Film: Voices from the Shadows
Date: Thursday 8 March 2012
Time: 5:30 pm - 7:00 pm
Venue: Manson, LSHTM, Keppel Street, London, WC1E 7HT, UK
Type of event: Film
To celebrate International Women's Day Film Club will be showing the documentary, "Voices from the Shadows", winner of the "Audience Favourite International Documentary Award” at the Mill Valley Film Festival (2011). Following the film there will be a discussion with a group of panelists.
This compelling film documents the experiences of five people in the UK with severe Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS), which may affect up to 250,000 people in the UK and 17 million worldwide. A highly-stigmatized disease, ME/CFS historically has been largely ignored by the medical profession, which some have attributed to the fact that women suffer disproportionately from the condition.
“the most important and significant film on pediatric ME that has ever been produced” - Prof. Leonard Jason, DePaul University, Chicago, Illinois
“the film was powerful and it should be … part of medical curricula in medical schools.” - Dr. Jose Montoya, Stanford Medical School
"Hidden away in darkened, silent rooms, for years and even decades, lie men, women and children who suffer a cruel and invisible injustice. Although shockingly ill many are disbelieved, denigrated and blamed, suffering medical neglect or even abuse by professionals. Their courage and determination remain unseen and unheard, as many are too ill to make their plight known or are silenced by fear of retribution if they do speak up. Few professionals are willing to speak out to protect them, since by doing so they risk damage to their careers and livelihoods. It is often left to carers, to partners and parents, to act as advocates. This illness... has been systematically denied and misdiagnosed. Medical ignorance is endemic, causing irrevocable harm to many patients."http://voicesfromtheshadowsfilm.co.uk/synopsis/
Panel (to be confirmed)
- Natalie Boulton, Director and Producer of the film
- Dr. Eliana Lacerda and Luis Nacul, members of the ME/CFS Research Team at LSHTM
- Sir Peter Spencer, CEO of Action for M.E.
- Dr. Charles Shepherd, Honorary Medical Adviser to the ME Association
- Dr. Derek Pheby, Visiting Prof. of Epidemiology, New Bucks University