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August 2019

Dear all,

Last month, we launched our report “The Missing Billion; Access to health services for 1 billion people with disabilities”, which was written with a range of partners. This paper sets out why people with disabilities may be more vulnerable to poor health and face difficulties accessing healthcare services. We describe how without a focus on this group we will fail to meet the SDG targets and to realise the right to health of people with disabilities. I have also described these findings in a short blog. It was really exciting that this report was shared widely and picked up by the Lancet, who wrote an editorial on “Prioritising Disability in Universal Health Coverage”.  Please help us share the report, and do give feedback on what you thought and what may be next steps.
 
Registration is still open for our Conference at LSHTM on November 5-6, 2019 on “Evidence in Disability Inclusive Development”. The event will be co-hosted by us with Sightsavers, in partnership with CBM, Action for Disability and Development, and Help Age International. We can only accept 200 participants so do reserve your place soon!
 
Congratulations to Dorothy Boggs and David Musenda who passed their upgrades this month and so are well on their way to PhD success. Dorothy’s PhD will focus on developing a survey tool to estimate the population need for assistive technologies. David will be working in Malawi to investigate how to improve parental support for the education of children with disabilities. Read more about David, and his project, in the “Focus on” section.
 
And please read on for more news on our projects, events and publications!
 
Best wishes,
 
Hannah Kuper

International Centre for Evidence in Disability, London School of Hygiene & Tropical Medicine

Follow us on Twitter - @ICED_LSHTM.

PENDA

PENDA is a major new ICED project, funded by DFID, aiming to increase evidence to support disability inclusive development. We will focus on developing people, knowledge and tools.
 
Some updates on PENDA this month:

People: We are almost ready to start recruiting for our PhD programme for people with disabilities from African Countries. We will circulate the advert later this summer – please share far and wide! Knowledge: Our background paper is now “live”,  explaining our approach to disability inclusion and evaluation. Tom Shakespeare has been working with DFID as a special advisor on their report: “DFID’s work on disability-inclusive development". We have started to make plans to develop an Evidence Portal, where we will display evidence related to disability-inclusive development in a format that is useful for policy and decision makers. We are getting ready for our conference in November! Tools: We are reviewing tools available to measure participation of people with disabilities, and accessibility of infrastructure, to be used throughout our projects. 

Publications

Tom Shakespeare and colleagues published “Perspectives on ICD-11 to understand and improve mental health diagnosis using expertise by experience (INCLUDE Study): an international qualitative study” in Lancet Psychiatry this month. The findings indicated that an accessible lay language version of the ICD-11 could be beneficial for service users and their supporters.
 
Tess Bright’s study, published in BMJ Open, shows the large inequality in the distribution of ear, nose and throat specialists in 15 Latin American countries. There was a more than 30-fold difference in the number of ENTs/million population across the included studies, and where these professionals were available they were mostly situated in the capital areas.
 
Tom Shakespeare and colleagues published “Social participation and inclusion of ex-combatants with disabilities in Colombia” in disability and the Global South. The paper highlights the additional issues facing ex-combatants with disabilities, and how this makes the process of reintegration into the community even more challenging.
 
Antony Duttine and colleagues published the protocol paper “Development and assessment of the feasibility of a Zika family support programme.” in Wellcome Open. This paper describes how the Juntos parent support programme was developed and assessed for feasibility.
  
Islay Mactaggart and colleagues published “Rapid Assessment of Avoidable Blindness: looking back, looking forward.”  In the British Journal of Ophthalmology. RAAB has been used in more than 300 surveys, and this paper considers why it has been successful and what changes are need to make sure that it stays relevant and widely used.

Focus On...David (John) Musendo

With John as my first name on paper, I am better known as David (my second of a few names!). Originally from Zimbabwe, I am a PhD student in ICED at the LSHTM. I joined the School in 2017 but only got to settle on my research topic in October 2018 (long story!). I have a background in teaching, training and conducting programme evaluations, especially across Africa. I love cycling.

What project am I working on? My research project is focused on developing and assessing the acceptability and feasibility of a parent level intervention aimed at improving inclusive education for school-based children with disabilities in mainstream schools in Northern Malawi.
 
Why is this important?  Children with disabilities have unique needs, and parental involvement is essential as a major strategy to meet the educational needs of these children. However, there is a gap in knowledge and evidence on effective parent-level programmes supporting children with disabilities in low income settings. Much of the evidence is from high income countries, where setting, resources, personal capacities and understandings of implementing programmes are very different.
 
Right now I … Just completed my upgrading process in the last week of July 2019. This was preceded by an in-depth scoping of relevant literature as well as carrying out field data collection in Nkhata Bay district, Northern Malawi. All field data has been transcribed and I am now focusing on analysing the data in preparation for my first publication. I am using the Behaviour Change Framework in the development of the project. As far as I am aware, that is new ground for the model in Africa, especially in Malawi. That is what makes the whole learning process absolutely exciting.

Upcoming Conferences

  • August 29, 5:15-6:30pm, Manson Lecture Theatre, LSHTM. Summer Screening: "The Little Girl Who Sold The Sun".
  • September 16, 1-2 p.m. at LSHTM. Shanthi Ameratunga, University of Auckland. Disability-inclusive transport: Leaving no one behind in the Age of Active Travel.
  • October 29, 1-2 p.m. Various speakers. Why to include disability in your study and how to do it? 
  • November, 5-6, 2019. Conference on Evidence in Disability Inclusive Development. LSHTM December 3, 6 p.m. Range of speakers, chaired by Tom Shakespeare. Dementia as a disability: implications for collaborative research projects

You can find all our previous seminars (including the audio recordings and slides) here.

 

Read previous newsletters

2019

2018

2017

2016

2015

2014

2013

 

Film

Supporting Families Affected by the Zika virus

Manual

Getting to Know Cerebral Palsy

Working with parent groups – a training resource for facilitators, parents, caregivers, and persons with cerebral palsy.

This manual aims to increase knowledge and skills in caring for a child with cerebral palsy. Research highlighted the significant needs of the caregivers, and how they can gain a huge amount of support from meeting with each other in an understanding environment.

It promotes a participatory learning approach with an emphasis on working with groups and the empowerment of parents and caregivers.

 Download the manual (in various languages)

Download the manual and teaching materials for free, in English, French, Arabic or Spanish. A Chichewa (Malawi) version is also ready for sharing and the manual is being translated in a variety of other languages through the online community Working in the Community with Children with Cerebral Palsy.

We've also published A background paper on the quality of life of caregivers of children with disabilities in Bangladesh: Understanding the Lives of Caregivers of Children with Cerebral Palsy in rural Bangladesh: Use of Mixed Methods.

English 

Getting to Know Cerebral Palsy (English)

Apprendre a connaitre la Paralysie Cerebrale - modules (French)

French translations provided by Light for the World.

Getting to Know Cerebral Palsy (Arabic)

Arabic translations provided by International Committee of the Red Cross.

Getting to Know Cerebral Palsy (Spanish)

“Before, my family and people in my community used to say ‘this child’s suffering is a result of parent’s sin’. After taking the training I have explained what causes cerebral palsy to others. Now, no-one says anything like this.” 
Parent, Sirajganj, Bangladesh

Online community

Our online community supports practitioners in sharing their learning and experiences around the parent training manual. Members can share questions and perspectives, news items and resources with each other, by email or on the community website.

Global community

Children with developmental disabilities and their families

Join a global community to share ideas, access the latest research, find solutions, meet new people and collaborate on innovative and exciting projects.

Journal

Community Ear and Hearing Health Journal

This annual publication promotes good ear and hearing health in low and middle-income countries.

It's a forum for exchanging ideas, experience and information that facilitate continuing education for all levels of health worker. It is delivered to almost 4,000 healthcare providers worldwide. Some issues have been translated into French and Spanish.

Read previous issues
Press and resources

Press articles and further reading

Read articles on ICED activity in the international press and on SciDev.net. Use disability resources from across the web.

Read press articles on our work

SciDev.net columns

Further reading

Partner groups at LSHTM

Global disability groups

Further reading

  • Handicap International SOURCE Resource depository: Large depository of materials related to disability and inclusive development, curated by HI.
  • Disability and the Global South: Open Access journal on critical disability thinking and perspectives from the Global South
  • UNICEF Disability Homepage: Collated United Nations reports, documents and videos related to disability (among both adults and children)
  • World Report on Disability: Developed by the WHO and World Bank. Source is an international online resource centre run by Handicap International. It is designed to strengthen the management, use and impact of information on disability and inclusion. 
  • WHO MiNDbank: an online platform which brings together a range of country and international resources, covering mental health, substance abuse, disability, general health, human rights and development. 

Blogs and opinion pieces

Short films about disabilities

MOOC

Global Health and Disability

All files and contents in this folder are © LSHTM unless otherwise stated. You are welcome to reuse, adapt and share these files for non-commercial teaching and learning purposes without asking for permission. You must acknowledge the International Centre for Evidence in Disability, LSHTM as the original creator and provide a link to our website https://iced.lshtm.ac.uk. We would also very much appreciate hearing how you are using the content, please let us know at iced@lshtm.ac.uk.

Download the full course
Download content from each week

 

Week 1: Disability and its importance to the global development agenda

ZIP (522MB)|ZIP (no videos) (9MB)

Week 2: Health, wellbeing and disability

ZIP (807MB)|ZIP (no videos) (19MB)

Week 3: Access to health care and rehabilitation services

ZIP (904MB)|ZIP (no videos) (154MB)

Download individual resources

Video: Welcome to the course

Week 1: Disability and its importance to the global development agenda

Video: Welcome to week 1

Video & teaching slides: Why does disability matter globally?

Video:  Why does disability matter – Personal perspectives

Article: Why does disability matter – individual case studies

Article: Why does disability matter to International Development? Part 1

Article: Nothing about us without us

Video: What does disability mean – personal perspectives

Video: Attitudes to disability

Video: What does disability mean – a framework

Article: Measuring disability: Why would you want to and how do you do it?

Video: What is the relationship between impairments and disability?

Video: what are the common impairments related to disability?

Article: Why does impairment matter?

Video: Summary of week 1

Week 2: Health, wellbeing and disability

Video: Welcome to week 2