Ms Kirsten Prest
Research Fellow in Early Child Development and Disability
United Kingdom
I am an occupational therapist and clinical academic working to improve support for families of children with complex neurodisability. My research focuses on developing and evaluating community-based, participatory interventions that strengthen caregiver wellbeing, knowledge and peer support.
My research trajectory was shaped by clinical experience working as an occupational therapist in South Africa, where I observed the value of peer support and group-based approaches for families navigating childhood-onset disability. These experiences highlighted that caregivers across different settings often face similar challenges, including isolation, limited information, and fragmented services. I now live and work in the UK, where this perspective informs my commitment to developing inclusive, family-centred services within NHS community health systems.
During my MSc in Evidence-Based Healthcare at the University of Oxford, I explored the impact of play-based group interventions for children with cerebral palsy on maternal wellbeing, further shaping my interest in family-centred and group-based support. During my HARP-funded PhD fellowship, I led the UK adaptation of the Baby Ubuntu caregiver support programme (“Encompass”), working in partnership with families, clinicians and community services in North East London. I now work with the Baby Ubuntu team, led by Professor Cally Tann, contributing to the development of an adaptation toolkit to support partners seeking to implement the programme in new contexts.
Alongside my research, I work clinically within East London NHS Foundation Trust, where I co-lead an upper limb therapy pathway for children with motor disorders. My combined clinical and research roles inform my commitment to inclusive, family-centred services that are feasible within real-world health systems.
Affiliations
Research
My research focuses on improving support for caregivers of children with complex neurodisability through family-centred, participatory and community-based approaches.
I am particularly interested in:
- adaptation and implementation of complex interventions across contexts
- caregiver wellbeing, peer support and family-centred care
- inclusive research design and engagement with underserved communities
- health inequalities in community child health services
- feasibility trials, process evaluation and implementation science
- integrating lived experience into research and service design
I am working towards feasibility testing of the Encompass programme within NHS community children’s services, with the aim of generating evidence to support scalable, equitable interventions for diverse families.