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August 2020

Dear all,
The COVID-19 pandemic goes on, and I hope that you are staying safe. It is increasingly clear that survivors are experiencing long-term conditions and impairments. Collectively, we will have a lot of work to do to scale up rehabilitation and other services to meet this need.
 
It is also important to continue to advocate for the inclusion of people with disabilities throughout the COVID-19 response. The evidence portal has now launched two new briefs, on how to ensure inclusion in WASH and the importance of addressing wellbeing and mental health needs. More evidence briefs on COVID will follow in the coming months….
 
The Missing Billion Initiative, of which I am a founder, has now launched its website. The ambition is to improve access to healthcare for people with disabilities, particularly in low and middle-income countries. We have started to think about how to diagnose where health systems are in terms of disability-inclusion, and would welcome your feedback and partnership.
 
Islay Mactaggart and Manjula Marella (Nossal) are guest editing an edition of IJERPH on “Measuring Disability and Disability-Inclusive Development”. Deadline for submissions is April 30, 2021. Papers will be published online as soon as they are accepted so no need to wait for that deadline!
 
Finally, we are excited that LSHTM has been awarded a grant by UKRI ESRC on Sexual Health among older adults, including those with disabilities, in China and the UK. It is so important that this neglected topic is addressed. And read on for more information on our papers, webinars and other news….

Best wishes,
 
Hannah Kuper

International Centre for Evidence in Disability, London School of Hygiene & Tropical Medicine

Follow us on Twitter - @ICED_LSHTM.


PENDA logo 500

PENDA is a major ICED project, Funded by the UK’s Foreign Commonwealth and Development Office (FCDO), aiming to increase evidence to support disability inclusive development. We will focus on developing people, knowledge and tools.

Some updates on PENDA this month:

People

  • We have now selected Stephene Maende from Kenya as the third candidate in our PENDA Africa PhD scheme. He has background in research, strategic planning, policy analysis and impact evaluation of policy interventions/programmes, holds a master of Arts Economics degree from the University of Nairobi, bachelor of Arts from Kenyatta University, certificate in Evaluation of Public Policy from Laval University (Canada) and basic accounting skills (CPA I) from KASNEB. Welcome Stephene.

Knowledge

  • Three papers are now online on “Are current approaches to poverty measurement disability-inclusive?” (by Morgon Banks),  “Disability Inclusion Measures” (by Tom Shakespeare et al) and “Rapid Evidence Assessment of what works to improve livelihood outcomes for people with disabilities in low and middle income countries” (by Hannah Kuper et al).

Tools


Publications

More publications this month from our group, in addition to the PENDA papers and Evidence Briefs mentioned above.
 
Tom Shakespeare and colleagues published “Covid-19: excess all cause mortality in domiciliary care.”, in the BMJ. They concluded that in the UK “…the rise in deaths among those receiving domiciliary care is similar to that among care home residents, yet it is scarcely mentioned.”, and urged attention to be given to this issue. 
 
Tracey Smythe and colleagues published “Early intervention for children with developmental disabilities in low and middle-income countries - the case for action.”, in the journal International Health.
 
Hannah Kuper and colleagues published a systematic review of “Multidisciplinary visual rehabilitation in low- and middle-income countries” in Disability and Rehabilitation. They found that there was very little high-quality evidence, and that more studies are urgently needed.
 
Hannah Kuper was also involved in the publication “Hope and trust in times of Zika: the views of caregivers and healthcare workers at the forefront of the epidemic in Brazil”, published in Health Policy and Planning. This paper used qualitative data to reflect on the difficulties doctors faced building trust and supporting children affected by Zika and their families, without giving false hope. 


Upcoming Seminars and Events by LSHTM

We are taking a short break from Seminars. You can find all our previous seminars (including the audio recordings and slides) here.
 
Three great webinars coming up, external to ICED!

  •  Aug 20, 11 a.m. Webinar on Mental Health in International Development: Positioning the UK’s mental health response to COVID-19 :  by Centre for Global Mental Health
  • Aug 25, 14:30 – 16:30 (US EDT – 19:30-21:30 UK time) webinar to discuss the use of the Washington Group data collection tools to assess the impact of COVID-19 on persons with disability.  Email WG_Secretariat@cdc.gov no later than Wednesday, 19 August 2020 to register. 
  • Sept 17, 14:00-15:30. Working in partnership with multiple stakeholders on disability and inclusive education policy processes. Professor Nidhi Singal, Professor of Disability and Inclusive Education at the Faculty of Education University of Cambridge, will facilitate a panel of researchers, policy actors and practitioners who will share their experiences of engaging research with policy and practice. You must register your interest in joining this event.

And you can still watch our webinar on Disability and COVID-19, link here.

Conferences external to LSHTM

  • November 12-13, Social Policy and Disability Symposium, Fordham University, New York, USA. Call for papers is open until May 1. Email here.
  • November 28-29: ADIRA is calling for abstracts to its meeting to advance disability research in Cape Town for meeting agenda please click here for abstract guidelines here. Please send abstract to Nomfundo.Mthethwa@mrc.ac.za
  • November 30-December 3, 6th AfriNEAD conference, Cape Town, South Africa.  
  • Late 2020, 3rd CBR Congress, Entebbe, Uganda.

You can find all our previous seminars (including the audio recordings and slides) here.


Other things of interest

  • ADD have produced a report on COVID and disability – COVID double jeopardy.
  • The Inclusive Futures website has been launched by Sightsavers, highlighting a range of their disability-inclusive programmes

Have you seen this?

We are avid animal lovers in ICED. Check out Andrew Cotter’s youtube channel. He is a professional sports commentator, and has used his skills in an unusual way during lockdown (each video 1-3 minutes).
 
If you have a little more time (1 hour) here is Tom Shakespeare’s Swarthmore Lecture given on “Openings to the Infinite Ocean: A Friendly Offering of Hope”.

    Read previous newsletters

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    Animated videos

    Animated videos on child development and developmental disability

    Download and use these animated videos from ICED on child developmental and developmental disability, with versions in English, Portuguese and Spanish. The first of these videos provides information on child development across different domains and considers how this process can be disrupted for some children. The second explores the challenges and barriers in the lives of people with a developmental disability, and how support strategies can help an individual better participate in their community. 

    Please use these videos in your own teaching, support groups or in any other forum, appropriately acknowledging the International Centre for Evidence in Disability at the London School of Hygiene & Tropical Medicine.

    The videos are available in English, Portuguese (Brazil) and Spanish.

    View the English videos below:

     

     

    View the English videos with subtitles here:

    View the Portuguese (Brazil) videos with subtitles here:

    View the Spanish videos with subtitles here:

    Film

    Supporting Families Affected by the Zika virus

    Manual

    Ubuntu

    Working with parent groups – a training resource for facilitators and caregivers

    These manuals (Getting to Know Cerebral Palsy, Juntos and ABAANA EIP) aim to increase knowledge and skills in caring for a child with developmental disabilities. Research highlighted the significant needs of the caregivers, and how they can gain a huge amount of support from meeting with each other in an understanding environment.

    It promotes a participatory learning approach with an emphasis on working with groups and the empowerment of parents and caregivers.

     Download the manual (in various languages)

    “Before, my family and people in my community used to say ‘this child’s suffering is a result of parent’s sin’. After taking the training I have explained what causes cerebral palsy to others. Now, no-one says anything like this.” 
    Parent, Sirajganj, Bangladesh

    Global community

    Children with developmental disabilities and their families

    Join a global community to share ideas, access the latest research, find solutions, meet new people and collaborate on innovative and exciting projects.

    Journal

    Community Ear and Hearing Health Journal

    This annual publication promotes good ear and hearing health in low and middle-income countries.

    It's a forum for exchanging ideas, experience and information that facilitate continuing education for all levels of health worker. It is delivered to almost 4,000 healthcare providers worldwide. Some issues have been translated into French and Spanish.

    Read previous issues
    Press and resources

    Press articles and further reading

    Read articles on ICED activity in the international press and on SciDev.net. Use disability resources from across the web.

    Read press articles on our work

    SciDev.net columns

    Further reading

    Partner groups at LSHTM

    Global disability groups

    Further reading

    • Handicap International SOURCE Resource depository: Large depository of materials related to disability and inclusive development, curated by HI.
    • Disability and the Global South: Open Access journal on critical disability thinking and perspectives from the Global South
    • UNICEF Disability Homepage: Collated United Nations reports, documents and videos related to disability (among both adults and children)
    • World Report on Disability: Developed by the WHO and World Bank. Source is an international online resource centre run by Handicap International. It is designed to strengthen the management, use and impact of information on disability and inclusion. 
    • WHO MiNDbank: an online platform which brings together a range of country and international resources, covering mental health, substance abuse, disability, general health, human rights and development. 

    Blogs and opinion pieces

    Short films about disabilities

    MOOC

    Global Health and Disability

    All files and contents in this folder are © LSHTM unless otherwise stated. You are welcome to reuse, adapt and share these files for non-commercial teaching and learning purposes without asking for permission. You must acknowledge the International Centre for Evidence in Disability, LSHTM as the original creator and provide a link to our website https://iced.lshtm.ac.uk. We would also very much appreciate hearing how you are using the content, please let us know at iced@lshtm.ac.uk.

    Download the full course
    Download content from each week

     

    Week 1: Disability and its importance to the global development agenda

    ZIP (522MB)|ZIP (no videos) (9MB)

    Week 2: Health, wellbeing and disability

    ZIP (807MB)|ZIP (no videos) (19MB)

    Week 3: Access to health care and rehabilitation services

    ZIP (904MB)|ZIP (no videos) (154MB)

    Download individual resources

    Video: Welcome to the course

    Week 1: Disability and its importance to the global development agenda

    Video: Welcome to week 1

    Video & teaching slides: Why does disability matter globally?

    Video:  Why does disability matter – Personal perspectives

    Article: Why does disability matter – individual case studies

    Article: Why does disability matter to International Development? Part 1

    Article: Nothing about us without us

    Video: What does disability mean – personal perspectives

    Video: Attitudes to disability

    Video: What does disability mean – a framework

    Article: Measuring disability: Why would you want to and how do you do it?

    Video: What is the relationship between impairments and disability?

    Video: what are the common impairments related to disability?

    Article: Why does impairment matter?

    Video: Summary of week 1


    Week 2: Health, wellbeing and disability

    Video: Welcome to week 2