Publications

We undertake a diverse range of research projects on global disability and development in collaboration with staff from LSHTM and external organisations. Over the years, our research has been published in variety of peer-reviewed international publications.

Below you can sample some peer-reviewed publications from members of ICED. This list is not comprehensive, but it reflects the range of our research.

The list only includes a small selection of our work on visual impairment and blindness. A full list is available on the International Centre for Eye Health pages.

2020

Estimating assistive product need in Cameroon and India: results of population-based surveys and comparison of self-report and clinical impairment assessment approaches. Boggs D, Kuper H, Mactaggart I, Murthy G, Oye J, Polack S (2020). Tropical Medicine and International Health, DOI: 10.1111/tmi.13523

The challenge of including people with disabilities in the strategy to face the COVID-19 pandemic in Brazil. Reichenberger V, Veloso de Alburquerque M, David R B, Ramos V D, Lyra T M, Moran de Brito C M, Köptcke L S, Kuper H (2020). Epidemiologia e Serviços de Saúde, DOI: https://doi.org/10.1590/s1679-49742020000500023, also available in English translation.

Disability, violence, and mental health among Somali refugee women in a humanitarian setting. Hossain M, Pearson R, Mcalpine A, Bacchus L, Muuo S W, Muthuri S K, Spangaro J, Kuper Hannah, Franchi G, Pla Cordero R, Cornish-spencer S, Hess T, Bangha M, Izugbara C (2020). Global Mental Health, DOI: 10.1017/gmh.2020.23

Disability-inclusive responses to COVID-19: Lessons learnt from research on social protection in low- and middle-income countries. Banks L M, Davey C^, Shakespeare T, Kuper H (2020). World Development, DOI: 10.1016/j.worlddev.2020.105178

Trials and Tribulations of Collecting Evidence on Effectiveness in Disability-Inclusive Development: A Narrative Review. Kuper H, Davey C, Banks L M, Shakespeare T, (2020). Sustainability, DOI: https://EconPapers.repec.org/RePEc:gam:jsusta:v:12:y:2020:i:18:p:7823-:d:417321

Self-reported disability in relation to mortality in rural Malawi: a longitudinal study of over 16,000 adults. Prynn J E, Dube A, Mkandawire J, Koole O, Geis S, Mwaiyeghele E, Mwiba O, Price A J, Kachiwanda L, Nyirenda M, Kuper H, Crampin A C (2020). BMJ Open, DOI: 10.1136/bmjopen-2019-034802

Barriers to accessing primary healthcare services for people with disabilities in low and middle-income countries, a Meta-synthesis of qualitative studies. Hashemi G, Wickenden M, Bright T, Kuper H (2020). Disability and Rehabilitation, DOI: 10.1080/09638288.2020.1817984

Mothers as facilitators for a parent group intervention for children with Congenital Zika Syndrome: Qualitative findings from a feasibility study in Brazil. Smythe T, Matos M, Reis J, Duttine A, Ferrite S, Kuper H (2020). PloS One, DOI: 10.1371/journal.pone.0238850

Eye health and quality of life: an umbrella review protocol. Assi L, Rosman L, Chamseddine F, Ibrahim P, Sabbagh H, Congdon N, Evans J, Ramke J, Kuper H, Burton M J, Ehrlich J R, Swenor B K (2020). BMJ Open, DOI: 10.1136/bmjopen-2020-037648

Early intervention for children with developmental disabilities in low and middle-income countries – the case for action. Smythe T, Zuurmond M, Tann C J, Gladstone M, Kuper H (2020). International Health, DOI: https://doi.org/10.1093/inthealth/ihaa044

Covid-19: excess all cause mortality in domiciliary care. Glynn J R, Fielding K, Shakespeare T, Campbell O (2020). BMJ, DOI: https://doi.org/10.1136/bmj.m2751

Multidisciplinary visual rehabilitation in low- and middle-income countries: a systematic review. Wallace S, Alao R, Kuper H, Jackson M (2020). Disability and Rehabilitation, DOI: https://doi.org/10.1080/09638288.2020.1794063

Hope and trust in times of Zika: the views of caregivers and healthcare workers at the forefront of the epidemic in Brazil. Simas C, Penn-Kekana L, Kuper H, Lyra T M, Lopes Moreira M E, Veloso de Albuquerque M, Barreto de Araújo T V, Lopes de Melo A P, Figueira Mendes C H, Nunes Moreira M C, Ferreira do Nascimento M A, Pimentel C, Pinto M, Valongueiro S, Larson H (2020). Health Policy and Planning, DOI: https://doi.org/10.1093/heapol/czaa042

Summary report on considering disability in COVID-19 hygiene programmes. Wilbur J (2020). COVID-19 Hygiene Hub, DOI: https://resources.hygienehub.info/en/articles/4097594-summary-report-on-considering-disability-in-covid-19-hygiene-programmes

Global Burden of Childhood Epilepsy, Intellectual Disability, and Sensory Impairments. Olusanya B O, Wright S M, Nair M K C, Boo N, Halpern R et al (2020). Pediatrics, DOI: 10.1542/peds.2019-2623

Association of anxiety and depression with physical and sensory functional difficulties in adults in five population-based surveys in low and middle-income countries. Wallace S, Mactaggart I, Banks L M, Polack S, Kuper H (2020). PLOS ONE, DOI: https://doi.org/10.1371/journal.pone.0231563

Etiology of Childhood Bilateral Sensorineural Hearing Loss in Shandong Province, China. Jiang F, Kuper H, Bright T, Wen-Zhe Q (2020). Am J Audiology, DOI: https://doi.org/10.1044/2020_AJA-19-00029

Congenital Zika Syndrome—Assessing the Need for a Family Support Programme in Brazil. Duttine A, Smythe T, Calheiro de Sá M R, Ferrite S, ZuurmondM, Moreira M E, Collins A, MilnerK and Kuper H (2020). Int. J. Environ. Res. Public Health, DOI: https://doi.org/10.3390/ijerph17103559

Remote monitoring of clubfoot treatment with digital photographs in low resource settings: Is it accurate? Smythe T, Nogaro M, Clifton L J, Mudariki D, Theologis T, Lavy C (2020). PLOS ONE, DOI: https://doi.org/10.1371/journal.pone.0232878

Impact of Hearing Aids on Poverty, Quality of Life and Mental Health in Guatemala: Results of a before and after Study. Spreckley M, MacleodD, González TrampeB, SmithA and Kuper H (2020) Int. J. Environ. Res. Public Health, DOI: https://doi.org/10.3390/ijerph17103470

Taking Disability Evidence to The Policy Makers Who Need It. Shakespeare T (2020). CEDIL website. Click here to read the blog.

Disability-inclusive COVID-19 response: What it is, why it is important and what we can learn from the United Kingdom’s response. Kuper H, Banks L M, Bright T, Shakespeare T (2020). Wellcome Open Research DOI: https://doi.org/10.12688/wellcomeopenres.15833.1

The Promise and Pitfalls of Social Science Research in an Emergency: Lessons from Studying the Zika Epidemic in Brazil, 2015-2016. Passos M J, Matta G, Lyra T M, Lopes Moreira M E, Kuper E, Penn-Kekana L, Mendonça M (2020). BMJ Global Health DOI: 10.1136/bmjgh-2020-002307

Community-based family and carer-support programmes for children with disabilities. Heys M, Lakhanpaul M, Allaham S, Manikam L, Owugha J, Oulton K, Morris C, Martin K R, Tann C, Martin J, Kuper H (2020). Paediatrics and Child Health DOI: https://doi.org/10.1016/j.paed.2020.02.004

Field-testing of a Rapid Survey Method to Assess the Prevalence and Causes of Hearing Loss in Gao'an, Jiangxi Province, China. Bright T, Shan X, XuJ, Liang J, Xiao B, EnsinkR, Mactaggart I, Polack S, Yip JLY (2020). Archives of Public Health doi: 10.1186/s13690-020-0398-1

Field Test of the Rapid Assessment of Hearing Loss Survey Protocol in Ntcheu District, Malawi. Bright T, Mulwafu W, Phiri M, Jiang F, Swanepoel D, Kuper H, Mactaggart I, Yip JLY, Polack S (2020). International Journal of Audiology doi:10.1080/14992027.2020.1739764

No One Left Behind? Comparing Poverty and Deprivation between People with and without Disabilities in the Maldives. Banks LM, Hameed S, Usman SK, Kuper H (2020). Sustainability doi: https://doi.org/10.3390/su12052066

The relationship between mental health conditions and hearing loss in low‐ and middle‐income countries. Jiang F, Kubwimana C, Eaton J, Kuper H, Bright T (2020). Tropical Medicine & International Health doi: https://doi.org/10.1111/tmi.13393

Disability and mental health among Syrian refugees in Sultanbeyli, Istanbul: 2019 Survey Report. Polack S, Scherer N, Hameed S, Boggs D (2020). ICED Website: https://www.lshtm.ac.uk/research/centres/international-centre-evidence-disability/research

Systematic review of interventions for reducing stigma experienced by children with disabilities and their families in low and middle-income countries: state of the evidence. Smythe T, Adelson J, Polack S (2020). Tropical Medicine & International Health doi: 10.1111/tmi.13388

Validity of hearing screening using hearTest smartphone-based audiometry: performance evaluation of different response modes. Corona AP, Ferrite S, Bright T, Polack S (2020). International Journal of Audiology doi: 10.1080/14992027.2020.1731767

Rationale and feasibility of a combined rapid assessment of avoidable blindness and hearing loss protocol . Bright T, McCormick I, Phiri M, Mulwafu W, Burton M, Polack S, Mactaggart I, Yip JLY, Swanepoel W, Kuper H (2020). PLoS One doi: 10.1371/journal.pone.0229008

Assessing Global Health Care: The Lens of Disability in the American Journal of Public Health. Hogan AJ (2020). doi: https://doi.org/10.2105/AJPH.2019.305479

Rapid Response: Reverse innovation in practice: the Getting to Know Cerebral Palsy programme in Delivering cost effective healthcare through reverse innovation. Wilson E. K, Kuper H, Tann C.J., Heys, M. BMJ doi: https://www.bmj.com/content/367/bmj.l6205/rr-1

Evidence and gap map of studies assessing the effectiveness of interventions for people with disabilities in low‐and middle‐income countries. Saran A, White H, Kuper H (2020). Campbell Systematic Reviews doi: https://doi.org/10.1002/cl2.1070

Effective refractive error coverage: an eye health indicator to measure progress towards universal health coverage. McCormick I, Mactaggart I, Bastawrous A, Burton M J, Ramke J (2020). Ophthalmic Physiol Opt doi: 10.1111/opo.12662

2019

Sustainable development for global mental health: a typology and systematic evidence mapping of external actors in low-income and middle-income countries. Iemmi V (2019). BMJ Global Health doi: http://orcid.org/0000-0003-3301-0689

Participation as human right and health benefit for young people with physical disabilities. Shakespeare T (2019). Developmental Medicine and Child Neurology doi: https://doi.org/10.1111/dmcn.14382

The need to act together in every way possible: inter-sector action in health and education for children living with the congenital Zika syndrome. Calheiros de Sá M R, Dias Vieira A C, Madeira Castro B S, AgostiniO, Smythe T, Kuper H, Lopes MoreiraM E, Nunes Moreira M C (2019). Cadernos de Saúde Pública doi: http://dx.doi.org/10.1590/0102-311x00233718

Performance management: a qualitative study of relational boundaries in personal assistance. Porter T, Shakespeare T, Stöckl A (2019). Sociology of Health and Illness doi: https://doi.org/10.1111/1467-9566.12996

Prevalence and service assessment of cataract in Tibetan areas of Sichuan Province, China: population-based study. Jiachu D, Jin L, Jiang F, Luo L, Zheng H, Ji D, Yang J, Yongcuo N, Huang W, Yi J, Bright T, Yip JL, Xiao B (2019). BMJ Open doi: 10.1136/bmjopen-2019-031337

Disabled Children Do Not Have Rights. Shakespeare T (2019). The British Academy doi: https://medium.com/reframing-childhood-past-and-present/disabled-children-do-not-have-rights-6c5b6628c7cd

A case-control study of musculoskeletal impairment: association with socio-economic status, time use and quality of life in post-conflict Myanmar. Mactaggart I, Maung N S, Khaing C T, Kuper H, Blanchet K (2019). BMC Public Health doi: https://doi.org/10.1186/s12889-019-7851-5

Social and economic impacts of congenital Zika syndrome in Brazil: Study protocol and rationale for a mixed-methods study. Kuper H, Lyra T M, Moreira M E L, de Albuquerque M D S V, de Araújo T V B, Fernandes S, Jofre-Bonet M, Larson H, Lopes de Melo A P, Mendes C H F, Moreira M C N, do Nascimento M A F, Penn-Kekana L, Pimentel C, Pinto M, Simas C, Valongueiro S (2019). Wellcome Open Research doi: https://www.ncbi.nlm.nih.gov/pubmed/31667356.2

Estimating assistive technology need through population-based surveys: an analysis of data from Cameroon and India. Boggs, D. et al. (2019). In N. Layton & J. Borg (Eds.), Global perspectives on assistive technology: proceedings of the GReAT Consultation 2019 (Licence: CC BY-NC-SA 3.0 IGO ed., Vol. A, pp. 52-78). Geneva: World Health Organization. doi: https://mednet-communities.net/?n1s1yltw.kgffg55s

Engagement of Fathers in Parent Group Interventions for Children with Congenital Zika Syndrome: A Qualitative Study. Smythe T, Duttine A, Dias Vieira A C, da Silveira Madeira de Castro B, Kuper H (2019). International Journal of Environmental Research and Public Health doi: https://doi.org/10.3390/ijerph16203862

Children with hearing impairment in Malawi, a cohort study. Mulwafu W, Tataryn M, Polack S, Viste A, Goplen F K, Kuper H (2019). Bulletin World Health Organization doi: 10.2471/BLT.18.226241

Hearing and vision screening for preschool children using mobile technology, South Africa. Eksteen S, Launer S, Kuper H, Eikelboom R H, Bastawrous A, Swanepoel D (2019). Bulletin World Health Organization doi: 10.2471/BLT.18.227876

Actions, not words: progress since ICPD on disability and SRHR. Shakespeare T, Hameed S, Kiama L (2019). Sexual and Reproductive Health Matters doi: https://doi.org/10.1080/26410397.2019.1676512

Is a four-limb exoskeleton a step in the wrong direction? Shakespeare T, Watson N (2019). The Lancet Neurology doi: https://doi.org/10.1016/S1474-4422(19)30352-7

Are current approaches for measuring access to clean water and sanitation inclusive of people with disabilities? Comparison of individual- and household-level access between people with and without disabilities in the Tanahun district of Nepal. Banks L M, White S, Biran A, Wilbur J, Neupane S, Neupane S, Sharma A, Kuper H (2019). PLOS One doi: https://doi.org/10.1371/journal.pone.0223557

Feasibility Study of a Menstrual Hygiene Management Intervention for People with Intellectual Impairments and Their Carers in Nepal. Wilbur J, Mahon T, Torondel B, Hameed S, Kuper H (2019). International Journal of Environmental Research and Public Health doi: 10.3390/ijerph16193750

Perspectives on Disability and Non-Communicable Diseases in Low- and Middle-Income Countries, with a Focus on Stroke and Dementia. Prynn J E, Kuper H (2019). International Journal of Environmental Research and Public Health doi: https://doi.org/10.3390/ijerph16183488

Rationale for a Rapid Methodology to Assess the Prevalence of Hearing Loss in Population-Based Surveys. Bright T, Mactaggart I, Kim M, Yip J, Kuper H, Polack S (2019). International Journal of Environmental Research and Public Health doi: https://doi.org/10.3390/ijerph16183405

The association of depression, anxiety, and stress with caring for a child with Congenital Zika Syndrome in Brazil; Results of a cross-sectional study. Kuper H, Lopes Moreira M E, Barreto de Araújo T V, Valongueiro S, Fernandes S, Pinto M, Lyra T M (2019). PLOS Neglected Tropical Diseases doi: https://doi.org/10.1371/journal.pntd.0007768

When the political becomes personal: Reflecting on disability bioethics. Shakespeare T (2019). Bioethics doi: https://doi.org/10.1111/bioe.12668

Incontinence and WASH: Focusing on people in humanitarian and low- and middle-income contexts. Wilbur J (2019). University of Leeds. Click here to read the blog.

An intersectional approach to understandings of mental health inequalities among men with disability. King T L, Shields M, Shakespeare T, Milner A, Kavanagh A (2019). SSM - Population Health doi: 10.1016/j.ssmph.2019.100464

Sexual Functioning in Men With and Without Disabilities: Findings From a Representative Sample of Australian Men. Bollier A, King T Shakespeare T, Hocking J, Kavanagh A (2019). The Journal of Sexual Medicine doi: https://doi.org/10.1016/j.jsxm.2019.07.021

How to conduct good quality research on violence against children with disabilities: key ethical, measurement, and research principles. Kyegombe N, Banks L M, Kelly S, Kuper H, Devries K M (2019). BMC Public Health doi: https://doi.org/10.1186/s12889-019-7456-z

Access to healthcare for children with Congenital Zika Syndrome in Brazil: perspectives of mothers and health professionals. Albuquerque M S V, Lyra T M, Melo A P L, Valongueiro S A, Araújo T V B, Pimentel C, Moreira M C N, Mendes C H F, Nascimento M, Kuper H, Penn-Kekana L (2019). Health Policy and Planning doi: https://doi.org/10.1093/heapol/czz059

An Intervention to Improve Uptake of Referrals for Children with Ear Disease or Hearing Loss in Thyolo District, Malawi: Acceptability and Feasibility. Baum A, Mulwafu W, Phiri M,Polack S, Bright T (2019). International Journal of Environmental Research and Public Health doi: https://doi.org/10.3390/ijerph16173144

Leaving no one behind? Social inclusion of health insurance in low- and middleincome countries: a systematic review. van Hees S G M, O’Fallon T, Hofker M, Dekker M, Polack S, Banks L M, Spaan E J A M (2019). International Journal for Equity in Health doi: https://equityhealthj.biomedcentral.com/track/pdf/10.1186/s12939-019-1040-0

Depression and anxiety in parents of children with intellectual and developmental disabilities: A systematic review and meta-analysis. Scherer N, Verhey I, Kuper H (2019). PLOS One doi: https://doi.org/10.1371/journal.pone.0219888

Rapid Assessment of Avoidable Blindness: looking back, looking forward. Mactaggart I, Limburg H, Bastawrous A, Burton M J, Kuper H (2019). British Journal of Ophthalmology doi: http://dx.doi.org/10.1136/bjophthalmol-2019-314015

Social participation and inclusion of ex-combatants with disabilities in Colombia. Velardea M R, Del Rocio Garzon Diaz K, Shakespeare T (2019). Disability and the Global South doi: https://disabilityglobalsouth.files.wordpress.com/2019/07/06_02_03.pdf

Inequality in the distribution of ear, nose and throat specialists in 15 Latin American countries: an ecological study. Bright T, Mújica O J, Ramke J, Moreno C M, Der C, Melendez A, Ovares E L, Domingues E I S, Hernandez D J S , Chadha S, Silva J C, Peñaranda A (2019). BMJ Open doi: http://dx.doi.org/10.1136/bmjopen-2019-030220

Perspectives on ICD-11 to understand and improve mental health diagnosis using expertise by experience (INCLUDE Study): an international qualitative study. Hackmann C, Singh Balhara Y B,Clayman K, Nemec P B, Notley C, Pike K, Reed G M, Sharan P, Rana M S, Silver J, Swarbrick M, Wilson J, Zeilig H, Shakespeare T (2019). The Lancet Psychiatry doi: https://doi.org/10.1016/S2215-0366(19)30093-8

Improving clubfoot services through a health-systems. Smythe T (2019). Global Health Network. Click here to read the blog.

Mortality during 6 years of follow-up in relation to visual impairment and eye disease: results from a population-based cohort study of people aged 50 years and above in Nakuru, Kenya. Kuper H, Mathenge W, Macleod D, Foster A, Gichangi M, Rono H, Wing K, Weiss H A, Bastawrous A, Burton M (2019). BMJ Open doi: https://bmjopen.bmj.com/content/9/6/e029700

Barriers to accessing cancer services for adults with physical disabilities in England and Wales: an interview-based study. Sakellariou D, Anstey S, Gaze S, Girt E, Kelly D, Moore B, Polack S, Pratt R, Tyrer G, Warren N, Wilkinson W, Courtenay M (2019). BMJ Open doi: https://bmjopen.bmj.com/content/9/6/e027555

Disability and menstruation in Nepal: five wide-reaching effects of empowering young people. Wilbur J (2019). Click here to read the blog for WaterAid.

Development and assessment of the feasibility of a Zika family support programme: a study protocol. Duttine A, Smythe T, Ribiero Calheiro de Sá M, Ferrite S, Moreira M E, Kuper H (2019). Wellcome Open Research doi: https://wellcomeopenresearch.org/articles/4-80/v1

Rating early child development outcome measurement tools for routine health programme use. Boggs D, Milner K M, Chandna J, Black M, Cavallera V, Dua T, Fink G, KC A, Grantham-McGregor S, Hamadani J, Hughes RManji K, Charles McCoy D, Tann C, Lawn J E (2019). Archives of Disease in Childhood doi: https://adc.bmj.com/content/104/Suppl_1/S22

Success in Africa: People with disabilities share their stories. Shakespeare T, Mugeere A, Nyariki E, Simbaya J (2019). African Journal of Disability doi: https://doi.org/10.4102/ajod.v8i0.522

Children with Cerebral Palsy in Bangladesh: Their Contribution to the Development of a Rehabilitation Training Programme. Zuurmond M, Mahmud I, Hartley S (2018). Disability, CBR and Inclusive Development (DCID) doi: http://dcidj.org/article/view/598

Diagnostic accuracy of non‐specialist versus specialist health workers in diagnosing hearing loss and ear disease in Malawi. Bright T, Mulwafu W, Phiri M, Ensink R J K, Smith A, Yip J, Mactaggart I, Polack S (2019). A European Journal Tropical Medicine and International Health doi: https://doi.org/10.1111/tmi.13238

Systematic review on barriers and enablers for access to diabetic retinopathy screening services in different income settings. Piyasena M M P N, Murthy G V S,Yip J LY, Gilbert C, Zuurmond M, Peto T, Gordon I, Hewage S, Kamalakannan S (2019). PLOS One doi: https://doi.org/10.1371/journal.pone.0198979

Barriers and Facilitators to Accessing Health Services: A Qualitative Study Amongst People with Disabilities in Cameroon and India. Zuurmond M, Mactaggart I, Kannuri N, Murthy GVS, Oye J E, Polack S (2019). International Journal of Environmental Research and Public Health doi: https://doi.org/10.3390/ijerph16071126

Disability and menstruation in Nepal: how we developed our behaviour change intervention. Wilbur J (2019). WaterAid. Click here to read the blog for WaterAid.

Evaluation of a simple tool to assess the results of Ponseti treatment for use by clubfoot therapists: a diagnostic accuracy study. Smythe T, Mudariki D, Gova M, Foster A, Lavy C (2019). Journal of Foot and Ankle Research doi: https://doi.org/10.1186/s13047-019-0323-4

Life after ZIKA: The Juntos Programme. Smythe T, Pinheiro S (2019). Click here to read the blog.

Neglected tropical diseases and disability-what is the link? Kuper H (2019). Transactions of the Royal Society of Tropical Medicine and Hygiene doi: https://doi.org/10.1093/trstmh/trz001

Perspectives of children with disabilities and their guardians on factors affecting inclusion in education in rural Nepal: “I feel sad that I can’t go to school”. Banks L M, Zuurmond M, Monteath-Van Dok A, Gallinetti J, Singal N (2019). Oxford Development Studies doi: https://doi.org/10.1080/13600818.2019.1593341

Remodeling the ICF. Mitra S, Shakespeare T (2019). Disability and Health Journal doi: https://doi.org/10.1016/j.dhjo.2019.01.008

Systematic review of menstrual hygiene management requirements, its barriers and strategies for disabled people. Wilbur J, Torondel B, Hameed S, Mahon T, Kuper H (2019). PLOS One doi: https://doi.org/10.1371/journal.pone.0210974

Deprived of oxygen but full of life – how can we support African children affected by neonatal encephalopathy? Tann C (2019). Click here to read the blog.

Improving nutritional status of children with Cerebral palsy: a qualitative study of caregiver experiences and community‐based training in Ghana. Donkor C M, Lee J, Lelijveld N, Adams M, Baltussen M M, Nyante G G, Kerac M, Polack S, Zuurmond M (2019). Food Science and Nutrition doi: https://doi.org/10.1002/fsn3.788

Access to social protection among people with disabilities: Evidence from Viet Nam. Banks L M, Walsham M, Minh H V, Duong D T T, Ngan T T, Mai V Q, Blanchet K, Kuper H (2019). International Social Security Review doi: https://doi.org/10.1111/issr.12195

2018

Breaking the barriers – disability, ageing and HIV in inclusive WASH programming. Wilbur J, Gosling L (2018), in Equality in Water and Sanitation Services, Cumming O, Slaymaker T (ed.) doi: https://www.routledge.com/Equality-in-Water-and-Sanitation-Services/Cumming-Slaymaker/p/book/9781138203518

Child development and disability. Rosch R, Heys M, Kuper H (2018), in Oxford Textbook of Global Health of Women, Newborns, Children, and Adolescents, Devakumar D et al (ed.) doi: https://oxfordmedicine.com/view/10.1093/med/9780198794684.001.0001/med-9780198794684-chapter-38

What Get Measured Gets Done: Collecting Data to Support Inclusive Education for Children with Disabilities. Mactaggart I, Kuper H (2018), in Education and Disability in the Global South: New Perspectives from Africa and Asia. Singal N et al (ed.) doi: https://www.bloomsbury.com/uk/education-and-disability-in-the-global-south-9781474291224/

A comparison of outcome measures used to report clubfoot treatment with the Ponseti method: results from a cohort in Harare, Zimbabwe. Smythe T, Gova M, Muzarurwi R, Foster A, Lavy C. (2018) BMC Musculoskeletal Disorders doi: https://bmcmusculoskeletdisord.biomedcentral.com/articles/10.1186/s12891-018-2365-3

Can we achieve universal health coverage without a focus on disability? Results from a national case-control study in Guatemala. Kuper H, Mactaggart I, Dionicio C, Cañas R, Naber J, Polack S. (2018) PLOS One doi: https://doi.org/10.1371/journal.pone.0209774

We must ensure people with disabilities have dignity during menstruation. Wilbur J (2018). WaterAid. Click here to read the WaterAid blog.

Developing Behaviour Change Interventions for Improving Access to Health and Hygiene for People with Disabilities: Two Case Studies from Nepal and Malawi. Wilbur J, Bright T, Mahon T, Hameed S, Torondel B, Mulwafu W, Kuper H, Polack (2018) International Journal of Environmental Research and Public Health doi: https://doi.org/10.3390/ijerph15122746

A quarterly research digest highlighting the most important news and resources in adolescent well-being over the last three months. Bianchera, E. (2018), Guest Editor Kuper, H. Innocenti Research Digest on Adolescence 11 doi: https://www.unicef-irc.org/publications/990-innocenti-research-digest-a…

Spectacle Compliance and Its Determinants in a School Vision Screening Pilot in Botswana. McCormick I, Morjaria P, Mactaggart I, Bunce C, Bascaran C, Jeremiah M, Foster A. (2018) Ophthalmic Epidemiology doi: https://doi.org/10.1080/09286586.2018.1523441

Rapid assessment of avoidable blindness for health service planning. Mactaggart I, Wallace S, Ramke J, Burton M, Bastawrous A, Limburg H, Qureshi M B, Foster A & Kuper H. (2018) Bulletin of the World Health Organization doi: https://www.who.int/bulletin/volumes/96/10/18-217794.pdf

Evidence and gap map of studies assessing the effectiveness of interventions for people with disabilities. White H, Saran A, Kuper H. (2018) Centre of Excellence for Development Impact and Learning doi: https://cedilprogramme.org/evidence-and-gap-map-of-studies-assessing-the-effectiveness-of-interventions-for-people-with-disabilities/

Social and economic impacts of congenital Zika syndrome in Brazil: Study protocol and rationale for a mixed-methods study. Kuper H, Lyra T M, Moreira M E L, Veloso de AlbuquerqueM, Barreto de AraújoT V, Fernandes S, Jofre-BonetM, LarsonH, Lopes de Melo A P, Mendes C H F, Moreira M C N, do Nascimento M A F, Penn-Kekana L, Pimentel C, PintoM, Simas C, Valongueiro S. (2018) Wellcome Open Research doi: https://wellcomeopenresearch.org/articles/3-127/v1

The feasibility of a training course for clubfoot treatment in Africa: A mixed methods study. Smythe T, Owen R, Le G, Uwizeye E, Hansen L, Lavy C. (2018) PLOS One doi: https://doi.org/10.1371/journal.pone.0203564

Blinding Retinopathy of Prematurity in Western India: Characteristics of Children, Reasons for Late Presentation and Impact on Families. Kulkarni S, Gilbert C, Zuurmond M, Agashe S, Deshpande M. (2018) Indian Pediatrics doi: https://www.ncbi.nlm.nih.gov/pubmed/30218512

Social protection for people with disabilities in Africa and Asia: a review of programmes for low- and middle-income countries. Walsham M, Kuper H, Banks L M, Blanchet, K. (2018) Oxford Development Studies doi: https://doi.org/10.1080/13600818.2018.1515903

Nurturing care for children with developmental disabilities: a moral imperative for sub-Saharan Africa. Olusanya B O, de Vries P J on behalf of the African Consortium of The Global Research on Developmental Disabilities Collaborators, Olusanya B O, Gladstone M, Rukabyarwema J P, Kuper H, Mulaudzi M C, Kakooza-Mwesige A, Ogbo F A, Olusanya J O, Davis A C, de Vries P J. (2018) The Lancet Child & Adolescent Health doi: https://doi.org/10.1016/S2352-4642(18)30281-5

A support programme for caregivers of children with disabilities in Ghana: Understanding the impact on the wellbeing of caregivers. Zuurmond M, Nyante G, Baltussen M, Seeley J, Abanga J, Shakespeare T, Collumbien M, Bernays S. (2018) Child: Care, Health and Development doi: https://onlinelibrary.wiley.com/doi/full/10.1111/cch.12618

Debate: can we achieve universal health coverage without a focus on disability? Hanefeld, J and Kuper, H. (2018) BMC Health Services Research doi: https://bmchealthservres.biomedcentral.com/

Systematic review of strategies to increase access to health services among children over five in low and middle income countries. Bright T, Felix L, Kuper H, Polack S. (2018) Tropical Medicine and International Health doi: 10.1111/tmi.13044

Reflections on Health Promotion and Disability in Low and Middle-Income Countries: Case Study of Parent-Support Programmes for Children with Congenital Zika Syndrome. Kuper H, Smythe T and Duttine A. (2018) Int J Environ Res Public Health doi: https://doi.org/10.3390/ijerph15030514

Livelihood opportunities amongst adults with and without disabilities in Cameroon and India: A case control study. Mactaggart I, Banks LM, Kuper H, Murthy GVS, Sagar J, Oye J, Polack S. (2018) PLOS One doi: 10.1371/journal.pone.0194105

Population need for primary eye care in Rwanda: A national survey. Bright T, Kuper H1, Macleod D, Musendo D, Irunga P, Yip JLY,. (2018) PLOS One doi: 10.1371/journal.pone.0193817

A qualitative assessment of disability friendly water and sanitation facilities in primary schools, Rumphi, Malawi. Zunda H, Holm RH, Itimu-Phiri A, Malota M, White S. (2018) Development Southern Africa doi: https://doi.org/10.1080/0376835X.2018.1461610

Children with cerebral palsy in Ghana: malnutrition, feeding challenges, and caregiver quality of life. Polack S, Adams M, O’banion D, Baltussen M, Asante S, Kerac M, Gladstone M, Zuurmond M. (2018) Developmental Medicine & Child Neurology doi: https://doi.org/10.1111/dmcn.13797

Prevalence of Hearing Impairment in Mahabubnagar District, Telangana State, India.. Bright T, Mactaggart I, Kuper H, Murthy GV, Polack S. (2018) Ear & Hearing doi: https://doi.org/10.1097/AUD.0000000000000599

Protocol for a randomised controlled trial to evaluate the effectiveness of the ‘Care for Stroke’ intervention in India: a smartphone-enabled, carer-supported, educational intervention for management of disabilities following stroke. Sureshkumar K, Murthy GVS, Kuper H. (2018) BMJ Open doi: https://doi.org/10.1136/bmjopen-2017-020098

Indicators to assess the functionality of clubfoot clinics in low-resource settings: a Delphi consensus approach and pilot study. Smythe T, Mudariki D, Foster A, Lavy C. (2018) International Health doi: https://doi.org/10.1093/inthealth/ihy033

A Qualitative Study of Barriers to Accessing Water, Sanitation and Hygiene for Disabled People in Malawi. White S, Kuper H, Itimu-Phiri A, Holm R, Biran A. (2018) PLOS One doi: https://doi.org/10.1371/journal.pone.0155043

A Cluster-Randomized Trial to Evaluate the Impact of an Inclusive, Community-Led Total Sanitation Intervention on Sanitation Access for People with Disabilities in Malawi. Biran A, Danquah L, Chunga J, Schmidt WP, Holm R, Itimu-Phiri A, Singini W, Jones H, Kuper H, White S. (2018) The American Journal of Tropical Medicine & Hygiene doi: https://doi.org/10.4269/ajtmh.17-0435

Access to water and sanitation among people with disabilities: results from cross-sectional surveys in Bangladesh, Cameroon, India and Malawi. Mactaggart I, Schmidt WP, Bostoen K, Chunga J, Danquah L, Halder AK, Parveen Jolly S, Polack S, Rahman M, Snel M, Kuper H, Biran A. (2018) BMJ Open doi: https://doi.org/10.1136/bmjopen-2017-020077

Exploring the links between water, sanitation and hygiene and disability; Results from a case-control study in Guatemala. Kuper H1, Mactaggart I, White S, Dionicio C, Cañas R, Naber J, Polack S, Biran A. (2018) PLOS One doi: https://doi.org/10.1371/journal.pone.0197360

2017

Prevalence and causes of hearing impairment in Fundong Health District, North-West Cameroon Ferrite, S., Mactaggart, I., Kuper, H., Oye, J. and Polack, S. (2017),Trop Med Int Health, 22: 485–492. doi:10.1111/tmi.12840
Development of indicators for monitoring Community-Based Rehabilitation.Mason C, Weber J, Atasoy S, Sabariego C, Cieza A (2017)PLoS ONE 12(6): e0178418. https://doi.org/10.1371/journal.pone.0178418
Knowledge of HIV-related disabilities and challenges in accessing care: Qualitative research from Zimbabwe Banks LM, Zuurmond M, Ferrand R, Kuper H. (2017) PloS one. 2017;12(8):e0181144. Epub 2017/08/10. doi: 10.1371/journal.pone.0181144. PubMed PMID: 28793316.
Survey of ENT services in sub-Saharan Africa: little progress between 2009 and 2015. Mulwafu, W., Ensink, R., Kuper, H., & Fagan, J. (2017). Global Health Action, 10(1), 1289736. http://doi.org/10.1080/16549716.2017.1289736
Childhood disability in Turkana, Kenya: Understanding how carers cope in a complex humanitarian setting. Zuurmond, M., Nyapera, V., Mwenda, V., Kisia, J., Rono, H., & Palmer, J. (2016). African Journal of Disability, 5(1), 277. http://doi.org/10.4102/ajod.v5i1.277
A systematic review of strategies to increase access to health services among children in low and middle income countries. Bright, T., Felix, L., Kuper, H., & Polack, S. (2017). BMC Health Services Research, 17, 252. http://doi.org/10.1186/s12913-017-2180-9
The incidence of diabetes mellitus and diabetic retinopathy in a population-based cohort study of people age 50 years and over in Nakuru, Kenya Bastawrous, A., Mathenge, W., Wing, K., Bastawrous, M., Rono, H., Weiss, H. A., … Kuper, H. (2017). BMC Endocrine Disorders, 17, 19. http://doi.org/10.1186/s12902-017-0170-x
Six-Year Incidence and Progression of Age-Related Macular Degeneration in Kenya Nakuru Eye Disease Cohort Study. Bastawrous A, Mathenge W, Peto T, Shah N, Wing K, Rono H, Weiss HA, Macleod D, Foster A, Burton M, Kuper H. JAMA Ophthalmol. 2017;135(6):631–638. doi:10.1001/jamaophthalmol.2017.1109
Inclusive Health and the path to Universal Health Coverage Hashemi, G., Kuper, H., Wickendend, M. (2017) Disability and the Global South, Vol.4, No. 1, 1088-1111
Community Action Research in Disability (CARD) An inclusive research programme in Uganda. Hartley, Sally et al. Disability, CBR & Inclusive Development, [S.l.], v. 28, n. 1, p. 5-92, may. 2017. ISSN 2211-5242.

2016

Birth prevalence of Congenital Talipes Equinovarus in Low and Middle Income Countries: A Systematic Review and Meta-analysis. Smythe, T., Kuper, H., Macleod, D., Foster, A. and Lavy, C. (2016). Trop Med Int Health. Accepted Author Manuscript. doi:10.1111/tmi.12833.
Validated Smartphone-Based Apps for Ear and Hearing Assessments: A Review. Bright T., Pallawela D. JMIR Rehabil Assist Technol 2016;3(2):e13. doi: 10.2196/rehab.6074.
Six-Year Incidence of Blindness and Visual Impairment in Kenya: The Nakuru Eye Disease Cohort Study. Andrew Bastawrous, Wanjiku Mathenge, Kevin Wing, Hillary Rono, Michael Gichangi, Helen A. Weiss, David Macleod, Allen Foster, Matthew J. Burton, and Hannah Kuper. Invest Ophthalmol Vis Sci. 2016 Nov; 57(14): 5974–5983. doi: 10.1167/iovs.16-19835.
Childhood disability in Turkana, Kenya: Understanding how carers cope in a complex humanitarian setting. Maria Zuurmond, Velma Nyapera, Victoria Mwenda, James Kisia, Hilary Rono, Jennifer Palmer. African Journal of Disability; Vol 5, No 1 (2016), 8 pages. doi: 10.4102/ajod.v5i1.277.
Prevalence and severity of depressive symptoms in relation to rural-to-urban migration in India: a cross-sectional study. Hannah Maike Albers, Sanjay Kinra, K. V. Radha Krishna, Yoav Ben-Shlomo, Hannah Kuper. BMC Psychology. September 2016. 47. 10.1186/s40359-016-0152-1.
Inclusion of persons with disabilities in systems of social protection: a population-based survey and case–control study in Peru. Antonio Bernabe-Ortiz, Francisco Diez-Canseco, Alberto Vasquez, Hannah Kuper, Matthew Walsham, Karl Blanchet. BMJ Open 2016;6:e011300 doi:10.1136/bmjopen-2016-011300.
Social protection for people with disabilities in Tanzania: a mixed methods study. Hannah Kuper, Matthew Walsham, Flora Myamba, Simeon Mesaki, Islay Mactaggart, Lena Morgon Banks, Karl Blanchet. Oxford Development Studies. Pages 1-17. 22 Aug 2016.
Disability and social protection programmes in low- and middle-income countries: a systematic review. Lena Morgon Banks, Rachel Mearkle, Islay Mactaggart, Matthew Walsham, Hannah Kuper, Karl Blanchet. Pages 1-17 \| Received 23 Jun 2015, Accepted 28 Oct 2015, Published online: 15 Feb 2016.
Hearing Loss in HIV-Infected Children in Lilongwe, Malawi. Susan Hrapcak, Hannah Kuper, Peter Bartlett, Akash Devendra, Atupele Makawa, Maria Kim, Peter Kazembe, Saeed Ahmed. August 23, 2016. PLoS One. 2016 Aug 23;11(8):e0161421. doi:10.1371/journal.pone.0161421. eCollection 2016.
Results of clubfoot treatment after manipulation and casting using the Ponseti method: experience in Harare, Zimbabwe. Smythe T, Chandramohan D, Bruce J, Kuper H, Lavy C, Foster A. Trop Med Int Health. 2016 Oct;21(10):1311-1318. doi: 10.1111/tmi.12750. Epub 2016 Jul 26.
Community-based rehabilitation for people with physical and mental disabilities in low- and middle-income countries: a systematic review and meta-analysis. Valentina Iemmi, Karl Blanchet, Lorna J. Gibson, K. Suresh Kumar, Santosh Rath, Sally Hartley, Gudlavalleti V. S. Murthy, Vikram Patel, Joerg Weber & Hannah Kuper. Journal of Development Effectiveness. Volume 8, 2016. Issue 3. Pages 368-387. 24 Mar 2016.
Prevalence of disability among adults using Rapid Assessment of Disability tool in a rural district of South India. Srikrishna Sulgodu Ramachandra, Komal Preet Allagh, Hemanth Kumar, Nathan Grills, Manjula Marella, Hira Pant, D. Mahesh, Fairlene Soji, Srinivasan Mani, G.V.S. Murthy. Disability and Health Journal. Volume 9, Issue 4, October 2016, Pages 624–631.
A Qualitative Study of Barriers to Accessing Water, Sanitation and Hygiene for Disabled People in Malawi. White S, Kuper H, Itimu-Phiri, Holm R, Biran A. PLoS One. 2016 May 12;11(5):e0155043. doi: 10.1371/journal.pone.0155043. eCollection 2016.
Disability and all-cause mortality in the older population: evidence from the English Longitudinal Study of Ageing. Pongiglione, B., De Stavola, B.L., Kuper H, et al. Eur J Epidemiol (2016) 31: 735. doi:10.1007/s10654-016-0160-8.
Glaucoma, “the silent thief of sight”: patients’ perspectives and health seeking behaviour in Bauchi, northern Nigeria. Abdull MM, Chandler C, Gilbert C. BMC Ophthalmol. 2016 Apr 21;16:44. doi: 10.1186/s12886-016-0220-6.
Impact of Trichiasis Surgery on Quality of Life: A Longitudinal Study in Ethiopia. Habtamu E, Wondie T, Aweke S, Tadesse Z, Zerihun M, Mohammed A, Zewudie Z, Callahan K, Emerson PM, Bailey RL, Mabey DC, Rajak SN, Kuper H, Polack S, Weiss HA, Burton MJ. PLoS Negl Trop Dis. 2016 Apr 14;10(4):e0004627. doi: 10.1371/journal.pntd.0004627. eCollection 2016.
Rehabilitation Needs of Stroke Survivors After Discharge From Hospital in India. Kamalakannan S, Gudlavalleti Venkata M, Prost A, Natarajan S, Pant 5, Chitalurri N, Goenka S, Kuper H. Arch Phys Med Rehabil. 2016 Sep;97(9):1526-1532.e9. doi: 10.1016/j.apmr.2016.02.008. Epub 2016 Mar 2.
Gender Inequalities in Surgery for Bilateral Cataract among Children in Low-Income Countries: A Systematic Review. Gilbert CE, Lepvrier-Chomette N. Ophthalmology. 2016 Jun;123(6):1245-51. doi: 10.1016/j.ophtha.2016.01.048. Epub 2016 Mar 15.
Evaluation of the feasibility and acceptability of the ‘Care for Stroke’ intervention in India, a smartphone-enabled, carer-supported, educational intervention for management of disability following stroke. K Sureshkumar, GVS Murthy, S Natarajan, C Naveen, S Goenka, H Kuper. BMJ Open 2016;6:e009243 doi:10.1136/bmjopen-2015-009243.
Disability and social protection programmes in low- and middle-income countries: a systematic review. Banks, LM; Mearkle, R; MacTaggart, I; Walsham, M; Kuper, H; Blanchet, K. Oxford Development Studies. pp. 1-17. ISSN 1360-0818 DOI: 10.1080/13600818.2016.1142960.
Evaluation of the feasibility and acceptability of the ‘Care for Stroke’ intervention in India, a smartphone-enabled, carer-supported, educational intervention for management of disability following stroke. K Sureshkumar, GVS Murthy, S Natarajan, C Naveen, S Goenka, H Kuper. BMJ Open 2016;6:e009243 doi:10.1136/bmjopen-2015-009243.
Perceptual visual dysfunction, physical impairment and quality of life in Bangladeshi children with cerebral palsy. D Mitry, C Williams, K Northstone, A Akter, J Jewel, N Khan, M Muhit, C E Gilbert, R Bowman. Br J Ophthalmol 2016;100:1245-1250 doi:10.1136/bjophthalmol-2015-307296.
Family-led rehabilitation after stroke in India: the ATTEND trial, study protocol for a randomized controlled trial. Alim M, Lindley R, Felix C, Gandhi DB, Verma SJ, Tugnawat DK, Syrigapu A, Anderson CS, Ramamurthy RK, Langhorne P, Murthy GV, Shamanna BR, Hackett ML, Maulik PK, Harvey LA, Jan S, Liu H , Walker M, Forster A, Pandian JD.
Development and evaluation of a Smartphone-enabled, caregiver-supported educational intervention for management of physical disabilities following stroke in India: protocol for a formative research study. K Sureshkumar, G V S Murthy, Sanjay Kinra, Shifalika Goenka, and Hannah Kuper. BMJ Innov. 2015 Jul; 1(3): 117–126. doi: 10.1136/bmjinnov-2015-000042.
The Sustainable Development Goals and Implications for Eye Health Research. Gilbert C, Murthy GV. Ophthalmic Epidemiol. 2015;22(6):359-60. doi: 10.3109/09286586.2015.1104365.
Road traffic injuries to children during the school commute in Hyderabad, India: cross-sectional survey. Shailaja Tetali, P Edwards, G V S Murthy, I Roberts. Inj Prev doi:10.1136/injuryprev-2015-041854.
Malnutrition and Childhood Disability in Turkana, Kenya: Results from a Case-Control Study. Kuper H, Nyapera V, Evans J, Munyendo D, Zuurmond M, Frison S, Mwenda V, Otieno D, Kisia J. PLoS One. 2015 Dec 21;10(12):e0144926. doi: 10.1371/journal.pone.0144926. eCollection 2015.
Assessing health and rehabilitation needs of people with disabilities in Cameroon and India. Mactaggart I, Kuper H, Murthy GV, Sagar J, Oye J, Polack S. Disabil Rehabil. 2016 Sep;38(18):1757-64. doi: 10.3109/09638288.2015.1107765. Epub 2015 Dec 17.

2015

The Sustainable Development Goals and Implications for Eye Health Research Gilbert C, Murthy G.V.S.
Road traffic injuries to children during the school commute in Hyderabad, India: cross-sectional survey Tetali S, Edwards P, Murthy G.V.S., Roberts I.
Malnutrition and Childhood Disability in Turkana, Kenya: Results from a Case-Control Study Kuper H, Nyapera V, Evans J, Munyendo D, Zuurmond M, Frison S, Mwenda V, Otieno D, Kisia J.
Assessing health and rehabilitation needs of people with disabilities in Cameroon and India Mactaggart I, Kuper K, Murthy G. V. S., Sagar J, Oye J, & Polack S.
Birth prevalence of neural tube defects and orofacial clefts in India: a systematic review and meta-analysis Allagh KP, Shamanna BR, Murthy GV, Ness AR, Doyle P, Neogi SB, Pant HB; Wellcome Trust- PHFI Folic Acid project team. PLoS One. 2015 Mar 13;10(3):e0118961.
Challenges in understanding the epidemiology of acquired brain injury in India Kamalakannan SK, Gudlavalleti AS, Murthy Gudlavalleti VS, Goenka S, Kuper H. Ann Indian Acad Neurol. 2015 Jan-Mar;18(1):66-70.
Cataract Surgery Outcomes in Bangladeshi Children Negretti GS, Ayoub T, Ahmed S, Deb R, Majumder U, Jewel J, Muhit M, Gilbert CE, Bowman RJ. Ophthalmology. 2015 Feb 19. pii: S0161-6420(15)00083-4.
The relationship between HIV and prevalence of disabilities in sub-Saharan Africa: systematic review (FA) Banks LM, Zuurmond M, Ferrand R, Kuper H. Trop Med Int Health. 2015;20:411-29.
Disability in post-earthquake Haiti: prevalence and inequality in access to services Danquah L, Polack S, Brus A, Mactaggart I, Houdon CP, Senia P, Gallien P, Kuper H. Disabil Rehabil. 2015;37(12):1082-9.
The Global Trachoma Mapping Project: Methodology of a 34-Country Population-Based Study Solomon AW, Pavluck AL, Courtright P, Aboe A, Adamu L, Alemayehu W, Alemu M, Alexander ND, Kello AB, Bero B, Brooker SJ, Chu BK, Dejene M, Emerson PM, Flueckiger RM, Gadisa S, Gass K, Gebre T, Habtamu Z, Harvey E, Haslam D, King JD, Mesurier RL, Lewallen S, Lietman TM, MacArthur C, Mariotti SP, Massey A, Mathieu E, Mekasha A, Millar T, Mpyet C, Muñoz BE, Ngondi J, Ogden S, Pearce J, Sarah V, Sisay A, Smith JL, Taylor HR, Thomson J, West SK, Willis R, Bush S, Haddad D, Foster A. Ophthalmic Epidemiol. 2015 Jun;22(3):214-25.
Utility values associated with diabetic retinopathy in Chennai, India Polack S, Alavi Y, Rachapalle Reddi S, Kulothungan V, Kuper H. Ophthalmic Epidemiol. 2015 Feb;22(1):20-7.
‘Care for Stroke’, a web-based, smartphone-enabled educational intervention for management of physical disabilities following stroke: feasibility in the Indian context Sureshkumar K1, Murthy GV, Munuswamy S, Goenka S, Kuper H. BMJ Innov. 2015 Jul;1(3):127-136.
Family-Led Rehabilitation after Stroke in India: the ATTEND pilot study Pandian JD, Felix C, Kaur P, Sharma D, Julia L, Toor G, Arora R, Gandhi DB, Verma SJ, Anderson CS, Langhorne P, Murthy GV, Hackett ML, Maulik PK, Alim M, Harvey LA, Jan S, Walker M, Forster A, Lindley R. Int J Stroke. 2015 Jun;10(4):609-14.
Development and Validation of a Smartphone-Based Visual Acuity Test (Peek Acuity) for Clinical Practice and Community-Based Fieldwork Bastawrous A, Rono HK, Livingstone IA, Weiss HA, Jordan S, Kuper H, Burton MJ. JAMA Ophthalmol. 2015 Aug 1;133(8):930-7.
Planning eye health services in Varamin district, Iran: a cross-sectional study Katibeh M, Blanchet K, Akbarian S, Hosseini S, Ahmadieh H, Burton MJ. BMC Health Serv Res. 2015 Apr 3;15:140.
Community-based rehabilitation for people with disabilities in low-and middle-income countries: a systematic review Iemmi, V et al. Campbell Systematic Reviews 15 (2015).
Understanding the Lives of Caregivers of Children with Cerebral Palsy in rural Bangladesh: Use of Mixed Methods Zuurmond, MA et al. Disability, CBR & Inclusive Development, [S.l.], v. 26, n. 2, p. 5-21, jul. 2015.

2014

Violence against primary school children with disabilities in Uganda: a cross-sectional study Devries KM, Kyegombe N, Zuurmond M, Parkes J, Child JC, Walakira EJ, Naker D. BMC Public Health. 2014 Sep 29;14(1):1017.
The impact of disability on the lives of children; cross-sectional data including 8,900 children with disabilities and 898,834 children without disabilities across 30 countries Kuper H, Monteath-van Dok A, Wing K, Danquah L, Evans J, Zuurmond M, Gallinetti J. PLoS One. 2014 Sep 9;9(9):e107300.
Disability in post-earthquake Haiti: prevalence and inequality in access to services Danquah L, Polack S, Brus A, Mactaggart I, Houdon CP, Senia P, Gallien P, Kuper H. Disabil Rehabil. 2014 Sep 2:1-8.
Advancing the application of systems thinking in health: analysing the contextual and social network factors influencing the use of sustainability indicators in a health system–a comparative study in Nepal and Somaliland Blanchet K, Palmer J, Palanchowke R, Boggs D, Jama A, Girois S. Health Res Policy Syst. 2014 Aug 26;12:46.
Psychological well-being of parents and family caregivers of children with hearing impairment in south India: influence of behavioural problems in children and social support van Driessche A, Jotheeswaran AT, Murthy GV, Pilot E, Sagar J, Pant H, Singh V, Dpk B. Int Rev Psychiatry. 2014 Aug;26(4):500-7.
Trends and implications for achieving VISION 2020 human resources for eye health targets in 16 countries of sub-Saharan Africa by the year 2020 Palmer JJ, Chinanayi F, Gilbert A, Pillay D, Fox S, Jaggernath J, Naidoo K, Graham R, Patel D, Blanchet K. Hum Resour Health. 2014 Aug 15;12:45.
Mapping human resources for eye health in 21 countries of sub-Saharan Africa: current progress towards VISION 2020 Palmer JJ, Chinanayi F, Gilbert A, Pillay D, Fox S, Jaggernath J, Naidoo K, Graham R, Patel D, Blanchet K. Hum Resour Health. 2014 Aug 15;12:44.
The impact of anaemia on functioning in older people in a rural population in South West Uganda Mugisha JO, Baisely K, Seeley J, Kuper H. Br J Haematol. 2014 Jul 28.
Measuring the impact of cataract services in the community Polack S, Kuper H. Community Eye Health. 2014;27(85):15.
The Nakuru eye disease cohort study: methodology & rationale Bastawrous A, Mathenge W, Peto T, Weiss HA, Rono H, Foster A, Burton M, Kuper H. BMC Ophthalmol. 2014 May 1;14:60.
Rethinking eye health systems to achieve universal coverage: the role of research Blanchet K, Gilbert C, de Savigny D. Br J Ophthalmol. 2014 Oct;98(10):1325-8.
A pilot study to evaluate incorporating eye care for children into reproductive and child health services in Dar-es-Salaam, Tanzania: a historical comparison study Mafwiri MM, Kisenge R, Gilbert CE. BMC Nurs. 2014 Jun 2;13:15.
Assessing the prevalence of sensory and motor impairments in childhood in Bangladesh using key informants Murthy GV, Mactaggart I, Mohammad M, Islam J, Noe C, Khan AI, Foster A; on behalf of Bangladesh KIM Study Group. Arch Dis Child. 2014 Jul 8.
The Economic Costs of Exclusion and Gains of Inclusion of People with Disabilities: Evidence from Low and Middle Income Countries Banks M and Polack S. [MAIN REPORT, ICED 2014]
The long term impact of cataract surgery on quality of life, activities and poverty: results from a six year longitudinal study in Bangladesh and the Philippines Danquah L, Kuper H, Eusebio C, Rashid MA, Bowen L, Foster A, Polack S. PLoS One. 2014 Apr 18;9(4):e94140.
Critical reflections on the usefulness of the 3rd Regional Conference on Community Based Rehabilitation (CBR) in the Americas in Medellin. Disability and the Global South Weber J. 2014 Vol 1. No 1. 172-180.
Surviving polio in a post-polio world Groce NE, Banks LM, Stein MA. Soc Sci Med. 2014 Apr;107:171-8.
Can international health programmes be sustained after the end of international funding: the case of eye care interventions in Ghana Blanchet K, James P. BMC Health Serv Res. 2014 Feb 19;14:77.
Health systems analysis of eye care services in Zambia: evaluating progress towards VISION 2020 goals Bozzani FM, Griffiths UK, Blanchet K, Schmidt E. BMC Health Serv Res. 2014 Feb 28;14:94.
Working with communities to improve their eye health Mactaggart I. Community Eye Health. 2014;27(88):61-3.
How to empower communities to take action on improving eye health Mactaggart I, Ricard P. Community Eye Health. 2014;27(88):64-6.
Techniques to encourage people to take better care of their eye health Mactaggart I, Ricard P. Community Eye Health. 2014;27(88):67-8.
Health needs assessment for congenital anomalies in middle-income countries: Examining the case for neural tube defects in Brazil. Schuler-Faccini L, Sanseverino MT, de Rocha Azevedo LM, Moorthie S, Alberg C, Chowdhury S, Sagoo GS, Burton H, Nacul LC. 2014. J Community.

2013

Lifetime prevalence, associated factors, and circumstances of non-volitional sex in women and men in Britain: findings from the third National Survey of Sexual Attitudes and Lifestyles (Natsal-3) Macdowall W, Gibson LJ, Tanton C, Mercer CH, Lewis R, Clifton S, Field N, Datta J, Mitchell KR, Sonnenberg P, Erens B, Copas AJ, Phelps A, Prah P, Johnson AM, Wellings K. Lancet. 2013 Nov 30;382(9907):1845-55.
Preterm-associated visual impairment and estimates of retinopathy of prematurity at regional and global levels for 2010 Blencowe H, Lawn JE, Vazquez T, Fielder A, Gilbert C. Pediatr Res. 2013 Dec;74 Suppl 1:35-49.
HIV and childhood disability: a case-controlled study at a paediatric antiretroviral therapy centre in Lilongwe, Malawi Devendra A, Makawa A, Kazembe PN, Calles NR, Kuper H. PLoS One. 2013 Dec 31;8(12):e84024.
Prevalence, causes and socio-economic determinants of vision loss in Cape Town,South Africa Cockburn N, Steven D, Lecuona K, Joubert F, Rogers G, Cook C, Polack S. PLoS One. 2012;7(2):e30718.
Cataract, visual impairment and long-term mortality in a rural cohort in India: the Andhra Pradesh Eye Disease Study Khanna RC, Murthy GV, Giridhar P, Krishnaiah S, Pant HB, Palamaner Subash Shantha G, Chakrabarti S, Gilbert C, Rao GN. PLoS One. 2013 Oct 25;8(10):e78002.
Reasons for non-uptake of referral: children with disabilities identified through the Key Informant Method in Bangladesh Bedford J, Mackey S, Parvin A, Muhit M, Murthy GV. Disabil Rehabil. 2013;35(25):2164-70.
Understanding the wider needs of children with disabilities Zuurmond M. Community Eye Health. 2013;26(81):5.
Global and regional hearing impairment prevalence: an analysis of 42 studies in 29 countries Stevens G, Flaxman S, Brunskill E, Mascarenhas M, Mathers CD, Finucane M; Global Burden of Disease Hearing Loss Expert Group. Eur J Public Health. 2013;23(1):146-52.
Frailty in HIV-Infected Adults in South Africa Pathai S, Gilbert C, Weiss HA, Cook C, Wood R, Bekker LG, Lawn SD. J Acquir Immune Defic Syndr. 2013 Jan 1;62(1):43-51.
Obstetric fistula in Southern Sudan: situational analysis and Key Informant Method to estimate prevalence Adler AJ, Fox S, Campbell OM, Kuper H. BMC Pregnancy Childbirth. 2013;13:64.
Preconception health care and congenital disorders: mathematical modelling of the impact of a preconception care programme on congenital disorders Shannon GD, Alberg C, NaculL, Pashayan N. BJOG. 2013;120:555–567.
A toolkit to assess health needs for congenital disorders in low- and middle-income countries: an instrument for public health action Nacul LC, Stewart A, Alberg C, Chowdhury S, Darlison MW, Grollman C, Hall A, Modell B, Moorthie S, Sagoo GS, Burton H. J Public Health. 2013 May 10.
Socioeconomic position and later life prevalence of hypertension, diabetes and visual impairment in Nakuru, Kenya Ploubidis GB, Mathenge W, De Stavola B, Grundy E, Foster A, Kuper H. Int J Public Health. 2013 Feb;58(1):133-41.
The impact of rehabilitative services in the lives of adults and children with disabilities, in low-income and middle-income countries: an assessment of the quality of the evidence Patel S, Alavi Y, Lindfield R, Kuper H. Disabil Rehabil. 2013;35(9):703-12.
Predictors of attendance and barriers to cataract surgery in Kenya, Bangladesh and the Philippines Syed A, Polack S, Eusebio C, Mathenge W, Wadud Z, Mamunur AK, Foster A, Kuper H. Disabil Rehabil. 2013 Sep;35(19):1660-7.
Physical rehabilitation in post-conflict settings: analysis of public policy and stakeholder networks Blanchet K, Girois S, Urseau I, Smerdon C, Drouet Y, Jama A. Disabil Rehabil. 2013 May 14.
Selection of sustainability indicators for health services in challenging environments: balancing scientific approach with political engagement Blanchet K, Girois S. Eval Program Plann. 2013 Jun;38:28-32.
The role of social networks in the governance of health systems: the case of eye care systems in Ghana Blanchet K, James P. Health Policy Plan. 2013;28(2):143-56.
Governance of health systems comment on “a network based theory of health systems and cycles of well-being” Blanchet K. Int J Health Policy Manag. 2013 Jul 24;1(2):177-9.
Community-based rehabilitation: Working in partnership with eye care Weber J. Community Eye Health. 2013;26(81):14.
A Toolkit to assess health needs for congenital disorders in low- and middle-income countries: an instrument for public health action. Nacul LC, Stewart A, Alberg C, Chowdhury S, Darlison MW, Grollman C, Hall A, Modell B, Moorthie S, Sagoo GS, Burton H. J Public Health (Oxf). 2014 Jun;36(2):243-50. doi: 10.1093/pubmed/fdt048. Epub 2013 May 10. PubMed PMID: 23667249; PubMed Central PMCID: PMC4041098
The use of a Toolkit for health needs assessment on neural tube defects in Argentina. Groisman B, Liascovich R, Barbero P, Alberg C, Moorthie S, Nacul LC, Sagoo GS. J Community Genet. 2013 Jan;4(1):77-86. doi: 10.1007/s12687-012-0120-2. Epub 2012 Oct 4. PubMed PMID: 23055101; PubMed Central PMCID: PMC3537973.

2012

Inflammation, coagulation and risk of locomotor disability in elderly women: findings from the British Women’s Heart and Health Study Nüesch E, Dale CE, Amuzu A, Kuper H, Bowling A, Ploubidis GB, Lowe G, Rumley A, Ebrahim S, Casas JP. Eur J Epidemiol. 2012 Aug;27(8):633-45.
Physical rehabilitation in post-conflict settings: analysis of public policy and stakeholder networks Blanchet K, Girois S, Urseau I, Smerdon C, Drouet Y, Jama A. Disabil Rehabil. 2013 May 14. [Epub ahead of print] PubMed PMID: 23672208.
Validation of the key informant method to identify children with disabilities: methods and results from a pilot study in Bangladesh Mackey S, Murthy GV, Muhit MA, Islam JJ, Foster A. J Trop Pediatr. 2012;58(4):269-74.
Rapid assessment of avoidable blindness and diabetic retinopathy in Chiapas, Mexico Polack S, Yorston D, López-Ramos A, Lepe-Orta S, Baia RM, Alves L, Grau-Alvidrez C, Gomez-Bastar P, Kuper H. Ophthalmology. 2012 ;119(5):1033-40.
A comparison of the sensitivity of EQ-5D, SF-6D and TTO utility values to changes in vision and perceived visual function in patients with primary open-angle glaucoma Bozzani FM, Alavi Y, Jofre-Bonet M, Kuper H. BMC Ophthalmol. 2012;12:43.
Estimating quality-adjusted life years from patient-reported visual functioning Browne C, Brazier J, Carlton J, Alavi Y, Jofre-Bonet M. Eye (Lond). 2012 Oct;26(10):1295-301.
Rapid assessment of avoidable blindness and diabetic retinopathy in Taif, Saudi Arabia Al Ghamdi AH, Rabiu M, Hajar S, Yorston D, Kuper H, Polack S. Br J Ophthalmol. 2012 Sep;96(9):1168-72.
The Nakuru posterior segment eye disease study: methods and prevalence of blindness and visual impairment in Nakuru, Kenya Mathenge W, Bastawrous A, Foster A, Kuper H. Ophthalmology. 2012 Oct;119(10):2033-9.
Predictors of referral uptake in children with disabilities in Bangladesh–exploring barriers as a first step to improving referral provision Nesbitt RC, Mackey S, Kuper H, Muhit M, Murthy GV. Disabil Rehabil. 2012;34(13):1089-95.
Modelling the association of disability according to the WHO International Classification of Functioning, Disability and Health (ICF) with mortality in the British Women’s Heart and Health Study Dale C, Prieto-Merino D, Kuper H, Adamson J, Bowling A, Ebrahim S, Casas JP. J Epidemiol Community Health. 2012 Feb;66(2):170-5.
How to do (or not to do) … a social network analysis in health systems research Blanchet K, James P. Health Policy Plan. 2012 Aug;27(5):438-46.
Review of the publications of the Nigeria national blindness survey: methodology, prevalence, causes of blindness and visual impairment and outcome of cataract surgery Rabiu MM, Kyari F, Ezelum C, Elhassan E, Sanda S, Murthy GV, Sivasubramaniam S, Glibert C, Abdull MM, Abiose A, Bankole O, Entekume G, Faal H, Imam A, Sang LP, Abubakar T. Ann Afr Med. 2012 Jul-Sep;11(3):125-30.
How to achieve universal coverage of cataract surgical services in developing countries: lessons from systematic reviews of other services Blanchet K, Gordon I, Gilbert CE, Wormald R, Awan H. Ophthalmic Epidemiol. 2012 Dec;19(6):329-39.
Applying principles of health system strengthening to eye care Blanchet K, Patel D. Indian J Ophthalmol. 2012 Sep-Oct;60(5):470-4.
Indignity, exclusion, pain and hunger: the impact of musculoskeletal impairments in the lives of children in Malawi Alavi Y, Jumbe V, Hartley S, Smith S, Lamping D, Muhit M, Masiye F, Lavy C. Disabil Rehabil. 2012;34(20):1736-46.
Cost effectiveness of strategies to combat vision and hearing loss in sub-Saharan Africa and South East Asia: mathematical modelling study Baltussen R, Smith A. BMJ. 2012 Mar 2;344:e615.

2011

Prevalence of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in three regions of England: a repeated cross-sectional study in primary care Nacul LC, Lacerda EM, Pheby D, Campion P, Molokhia M, Fayyaz S, Leite JCDC, Poland F, Howe A, Drachler ML. BMC Medicine. 2011;9:91.
Quality of life and visual function in Nigeria: findings from the National Survey of Blindness and Visual Impairment Tran HM, Mahdi AM, Sivasubramaniam S, Gudlavalleti MV, Gilbert CE, Shah SP,Ezelum CC, Abubakar T, Bankole OO; Nigeria National Blindness and Visual Impairment Study Group. Br J Ophthalmol. 2011 Dec;95(12):1646-51.
Musculoskeletal impairment of traumatic etiology in Rwanda: prevalence, causes, and service Matheson JI, Atijosan O, Kuper H, Rischewski D, Simms V, Lavy C. World J Surg. 2011 Dec;35(12):2635-42.
Using key informant method to assess the prevalence and causes of childhood blindness in Xiu’shui County, Jiangxi Province, Southeast China. Xiao B, Fan J, Deng Y, Ding Y, Muhit M, Kuper H. Ophthalmic Epidemiol. 2011 Feb;18(1):30-5.
The functional status and well being of people with myalgic encephalomyelitis/chronic fatigue syndrome and their carers. Nacul L, Lacerda E, Campion P, Pheby D, Drachler MdL, Leite JC, Poland F, Howe A, Fayyaz S, Molokhia M:BMC Public Health 2011, 11(1):402.
Social support needs for equity in health and social care: a thematic analysis of experiences of people with chronic fatigue syndrome/myalgic encephalomyelitis. de Carvalho Leite JC, de LDM, Killett A, Kale S, Nacul L, McArthur M, Hong CS, O’Driscoll L, Pheby D, Campion P, Lacerda E et al. Int J Equity Health 2011, 10(1):46.

2010

Identification of people with disabilities using participatory rural appraisal and key informants: a pragmatic approach with action potential promoting validity and low cost Gona JK, Xiong T, Muhit MA, Newton CR, Hartley S. Disabil Rehabil. 2010;32(1):79-85.
Access to services for persons with disabilities in challenging environments Dixon C. Blanchet K. Handicap International. 2010. Lyon, France.
Addressing congenital causes of disability Nacul L, Moorthie S, Kapila M, Zimmern R. Lancet. 2010;375:374.
The impact of cataract surgery on activities and time-use: results from a longitudinal study in Kenya, Bangladesh and the Philippines Polack S, Eusebio C, Mathenge W, Wadud Z, Rashid M, Foster A, Kuper H. PLoS One. 2010 Jun 1;5(6):e10913.
The impact of cataract surgery on health related quality of life in Kenya, the Philippines, and Bangladesh Polack S, Eusebio C, Mathenge W, Wadud Z, Mamunur AK, Fletcher A, Foster A, Kuper H. Ophthalmic Epidemiol. 2010 Dec;17(6):387-99.
Does cataract surgery alleviate poverty? Evidence from a multi-centre intervention study conducted in Kenya, the Philippines and Bangladesh Kuper H, Polack S, Mathenge W, Eusebio C, Wadud Z, Rashid M, Foster A. PLoS One. 2010 Nov 9;5(11):e15431.
Rapid assessment of avoidable blindness in three counties, Jiangxi Province, China Xiao B, Kuper H, Guan C, Bailey K, Limburg H. Br J Ophthalmol. 2010 Nov;94(11):1437-42.
Rapid assessment of avoidable blindness in the Occupied Palestinian Territories Chiang F, Kuper H, Lindfield R, Keenan T, Seyam N, Magauran D, Khalilia N, Batta H, Abdeen Z, Sargent N. PLoS One. 2010 Jul 29;5(7):e11854.
Visual impairment from cataract and health related quality of life: results from a case-control study in the Philippines Polack S, Eusebio C, Fletcher A, Foster A, Kuper H. Ophthalmic Epidemiol. 2010 Jun;17(3):152-9.
Prevalence and causes of severe visual impairment and blindness among children in the Lorestan province of Iran, using the key informant method Razavi H, Kuper H, Rezvan F, Amelie K, Mahboobi-Pur H, Oladi MR, Muhit M, Hashemi H. Ophthalmic Epidemiol. 2010 Mar;17(2):95-102.