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Interpreting information: what is said, what is heard - a questionnaire study of health professionals and members of the public

Abramsky, L.; Fletcher, O.
Prenatal Diagnosis, 2002; 22(13):1188-1194
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pub_id
12478631
pubmedid
12478631
ISI
180106800005
reference_type
Journal Article
author
Abramsky, L.; Fletcher, O.
title
Interpreting information: what is said, what is heard - a questionnaire study of health professionals and members of the public
secondary_title
Prenatal Diagnosis
ISBNISSN
0197-3851
volume
22
number
13
pages
1188-1194
year
2002
abstract
Objective To investigate how people perceive some of the words and phrase,, commonly used in prenatal diagnosis counselling. Methods A questionnaire containing 25 questions with forced choice answers was administered in the form of a lecture. Respondents were asked to report how worrying they would find different ways of being told about hypothetical anomalies or risks of anomalies in their baby. 581 questionnaires were completed by 372 health professionals and 209 members of the public. The sample was obtained opportunistically. The exact number of non-responders is not known but is estimated to be less than 5%. Results Respondents reported being particularly worried by the use of genetic jargon and use of the following words: rare, abnormal, syndrome, disorder, anomaly and high risk. They found risk expressed as 1 in X more worrying than when it was expressed as a percentage, and they consistently reacted as if they estimated the chance of an undesired outcome occurring to be greater than that of a desired outcome occurring when both events were equally likely. Conclusions The choice of words used to describe a condition or to inform someone about the level of risk of an adverse event occurring may significantly affect how the person perceive.,, that condition or risk. Copyright (C) 2002 John Wiley Sons, Ltd.
keywords
genetic counselling; prenatal diagnosis counselling; risk communication; connotations of words; jargon Risk language; probability; perception; decisions; dialects; care
secondary_author
place_published
publisher
number_of_volumes
tertiary_author
tertiary_title
edition
date
Dec
type_of_work
subsidiary_author
alternate_title
Prenat. Diagn.
call_number
accession_number
12478631
custom_1
WOS OK
custom_2
15
custom_3
custom_4
10.1002/pd.489
custom_5
custom_6
10
label
notes
English Article Journal Article
url
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Abstract&list_uids=12478631
author_address
Northwick Pk Hosp & Clin Res Ctr, Imperial Coll, Sch Med, Dept Med & Community Genet,N Thames Perinatal Pub, Watford Rd, Harrow HA1 3UJ, Middx, England Northwick Pk Hosp & Clin Res Ctr, Imperial Coll, Sch Med, Dept Med & Community Genet,N Thames Perinatal Pub, Harrow HA1 3UJ, Middx, England Univ London London Sch Hyg & Trop Med, Dept Epidemiol & Populat Hlth, London WC1E 7HT, England
library
12478631 10.1002/pd.489 22366485
created
2003-07-30 10:35:51
modified
2012-03-12 16:49:49
library

<ArticleId IdType="pubmed">12478631</ArticleId>
<ArticleId IdType="doi">10.1002/pd.489</ArticleId>
<ArticleId IdType="medline">22366485</ArticleId>