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Interpreting information: what is said, what is heard - a questionnaire study of health professionals and members of the public
Prenatal Diagnosis, 2002; 22(13):1188-1194
pub_id |
12478631 |
pubmedid |
12478631 |
ISI |
180106800005 |
reference_type |
Journal Article |
author |
Abramsky, L.; Fletcher, O. |
title |
Interpreting information: what is said, what is heard - a questionnaire study of health professionals and members of the public |
secondary_title |
Prenatal Diagnosis |
ISBNISSN |
0197-3851 |
volume |
22 |
number |
13 |
pages |
1188-1194 |
year |
2002 |
abstract |
Objective To investigate how people perceive some of the words and phrase,, commonly used in prenatal diagnosis counselling. Methods A questionnaire containing 25 questions with forced choice answers was administered in the form of a lecture. Respondents were asked to report how worrying they would find different ways of being told about hypothetical anomalies or risks of anomalies in their baby. 581 questionnaires were completed by 372 health professionals and 209 members of the public. The sample was obtained opportunistically. The exact number of non-responders is not known but is estimated to be less than 5%. Results Respondents reported being particularly worried by the use of genetic jargon and use of the following words: rare, abnormal, syndrome, disorder, anomaly and high risk. They found risk expressed as 1 in X more worrying than when it was expressed as a percentage, and they consistently reacted as if they estimated the chance of an undesired outcome occurring to be greater than that of a desired outcome occurring when both events were equally likely. Conclusions The choice of words used to describe a condition or to inform someone about the level of risk of an adverse event occurring may significantly affect how the person perceive.,, that condition or risk. Copyright (C) 2002 John Wiley Sons, Ltd. |
keywords |
genetic counselling; prenatal diagnosis counselling; risk
communication; connotations of words; jargon
Risk language; probability; perception; decisions; dialects;
care |
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tertiary_author |
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date |
Dec |
type_of_work |
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subsidiary_author |
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alternate_title |
Prenat. Diagn. |
call_number |
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accession_number |
12478631 |
custom_1 |
WOS OK |
custom_2 |
15 |
custom_3 |
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custom_4 |
10.1002/pd.489 |
custom_5 |
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custom_6 |
10 |
label |
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notes |
English
Article
Journal Article
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url |
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Abstract&list_uids=12478631 |
author_address |
Northwick Pk Hosp & Clin Res Ctr, Imperial Coll, Sch Med, Dept Med & Community Genet,N Thames Perinatal Pub, Watford Rd, Harrow HA1 3UJ, Middx, England Northwick Pk Hosp & Clin Res Ctr, Imperial Coll, Sch Med, Dept Med & Community Genet,N Thames Perinatal Pub, Harrow HA1 3UJ, Middx, England Univ London London Sch Hyg & Trop Med, Dept Epidemiol & Populat Hlth, London WC1E 7HT, England |
library |
12478631
10.1002/pd.489
22366485
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created |
2003-07-30 10:35:51 |
modified |
2012-03-12 16:49:49 |
library |
<ArticleId IdType="pubmed">12478631</ArticleId> <ArticleId IdType="doi">10.1002/pd.489</ArticleId> <ArticleId IdType="medline">22366485</ArticleId> |
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