CURE-ME is the ME/CFS research group at the London School of Hygiene & Tropical Medicine (LSHTM). CURE-ME's UK ME/CFS Biobank project is overseen by a Steering Group (pictured below).
What is Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS)?
ME/CFS is a long-term disabling medical condition usually presenting with severe and overwhelming fatigue after mental or physical activity. This is accompanied by a range of disabling symptoms such as cognitive impairment, sleep problems, pain, and autonomic dysfunction, which follow abnormalities in the nervous and immunological systems. In the UK, ME/CFS affects at least one in every 500 people, with a much larger number of people having other forms of chronic fatigue (non-ME chronic fatigue).
Although some people with ME/CFS will recover after a period of time, many will endure long-term disease and disability, which in about 25% of cases can be severe enough to force the person to remain housebound or bedbound. There is currently no curative treatment for ME/CFS.
Our research has focussed on improving recognition, diagnosis and treatment of ME/CFS, from the National CFS/ME Observatory, which explored the impact on affected individuals, to most recently, the development of the UK’s first biobank of samples for ME/CFS research.
The CURE-ME ME/CFS research group is at the forefront of participative epidemiological and qualitative research on ME/CFS and of the identification and long-term follow-up of well-characterised cases of ME/CFS as well as of healthy controls, for comparison purposes, for clinical and biomedical research.
- UK ME/CFS Biobank
- Post-mortem tissue bank and biobank feasibility studies
- National CFS/ME Observatory
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