability matter – individual case studies

Article: Why does disability matter to International Development? Part 1

Article: Nothing about us without us

Video: What does disability mean – personal perspectives

Video: Attitudes to disability

Video: What does disability mean – a framework

Article: Measuring disability: Why would you want to and how do you do it?

Video: What is the relationship between impairments and disability?

Video: what are the common impairments related to disability?

Article: Why does impairment matter?

Video: Summary of week 1

Video: Welcome to week 2