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December 2019

Dear all,
 
Happy International Day of Persons with Disabilities! We are celebrating the day in a number of ways:

We have launched our new PhD programme for researchers with disabilities, with applications open for the University of Zambia and Makerere University, and the Kenya scheme due to launch soon. Look here for more information and application details and please share very widely! Please note, that this scheme is restricted to African students with disabilities, who have already completed a Masters degree, and are able to work full-time on the PhD. The deadline is fast approaching… so please help us by circulating the link and, of course, by applying for those eligible!

 
Jane Wilbur has been working with Wateraid on the Bishesta campaign, which is an intervention to improve menstrual hygiene management for people with intellectual disabilities. It was originally designed in Nepal. The finalised campaign materials are available now here. The web page includes the facilitator’s training agenda, guidance, powerpoints, ToRs; artwork for all campaign components and specifications for printing; the campaign manual, flash cards for facilitators, training visuals and the process monitoring forms.
 
Thank you to everyone who joined the conference on Evidence in Disability last month at LSHTM. For those of you who missed it, plenary presentations and abstracts are now available online.
 
We are also delighted to welcome Dr Robin Youngs, who has become an honorary Associate Professor at ICED. Dr Youngs is an ENT consultant, with extensive experience working in Asia as well as the UK. He will help us to build up our hearing-related work further, such as by supporting the development of survey methods to estimate the prevalence and causes of hearing loss.
 
This is the last newsletter of the year. I wish you a relaxing and enjoyable holiday, and hope that you are able to switch off and enjoy. And please read on for more news on our projects, events and publications!

Best wishes,
 
Hannah Kuper

International Centre for Evidence in Disability, London School of Hygiene & Tropical Medicine

Follow us on Twitter - @ICED_LSHTM.


PENDA

PENDA is a major ICED project, funded by DFID, aiming to increase evidence to support disability inclusive development. We will focus on developing people, knowledge and tools.
 

Some updates on PENDA this month:

  • … launching our PhD scheme in Zambia and Uganda
  • … finalising the plans for the impact evaluations
  • … making plans to visit India and Bangladesh in January
  • … collaborating with partners on ongoing fieldwork in India and Malawi within the DeWorm Study
  • … planning webinar series for launch in early 2020

Publications

Islay Mactaggart and colleagues published “A Case Control Study of Musculoskeletal Impairment (MSI): association with socio-economic status, time use and quality of life in Myanmar” in BMC Public Health this month. The study showed that people with MSI had lower quality of life, were at greater risk of catastrophic health expenditure and more likely to have an income gap than people without MSI.
 
Tom Shakespeare was part of a team that published “Performance management: a qualitative study of relational boundaries in personal assistance.” In Sociology of Health and Illness this month. The paper explored the nature of Personal Assistance relationships, and how both parties manage interpersonal challenges, using data from 59 interviews conducted in the UK.
 
Tom Shakespeare also wrote the Provocation paper “Disabled Children Do Not Have Rights” for the British Academy this month, aiming to trigger thought and debate.

Tess Bright was an author on the paper “Prevalence and service assessment of cataract in Tibetan areas of Sichuan Province, China: population-based study.” in BMJ Open this month. The paper showed that the prevalence of visual loss from cataract was low in this area of China, attributed to the high cataract surgical coverage, but that surgical outcomes remained a challenge.


Upcoming Seminars and Events by LSHTM

And external to LSHTM

You can find all our previous seminars (including the audio recordings and slides) here.

Read previous newsletters

2019

2018

2017

2016

2015

2014

2013

Film

Supporting Families Affected by the Zika virus

Manual

Getting to Know Cerebral Palsy

Working with parent groups – a training resource for facilitators, parents, caregivers, and persons with cerebral palsy.

This manual aims to increase knowledge and skills in caring for a child with cerebral palsy. Research highlighted the significant needs of the caregivers, and how they can gain a huge amount of support from meeting with each other in an understanding environment.

It promotes a participatory learning approach with an emphasis on working with groups and the empowerment of parents and caregivers.

 Download the manual (in various languages)

Download the manual and teaching materials for free, in English, French, Arabic or Spanish. A Chichewa (Malawi) version is also ready for sharing and the manual is being translated in a variety of other languages through the online community Working in the Community with Children with Cerebral Palsy.

We've also published A background paper on the quality of life of caregivers of children with disabilities in Bangladesh: Understanding the Lives of Caregivers of Children with Cerebral Palsy in rural Bangladesh: Use of Mixed Methods.

English 

Getting to Know Cerebral Palsy (English)

Apprendre a connaitre la Paralysie Cerebrale - modules (French)

French translations provided by Light for the World.

Getting to Know Cerebral Palsy (Arabic)

Arabic translations provided by International Committee of the Red Cross.

Getting to Know Cerebral Palsy (Spanish)

“Before, my family and people in my community used to say ‘this child’s suffering is a result of parent’s sin’. After taking the training I have explained what causes cerebral palsy to others. Now, no-one says anything like this.” 
Parent, Sirajganj, Bangladesh

Online community

Our online community supports practitioners in sharing their learning and experiences around the parent training manual. Members can share questions and perspectives, news items and resources with each other, by email or on the community website.

Global community

Children with developmental disabilities and their families

Join a global community to share ideas, access the latest research, find solutions, meet new people and collaborate on innovative and exciting projects.

Journal

Community Ear and Hearing Health Journal

This annual publication promotes good ear and hearing health in low and middle-income countries.

It's a forum for exchanging ideas, experience and information that facilitate continuing education for all levels of health worker. It is delivered to almost 4,000 healthcare providers worldwide. Some issues have been translated into French and Spanish.

Read previous issues
Press and resources

Press articles and further reading

Read articles on ICED activity in the international press and on SciDev.net. Use disability resources from across the web.

Read press articles on our work

SciDev.net columns

Further reading

Partner groups at LSHTM

Global disability groups

Further reading

  • Handicap International SOURCE Resource depository: Large depository of materials related to disability and inclusive development, curated by HI.
  • Disability and the Global South: Open Access journal on critical disability thinking and perspectives from the Global South
  • UNICEF Disability Homepage: Collated United Nations reports, documents and videos related to disability (among both adults and children)
  • World Report on Disability: Developed by the WHO and World Bank. Source is an international online resource centre run by Handicap International. It is designed to strengthen the management, use and impact of information on disability and inclusion. 
  • WHO MiNDbank: an online platform which brings together a range of country and international resources, covering mental health, substance abuse, disability, general health, human rights and development. 

Blogs and opinion pieces

Short films about disabilities

MOOC

Global Health and Disability

All files and contents in this folder are © LSHTM unless otherwise stated. You are welcome to reuse, adapt and share these files for non-commercial teaching and learning purposes without asking for permission. You must acknowledge the International Centre for Evidence in Disability, LSHTM as the original creator and provide a link to our website https://iced.lshtm.ac.uk. We would also very much appreciate hearing how you are using the content, please let us know at iced@lshtm.ac.uk.

Download the full course
Download content from each week

 

Week 1: Disability and its importance to the global development agenda

ZIP (522MB)|ZIP (no videos) (9MB)

Week 2: Health, wellbeing and disability

ZIP (807MB)|ZIP (no videos) (19MB)

Week 3: Access to health care and rehabilitation services

ZIP (904MB)|ZIP (no videos) (154MB)

Download individual resources

Video: Welcome to the course

Week 1: Disability and its importance to the global development agenda

Video: Welcome to week 1

Video & teaching slides: Why does disability matter globally?

Video:  Why does disability matter – Personal perspectives

Article: Why does disability matter – individual case studies

Article: Why does disability matter to International Development? Part 1

Article: Nothing about us without us

Video: What does disability mean – personal perspectives

Video: Attitudes to disability

Video: What does disability mean – a framework

Article: Measuring disability: Why would you want to and how do you do it?

Video: What is the relationship between impairments and disability?

Video: what are the common impairments related to disability?

Article: Why does impairment matter?

Video: Summary of week 1


Week 2: Health, wellbeing and disability

Video: Welcome to week 2